daisy chain

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  • #98628

    daisychain
    Participant

    Hi Kay

    I've been reading through your blog and really interested to know what happened after your SCT and the revlimid.

    Take care
    Dawn:-)

    #99836

    daisychain
    Participant

    Hi keith

    Interested to know how you're getting on? had my 2nd SCT in feb with revlimid maintenance tolerating it well. When did you relapse from your 2nd SCT and long did it work for you?

    Dawn:-)

    #86105

    daisychain
    Participant

    Hi Antionette

    I was diagnosed at 45 with MM I'm now 51> my kids were 7 and 12 at the time and it was devestating and scary. I've had my ups and downs i've had 2 stem cell transplants & a plasmacytoma in my head. I still work as a consultant and my kids/husband have learnt to live with it…

    Try not to think too much into the future what if's etc – easier said than done I know (i'm terrible for doing it – and it is quite normal if you have lost that security of life).And especially around blood result days…

    I always try a get councelling as it's my mind that plays havoc with me. You could try reading up on:

    Mindfulness – its sort of about living and thinking in the present try this link to begin with http://www.cancernetwork.com/nurses/content/article/10165/1698208

    EMDR this has been recommended by my company's Occ Health therapist http://en.wikipedia.org/wiki/Eye_movement_desensitization_and_reprocessing
    http://candacepert.com/

    Someone has recommended I read this book by Candace Pert Molecules of Emotion – http://candacepert.com/

    I find if I can keep my mind in order – I really can live a good life with my kids, family and friends and deal with the challenges this disease brings me.

    I think of this statement often when things are tough and try to ride the waves to the next new realease of treatement.

    "You can't stop the waves but you can learn to surf" Sri Swami Satchitananda

    http://www.swamisatchidananda.org/docs2/home.htm

    good luck

    Dawn x

Viewing 3 posts - 61 through 63 (of 63 total)