Hi all
I start my next round of treatment today! So last night we went out for a drink for only the second time this year 😉 We saw a good band and I had several pints of real ale 🙂 We've come to the conclusion we're going to live life as much as possible or as much as my back will allow.
Planning to take a trip to the lakes later in the…[Read more]

Hi Eve
It's good to hear yours and Slim's good news. It's given me a lift as I begin my latest attempt at getting my stubborn paraproteins to a level for a sct. I'm lucky in that I'm only 10 mins from my haematology department though if errr I mean when I go for a sct I'll have to travel to Newcastle freeman hospital which is nearly 40 miles…[Read more]

Hi Mavis and Dai

Mavis I am turning my anger on to the pp's but I'm also hoping the drugs will help out a little. Thanks for the good wishes 🙂

Dai my pp score is in the mid 30's it was just over 50 at diagnosis – I think. CDT got them down to the mid 30's but no matter what treatment I was on they refused to go lower!
Ideally they want…[Read more]

Hiya everyone.
Been for my latest blood tests today – The result of which is I am no longer neutropenic 🙂 I won't get the results about my paraproteins till later in the week.
I have been booked in for my second round DT PACE treatment next Monday. So that's another 5 nights at the hotel NHS.
I'm a bit nervous waiting to find out what my…[Read more]

Hi Dai
I also get tingling round my mouth and lips. I wasn't sure if it was dex or thalidomide that caused it. However dex got the blame for my fat face!

Andy

Hi all
It is great to be home though as Tom says its a bit scary not having the safety net of nurses and doctors around. But as Tom also says there's less risk of picking an infection up at home than in hospital. I'll do my best to report any changes Dai – it has been drilled into me how important it is – but I am a bloke :-/ I've just had…[Read more]

Hi everyone.
I woke up in my own bed this morning 🙂 No nurse waking me at 4am for obs. I was let home yesterday evening with a carrier bag full of drugs. I'm still feeling ok – thankfully. I know I need to be vigilant for the next few days but I'm glad to be home.

Andy

Hi Dai

It's good to hear your pain is easing. Hopefully it'll soon be gone completely. There's nothing worse than constant nagging pain. We've all got our personal battles going on but if we stay strong and positive we will improve.

Wishing you pain free

Andy

Hi all
Well I'm only 10 hours away from the end of the first round of DT PACE and I'm feeling ok. I'm not counting my chickens though after all the warnings about the days after being bad.
Thanks for the link to the blog Lorna it was interesting.
I've just had my obs and everything is fine. Hopefully the pesky PP's are having a hard time and…[Read more]

Hi all
Well I'm nearly at the halfway mark and I'm feeling ok. Like Bridget said and all the nurses keep telling me my bad time could come after discharge and I have to be very vigilant and monitor my temp regularly. Hopefully it'll be ok because I'm having at least 2 cycles.

Hoping everyone is ok
Andy xx

Hi Dai
Good to hear your test results are good. Long may they stay that way and your painful shoulder disappears. Well the pain disappears not your shoulder 😉 there's nothing worse than a constant nagging pain.
Here's to a pain free future
All the best
Andy

Thanks for all the good wishes.
I'm now in hospital and have just been connected up to all my infusions. So the battle has started. Only 3 days 23 hours and 50 mins to go – not that I'm counting 🙂

Thanks once again for all your messages of support.
Andy xx

Many thanks for all the supportive comments.
I've just been looking at the list of drugs I'll be on during my stay in hospital. It's a very long list! Cisplatin, cyclophosphamide, etoposide and doxorubicin all by IV and continuous for 4 days. Thalidomide and of course dexamethasone orally and 5 or 6 anti side effects drugs.
I think I may be in…[Read more]

Hi Bridget
Just read your post – dex is keeping me awake – I'm very sorry to hear your news. As I'm new to the MM battle I haven't much knowledge of treatments or advice. I can only hope that you receive something that works for you.

Best Wishes
Andyg XX

Hi Kay and Eve
Thanks for the welcome. It good to know that there's people who care enough to support and share with others their experiences whilst in the middle of the MM journey. I'm on the first rung of the SCT ladder as I'm being referred to the transplant centre at the Newcastle freeman. I'm not sure how long the process will take from here…[Read more]

Hiya Keith my wife and I will be there Saturday.
We were at the support group meeting last week – sat round the same table.

See you there
Andy – oh and Steph

Thanks for the welcomes Jo, Helen and Tom.
I'm sure my road to remission will be bumpy at times but I will be sure to fasten my seat belt.

I'm looking forward to sharing the good times and helping at the bad times.

Best wishes to everyone
Andy x