I must have moved into your room as you moved out, can't remember the 'cell' number but I had white cups!
My next clinic is June 6th at 11.45 then upstairs for my monthly penidronate infusion.
Might just see you there.
You are right about Dave, very good and very thorough.
Regards Tony F

Hi Jean,

Thanks for a lovely welcome, I'm just about to put kettle on. Milk and sugar?:-D

Very nice to meet you, hope to share stories and rants in the years to come.

I have been on here all night, well a long time for me anyway>:-) .

See you soon
Regards
Karen

ps I was offered the maintenance drugs on my last visit by Dave, it was a bit out of the blue, and I declined as I want to give my body a rest as it has been battered.
Not sure if i have done the right thing though.
Regards
Karen

Hi TonyF,
I had my SCT on 11th Jan 2013, i was admitted on the 9th Jan> . I was discharched on the 28th Jan, we missed each other by a day. I know Drs Chapman and Barton, but my main consultant is Dr Garg, I seen her a lot when i went for my vertebroplasty to the Spire hospital (husbands cover through work), Dr Rennie did op, it went very…[Read more]

Nice to meet you, you seem to have gone through the mill. What dates in January 2013 were you having your SCT? The reason I ask…..I was in the same transplant unit as you from January 29th, we could have been neighbours! We live in Leicestershire and I attend the various clinics at the Royal. I was diagnosed in March 2012, went onto the Myeloma…[Read more]

Hi TonyF,
Thanks for the welcome. Nice to meet you.:-) (bit of a smiley monster)
I hope there may be times when I can somehow help or support.
Regards
Karen

Thanks Etta,

I can tell already that people are friendly.

I put my story on my profile but will copy to here.

Thanks again Etta, nice to meet you. Karen 🙂

I am a 51 year old married mother of 2 teenage girls. Diagnosed aged 50 in July 2012, with Multiple Myeloma. Changed all our lives forever. We live in Rutland, but our nearest…[Read more]

Sorry that you are here, but welcome to the site. Myeloma seems to affect everyone differently and everyone has a different tale to tell. But whatever the problem or question I am sure that you will find someone to answer it here.
Regards Tony F

I am so sorry to hear your sad news Hawkeye, love to you and your family at this sad time.
Tony F

I am 68 years age, diagnosed in march 2012 , immediately went onto myeloma XI trial, had my SCT this February, had my three month appointment last Thursday. All the blood counts were good, my para protein read 2.2, so am considered to be in partial remission. At the clinic I had a long conversation with the trials nurse about revlimid and…[Read more]

So sorry to read about your mum, strange how mm treats everyone differently. I am also being treated at the Leicester Royal Infirmary, I have found them to be very thorough and caring. I am sure that they will do their level best for your mum.
Hope it goes well for her tomorrow.
Regards Tony F

I had the pleasure of meeting Keith regularly, either at the day case unit or the local support group, and he was everything and more the person who posted here. He was bloody minded in his approach to MM he wanted to and did tackle it head on. He wasn't afraid to try new treatments or drugs but he knew the ultimately the damned MM would prevail.…[Read more]

Good luck with your SCT, the worst part about the harvest is having to lay still for 5 hours! As for the rest of the journey I am sure that you will take it in your stride, all of us react in a different way to the treatment, but you know the unpleasantness only lasts for a short while and hopefully the outcome is worth while and it leads to a…[Read more]

Hi, it was 3 months ago that I had the stem cell transplant, my 3 month check up is on 9th May, so should know more then. Fingers crossed!
Good luck with yours, hope its as trouble free as mine was, I'll be thinking of you both, stay calm.
Regards. Tony F

Hi Ann.
Welcome to the forum sorry that you've had to join us.
I was diagnosed after 18 months of back pain. It first presented itself whilst training for the London marathon 2010 I was finally diagnosed Oct 2011 – 3 days before our wedding.
We returned from a short honeymoon to our first meeting with our consultant to be told myeloma is not…[Read more]

Hi, we have a very lively border collie, I think that it is the dog that has kept me going through the whole process. As Tom said don't get overwhelmed by cleaning everything, just be sensible, I carry on just as I used to with dog, just wash my hands after stroking him, like me he's very confused by everything. I've gone back to walking him…[Read more]