Hi Vicki, Colin & Tom.
Weather update – woke up this morning to thick fog! I think the sun is avoiding us.
Hope you all have a sunny weekend whilst we hide out in the pubs 😉
All the best
Andy xx

Hi Vicki & Colin.
Another day draws to a close in the lakes and we've had no real rain! We. Actually saw the sun for a few minutes today 😉 Anyway we've had a good day. Did a little walking and a bit of sitting on our way round tarn hows and then had a beer and a bite at coniston. I'm now tired out. Hopefully the sun will shine a bit longer…[Read more]

Hi Vicki & Colin.
I really hope you get the prelixalor funded and it does the job. I've been told my bone marrow is not up to producing enough stem cells for a sct due to the battering it has taken through all the different chemo drugs I've tried. If I remember right Colin has only had one type of chemo so hopefully his bone marrow won't be too…[Read more]

Hiya.
I think you'll find we all struggle with sleep at times. I'm not working so I can nap during the day if need be. Fatigue is also a side effect of mm and you need to listen to your body and rest up when it tells you. Steroids are especially hard on sleep. You need the support of family, friends and work to help through the difficult mm…[Read more]

Hi Eve.
It's great news that Slim is in complete remission and you can think of trips away rather than trips to the hospital. With all that you have both been through recently you deserve some good times. Have a great time on your trips away.
All the best
Andy

Hi Vicki & Colin.
I'm so sorry to read your post. It must be heartbreaking. Hopefully tomorrow will bring a big change. I know what a big blow being told something isn't working is. I hope they allow you to use plerixafor to boost Colin's cell production. I've not been down the sct road but I'm sure there must be another plan. To get so close…[Read more]

Hi everyone.
Thanks for all the posts. It's a strange old disease this mm if it wasn't for my back I wouldn't know I was ill. Oh and besides the drugs side effects which luckily I don't suffer too badly from. All my fiends say when I meet them that I look well! I'm even getting my taste for beer back – though the hangovers are a little to easily…[Read more]

Dear Teresa.
Like Helen I don't have the words to ease your pain of the loss of Peter. Hopefully time will lessen the pain and your memories of Peter will be mainly of all the good times you shared together.
I found your post very emotional and brave.
I hope the future is kind for you and know that we are all thinking of you and your family…[Read more]

Hi everyone.
Thanks for all the good wishes for my appointment on Tuesday. I must admit the closer it gets the more anxious I'm becoming 🙁 Anyway as they say worrying never changes anything so I'm trying to be as positive about it as I can be.

Dear Teresa my back pain has eased off since my radiotherapy. So as long as I don't overdo…[Read more]

Dear Teresa.
We're so sad and sorry to hear about Peter. We hope you are managing to cope with your sad loss. We hope you have your family and friends support in this difficult time. It's difficult to find words of comfort for you but please know that we are thinking of you and your family in this time of sadness.

Lots of love
Andy & Steph…

Hi Michele.
Welcome to the forum that we'd all rather we had never heard of.
It's good you have come through your treatment well. As you'll know by now nearly everyone ones journey with MM is different so the more contributors we have the better the MM journeys are covered.
I look forward to reading your posts as you enjoy your long and…[Read more]

Hi all.
Just thought I'd add to the benefits discussion. I get the higher rate DLA and mid rate AA and I also get ESA. Just got my blue badge too. I had help with the DLA form from a charity at my hospital. My specialist nurse and consultant both told me about them. So I would advise everyone to ask for help with the form because it's a…[Read more]

Hi Paul.
Well done. Glad to see DT PACE did the trick for you. I hope the SCT goes smoothly and you have a long and successful remission.

All the best

Andy

Hi Mari.
Great news. Have a fantastic holiday.
Love Andy xx

Hi Mike.
Welcome to the forum. You'll find lots of support and friendly advice here.
Everyones MM journey is different as is their response to treatment and the drugs. Hopefully you'll sail through it to a stem cell transplant.
I was diagnosed at 53 too oct last year – unfortunately my back was quite badly damaged. I'd been on the sick 6…[Read more]

Hi Dai
Sorry to here your going through a tough time again.
I'm with you on looking ok whilst on the inside we are fighting MM. If I had a pound for everytime I was told I looked well I'd be a rich man. Sometimes when I'm not so well I want to shout 'I may look ok but inside I'm dying' but I don't and just smile. I think everyone is well…[Read more]

Hi everyone.
Thanks for all your good wishes
Here I am a day post radiotherapy with no major side effects as yet. Just a pleasant warming in the small of my back.
Helen I did have a numbness in my left leg and foot but it wasn't too bad – that has gradually reduced since I started on Revlamid – my nurse said the Revlamid sales person said…[Read more]