dan4uk replied to the topic survival in the forum General 10 years, 11 months ago
Hi, If you type in google you might be interested in (margaret’s corner) shes dealing with smouldering myeloma and has loads of information on diet and references to studys that have been done on her blog. She is also on facebook under (Margaret’s Corner. Living with smoldering myeloma). She doing very well so far and is just one of the people…[Read more]
dan4uk replied to the topic Someone else learning to live a different way in the forum Newcomers 11 years, 7 months ago
Hi, sorry to hear your bad news. I was interested to hear you mention diesel as I've been heavily exposed to the stuff for years. I was also a HGV driver until diognosis in jan last year, wish I knew then what I know now!
dan4uk replied to the topic Newcomer in the forum Carers 12 years, 9 months ago
Hi Mavis, good to hear from you.
We have had a rough couple of days, Dans back pain is getting worse….is there anything stronger than morphine they can give him?
Yeah Dan is on the clinical trial but the treatment had to be choosen randomly and the standard CDT was drawn, we hope to get some of the trial treatment later on down the line.…[Read more]
dan4uk replied to the topic Newcomer in the forum Carers 12 years, 9 months ago
Hi
Thanks for the replies, it means so much. I realise that we arent alone with this unfortunately and that others are suffering too, life can be so cruel. Thankyou to the both of you for your positivity. I'm so sorry to hear about how MM is affecting you both. Dans skull has started to strink and we are finding craters all over his head now, I…[Read more]
dan4uk started the topic Newcomer. in the forum Carers 12 years, 9 months ago
Hi to all.
I'm zoe, a carer to my husband Dan who got diagnosed with myeloma only 3 weeks ago, he is only 29. I've heard so many good things about this website and at the moment feel so scared I need advice and support from those who know what we are going through. Dan only went to the doctors for what we thought was a cist on his forehead but…[Read more]