[daffodilParticipant]

Hi Louise,
I just wanted to say I hope you’re doing ok. I was diagnosed just very recently too, and still also in the shock stage. It feels like skating on thin ice all day, trying to keep it together without falling. Sending warm thoughts your way.
daffodil x

[daffodilParticipant]

Thank you so much for these very helpful insights. I really appreciate getting some real-world experience advice!
daffodil

[daffodilParticipant]

Hi everyone,
thank you so much for the helpful feedback – it is nice to hear from people who have lived it. At the moment, the pain and fatigue are interfering with work, and now that i know I have this, the emotional part is challenging too – I feel like I’m faking being “ok” and “upbeat and positive” but it’s all thin ice. How long does it take to get over the emotional shock?
daffodil

[daffodilParticipant]

Hello everyone,
I was really pleased to find this topic, as I’m struggling with work questions right now. Just diagnosed, and about to start treatment. I’m 60, and was planning to work at least a couple more years, but now wondering how much time off is typical. Do people usually have to stop working as soon as the first-line drug treatment begins? (i.e., before you get to the STC point)? I perhaps naively imaging the drug treatments might make me feel better, but I’m wondering if that is unrealistic.

[daffodilParticipant]

Hi Louise,
I was also just diagnosed, after initial blood tests showed elevated lambda and an abnormal FLC ratio. Then a bone marrow biopsy showed 10% plasma cells. Also facing likely first-line drug therapy followed by autologous SCT. Hope you’re coping ok. It is certainly a horrible shock. Wishing you the best.

[Author]

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