andyg replied to the topic Busy Week in the forum Treatment 12 years, 6 months ago
Hi Eve and Slim.
I hope everything goes well for you both this week and Sunday is the start of good times for you both. Keep us posted.
Best wishes
Andy x
andyg replied to the topic More later but… in the forum General 12 years, 6 months ago
Hi Dai.
You sound like you went through a similar experience as I did a couple of weeks ago – though my temperature topped out at 38.9 Glad your on the mend now.
Take care
Andy
andyg replied to the topic New to the site in the forum Newcomers 12 years, 6 months ago
Hi Vicki.
A warm welcome to the forum. I have MM myself diagnosed October last year. There's not much I can add that hasn't been said already. Just remember everyone's journey through MM is different. Treatments vary some get bad side effects some get very few side effect etc etc. but whichever way the journey takes Colin keep the us informed…[Read more]
andyg replied to the topic Newbie in the forum Newcomers 12 years, 6 months ago
Hi Gail.
Welcome to the forum. I was diagnosed with MM October 2011 – 3 days before my wedding so my wife has been a carer since we married. Not a nice start to married life! I think it can be easier for the suffer than the carer at times.
Feel free to ask ANY questions on here come along for a moan a shout a scream! You'll always find an ear…[Read more]
andyg replied to the topic New – but feel I know you already! in the forum Newcomers 12 years, 6 months ago
Hi Rosie.
Welcome at last to the forum. I was diagnosed October 2011 so you've been on the MM journey a lot longer than me. I haven't had a sct yet as the medics are struggling to get my paraproteins down. I have been told sct can be quite difficult for some but not having been through it myself I can't offer an opinion on whether going for a…[Read more]
andyg replied to the topic New Need to talk in the forum Carers 12 years, 6 months ago
Hi Teresa
My sleep patern is all over the place some nights I sleep right through and others it takes a bit to drift off. I'm back on my dex for the next 4 days so I'll be needing my iPhone fully charged.
On the beer front I prefer the double brewed beers though the triples are good too. My wife Steph enjoys the fruit beers though she's a red…[Read more]
andyg replied to the topic New Need to talk in the forum Carers 12 years, 6 months ago
Hi Helen
My hair "style" has been the same for a long time 🙁 My brother and I used to be called Phil and Grant when we went out together! Aka the Mitchell brothers 😉 I can't remember the last time I paid to have my hair styled. I started to lose it in my early 20's. I'll look around for a picture of me with hair. It'll take some uploading as…[Read more]
andyg replied to the topic New Need to talk in the forum Carers 12 years, 6 months ago
Hi Teresa.
I'm feeling good now thanks. Just got in from a night out with my wife, brother and sister inlaw. I had a few beers, probably the most I've drunk since I was diagnosed.
I'm not going to comment on hair colour or style since I don't have either lol and that was before chemotherapy took its toll on me.
My wife and I have a few days…[Read more]
andyg started the topic Blood tests. in the forum Treatment 12 years, 6 months ago
Hi all.
Got my latest blood test results yesterday and everything was ok. Nothing to worry about.
My body is coping with my high level of paraproteins (41) and the medics are hoping that the rev/dex will bring that down. I'm proving a challenge, or rather the paraproteins are proving a challenge, to the medics. My specialist nurse hasn't…[Read more]
andyg replied to the topic Facebook in the forum General 12 years, 7 months ago
Hi Carol.
I'm on DEX time 😉 and also on facebook. So I've spent some time sending out friend requests. I'm on as Andrew Godfrey – same photo I think. So if anyone gets a strange friend request it could be me 😉
Take care all
Andy x
andyg replied to the topic paraproteins in the forum Newcomers 12 years, 7 months ago
Hi Lexi.
I have multiple myeloma and my paraprotein level was 41 at last test! I started at 50 in oct 2011 and my paraproteins have proved a challenge to my medical team and I. The main thing to remember is everyone has a different journey and reacts differently to treatment. The target for me is to get below 10 and have a stem cell transplant…[Read more]
andyg replied to the topic Day 7 in the forum Side-effects 12 years, 7 months ago
Hi Tina.
A warm welcome to the world of DEX. I've had my 4th round of DEX for my 2nd cycle of rev/dex therapy. It's 3:30am and I'm wide awake! I know I'll be sleepy all afternoon but as Tom says its worth tfe side effects for the good it does. I get chubby rosey cheeks too.
Take care
Andy xx
andyg replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 12 years, 7 months ago
Hi Teresa
CDT is usually the first line treatment of MM – well it was for me – and is cyclophosphamide, dexamethasone and thalidomide.
Hope your coping ok.
Love Andy xx
andyg started the topic Latest results :-(. in the forum Treatment 12 years, 7 months ago
Hi all.
As you may know I haven't been responding well to any of the treatments so far. Well I've just been called by my specialist nurse with my paraprotein result after my first cycle of Rev/Dex. Not good news my paraproteins are still being very stubborn and have actually gone up slightly from 38 to 41 not a lot but a big blow. I don't know…[Read more]
andyg replied to the topic POSTBONED in the forum End of Life and Grief 12 years, 7 months ago
Dear Eve and Slim.
We are so sorry to hear of your sad loss. Our thoughts are with you and your family at this sad time.
Love and hugs.
Andy and Steph xx
andyg replied to the topic New Need to talk in the forum Carers 12 years, 7 months ago
Dear Teresa and Pete.
We are so sorry to hear your dreadful news. It knocked the wind from my sails. I don't know what to say other than you are all in our thoughts and we hope that you knowing that can in someway help. There's no need to reply but I do hope you get this message.
Lots of love and good wishes.
Andy and Steph XX
andyg replied to the topic Revlimid and Velcade in the forum Treatment 12 years, 7 months ago
Hi Stephen.
Welcome to the forum.
The important thing to remember about mm and the fight against it is that everyone's journey is different. Drugs that work marvellously for one person fail to make an impression on another. I know I seem to be in the later group 🙁 Velcade didn't work for be and now I'm trying Revlimid and Dex with my…[Read more]
andyg started the topic I'm back.. in the forum General 12 years, 7 months ago
Hi everyone.
Just a post to let you know why I've not posted for a bit. Just over a week ago I went for my usual blood tests and my temperature was a little high 37.8. The next day I was there for my zometa and my temperature was higher 38.2 cue an examination by a doctor and a prescription for antibiotics and an appointment for the next day.…[Read more]
andyg replied to the topic Relapsed and starting VCD – keen to hear from others on same journey! in the forum Treatment 12 years, 7 months ago
Hello Vanessa and Philip.
Welcome to the forum. We are all friends here.
Sorry I can't help you with your question. I was only diagnosed October last year and haven't reached a stage for a sct yet. I'm sure you'll receive an answer from someone who has had a similar experience as Philip soon. If not you could give Ellen a call on the…[Read more]
andyg replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 12 years, 7 months ago
Hiya Ann and Pete.
Welcome to the forum, none of us want to be here, but it's a friendly, supportive and informative forum.
Sorry for the delay in welcoming you but I was in hospital last week and have only just recovered.
I was diagnosed with mm oct 2011 after approx. 18 months of back trouble.
If you have any questions ask away, either…[Read more]