Hi – & thank you for your earlier reply to me. I’m still catching up with myself 🙂

I’m sorry you are having such a difficult time. Have you tried talking to your gp? I understand from mine that referrals on are made via him & even yesterday when I spoke to another partner at the surgery( my dr is on holiday) she told me to call at any time if I…[Read more]

Hi Rosie,

Yes it is a bit of a rollercoaster ride mixed with “wait & see” isn’t it? I’m a few weeks ahead of you ( first haematology appt on December 1oth )& now in the test cycle – skeletal survey, bone marrow biopsy, more armfuls of blood etc etc!! It will be the end of the month before I get confirmation of where I am with this.

I have found…[Read more]

Hi Fozz

How are you feeling? I’m new to the forum & a few weeks behind you  in terms of tests etc but reading your posts it sounds like you’re having a dreadful time.

Thinking of you

C xx

Hi Helen,

Thanks for this – I feel so much better tonight which is helping me get a “sensible head” on ready for my appt:)

Everyone who has replied has been so supportive – as was my GP, who has been there for me through previous  not-so-tactful letters from the hospital. In fact we even found ourselves laughing about it as he pointed out the…[Read more]

Hi Chrissie & Noel

Thank you both for this – I really appreciate it. Both of you reinforce my thoughts that if I need a bone marrow biopsy I will sally forth with a local & loud music!

I have just been to see my lovely GP who has looked at the bloods with me & told me not to panic, get some sleep & wait & see what the appt brings. All three of…[Read more]

Hi Noel & thank you for this  reassuring info.

If I understand your history correctly, you are now preparing for an allograft transplant – I wish you well.

Can I ask a few more questions; was your bone pain persistent or did it flare & then subside?Also have you managed to keep working &/or exercising around your treatment. And has treatment…[Read more]

Hi Chrissie,

Thanks for this very welcome reply. I feel very alone with this & the timing is terrible as I am currently spending every weekend crossing the country south-east to south west as my mum is in the final stages of pancreatic cancer.

Can I please ask did you have conscious sedation or local anaesthetic? And could you return to work the…[Read more]