cw1985 started the topic 5 months on.. velcade 6…. update and questions!. in the forum Treatment 13 years, 1 month ago
Hey everyone!
Ive taken a bit of a hiatus from here but I'm back with some updates on daddy and questions questions questions! With mum and I both working full time again we havnt had much time to visit here but we're here again!
So Daddy is 5 months on from diagnosis… it really has been an eventful 5 months but also very very draining..…[Read more]
cw1985 replied to the topic Good news… Velcade 7 & 8 in the forum Treatment 13 years, 1 month ago
aww Dai thats such awesome news i'm so happy to hear good things are on your path! keep us posted on what you get up to on ur gallivanting!!
christin xx
cw1985 replied to the topic Alex: a life fast forward??? in the forum General 13 years, 4 months ago
He just said he had bone cancer he didn't go into anymore detail. For such a young man I'm totally astounded by his bravery I couldn't even begin to think how I would feel at his age, diagnosed at just 17. The journey with Ali was so beautiful and they didn't approach it naively they were very mature and strong about their decisions. powerful and…[Read more]
cw1985 started the topic Alex: a life fast forward???. in the forum General 13 years, 4 months ago
did anyone watch this amazing documentary on bbc? its still on the iplayer and wow what a program. Obviously left me in floods of tears but Alex's lust for life is just amazing and so inspiring.
cw1985 replied to the topic dad just diagnosed at 48 in the forum Newcomers 13 years, 4 months ago
just a little update on daddy! he was called in for his 3rd MRI yesterday and they have now confirmed that there is vertebrae damage to a few of them, his spinal cord is fine and now they are just deciding whether he will have surgery or radiotherapy. Bit of a blow to dad its taking him a while to process it all but we had good news from the…[Read more]
cw1985 replied to the topic dad just diagnosed at 48 in the forum Newcomers 13 years, 4 months ago
[b]eve[/b] – thanks so much! great advice were going to start writing things down and planning questions more in between appointments.
[b]Dai -[/b] lecture gratefully accepted!!! You have a fantastic way with words i love it! Dad had mantras before he was even diagnosed, being a surfer the phrase " being on the path" he is well known for and…[Read more]
cw1985 replied to the topic dad just diagnosed at 48 in the forum Newcomers 13 years, 5 months ago
Thanks for all your lovely encouraging replies its really great to hear! We finally have a little progress, the pain team changed the doses in dad's syringe driver and today he is much more relaxed and has gained a little more movement, tiny but its progress! cycle 3 of velcade starts tomorrow so its dex time again >.<
Its crazy how things…[Read more]
cw1985 replied to the topic dad just diagnosed at 48 in the forum Newcomers 13 years, 5 months ago
helloo! thanks so much both of you ^__^
badger – dads rash was cause by an antibiotic too but its starting to go down now which is good.
michelle – thats just like my dad, he was so fit did extreme sports we were surfin buddies and now he cant do anything.
hes found the information here very reassuring knowing that there are other…[Read more]
cw1985 replied to the topic Rash with Velcade? in the forum Side-effects 13 years, 5 months ago
hey my dads just started 3/4 of velcade and just came out in a rash they found out its an antibiotic he has taken to prevent shingles maybe check out some of the oral meds shes taking? dads rash sounds very similar
cw1985 started the topic dad just diagnosed at 48. in the forum Newcomers 13 years, 5 months ago
wow what a whirlwind few weeks! I'm a 26 yr old from N.ireland and my dad was diagnosed with Myeloma 5 weeks ago. Hes only 48 so this is a massive shock to all of us and him. after 4 weeks in hospital he is now home but pretty much bed ridden, his mobility is so low its a real struggle doing the simplest of things the pain is really bad. Hes…[Read more]
