Myeloma Forum | christinwhite | Activity https://forum.myeloma.org.uk/members/cw1985/activity/ Activity feed for christinwhite. Sun, 05 Apr 2026 15:01:06 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 d59509a4a87ad7ee78219d0cbc882cb8 christinwhite started the topic 5 months on.. velcade 6.... update and questions!. in the forum Treatment http://www.myeloma.org.uk/forums/topic/5-months-on-velcade-6-update-and-questions Tue, 18 Oct 2011 23:56:32 +0100 Hey everyone!

Ive taken a bit of a hiatus from here but I'm back with some updates on daddy and questions questions questions! With mum and I both working full time again we havnt had much time to visit here but we're here again!

So Daddy is 5 months on from diagnosis… it really has been an eventful 5 months but also very very draining..…[Read more]

]]> dc71d03db385b9b638950ae972b32fa4 christinwhite replied to the topic Good news... Velcade 7 & 8 in the forum Treatment http://www.myeloma.org.uk/forums/topic/good-news-velcade-7-8/page/2/#post-98280 Tue, 18 Oct 2011 23:27:12 +0100 aww Dai thats such awesome news i'm so happy to hear good things are on your path! keep us posted on what you get up to on ur gallivanting!!

christin xx

]]> b52828be6d6247cf0b2fae2e86ce9d60 christinwhite replied to the topic Alex: a life fast forward??? in the forum General http://www.myeloma.org.uk/forums/topic/alex-a-life-fast-forward#post-90837 Sat, 23 Jul 2011 11:28:03 +0100 He just said he had bone cancer he didn't go into anymore detail. For such a young man I'm totally astounded by his bravery I couldn't even begin to think how I would feel at his age, diagnosed at just 17. The journey with Ali was so beautiful and they didn't approach it naively they were very mature and strong about their decisions. powerful and…[Read more]

]]> f0a0ada4839cb8d69bcec679f0294d67 christinwhite started the topic Alex: a life fast forward???. in the forum General http://www.myeloma.org.uk/forums/topic/alex-a-life-fast-forward Fri, 22 Jul 2011 12:09:11 +0100 did anyone watch this amazing documentary on bbc? its still on the iplayer and wow what a program. Obviously left me in floods of tears but Alex's lust for life is just amazing and so inspiring.

]]> bdfe6dcd1df0fa57fceaedd7717bb9c5 christinwhite replied to the topic dad just diagnosed at 48 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-just-diagnosed-at-48/page/2/#post-84546 Fri, 08 Jul 2011 14:04:57 +0100 just a little update on daddy! he was called in for his 3rd MRI yesterday and they have now confirmed that there is vertebrae damage to a few of them, his spinal cord is fine and now they are just deciding whether he will have surgery or radiotherapy. Bit of a blow to dad its taking him a while to process it all but we had good news from the…[Read more]

]]> 34619302845acad2408e7c534a35115f christinwhite replied to the topic dad just diagnosed at 48 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-just-diagnosed-at-48/page/2/#post-84539 Mon, 04 Jul 2011 01:05:13 +0100 [b]eve[/b] – thanks so much! great advice were going to start writing things down and planning questions more in between appointments.

[b]Dai -[/b] lecture gratefully accepted!!! You have a fantastic way with words i love it! Dad had mantras before he was even diagnosed, being a surfer the phrase " being on the path" he is well known for and…[Read more]

]]> 5b96fd085d6adb3d0c75a7183ad81fdc christinwhite replied to the topic dad just diagnosed at 48 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-just-diagnosed-at-48#post-84532 Thu, 30 Jun 2011 13:57:47 +0100 Thanks for all your lovely encouraging replies its really great to hear! We finally have a little progress, the pain team changed the doses in dad's syringe driver and today he is much more relaxed and has gained a little more movement, tiny but its progress! cycle 3 of velcade starts tomorrow so its dex time again >.<

Its crazy how things…[Read more]

]]> 9ab19a30c4ea08292a17c8a9327d5b21 christinwhite replied to the topic dad just diagnosed at 48 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-just-diagnosed-at-48#post-84525 Sat, 25 Jun 2011 22:07:14 +0100 helloo! thanks so much both of you ^__^

badger – dads rash was cause by an antibiotic too but its starting to go down now which is good.

michelle – thats just like my dad, he was so fit did extreme sports we were surfin buddies and now he cant do anything.

hes found the information here very reassuring knowing that there are other…[Read more]

]]> f1f8d06f1d8c889ad073380646e352b1 christinwhite replied to the topic Rash with Velcade? in the forum Side-effects http://www.myeloma.org.uk/forums/topic/rash-with-velcade#post-103959 Sat, 25 Jun 2011 16:39:50 +0100 hey my dads just started 3/4 of velcade and just came out in a rash they found out its an antibiotic he has taken to prevent shingles maybe check out some of the oral meds shes taking? dads rash sounds very similar

]]> c508611da30e1c70219178269df388cc christinwhite started the topic dad just diagnosed at 48. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-just-diagnosed-at-48 Sat, 25 Jun 2011 13:52:31 +0100 wow what a whirlwind few weeks! I'm a 26 yr old from N.ireland and my dad was diagnosed with Myeloma 5 weeks ago. Hes only 48 so this is a massive shock to all of us and him. after 4 weeks in hospital he is now home but pretty much bed ridden, his mobility is so low its a real struggle doing the simplest of things the pain is really bad. Hes…[Read more]

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