Dear Eve and Slim.
We are so sorry to hear of your sad loss. Our thoughts are with you and your family at this sad time.

Love and hugs.
Andy and Steph xx

Dear Teresa and Pete.
We are so sorry to hear your dreadful news. It knocked the wind from my sails. I don't know what to say other than you are all in our thoughts and we hope that you knowing that can in someway help. There's no need to reply but I do hope you get this message.

Lots of love and good wishes.
Andy and Steph XX

Hi Stephen.

Welcome to the forum.
The important thing to remember about mm and the fight against it is that everyone's journey is different. Drugs that work marvellously for one person fail to make an impression on another. I know I seem to be in the later group 🙁 Velcade didn't work for be and now I'm trying Revlimid and Dex with my…[Read more]

Hello Vanessa and Philip.

Welcome to the forum. We are all friends here.

Sorry I can't help you with your question. I was only diagnosed October last year and haven't reached a stage for a sct yet. I'm sure you'll receive an answer from someone who has had a similar experience as Philip soon. If not you could give Ellen a call on the…[Read more]

Hiya Ann and Pete.
Welcome to the forum, none of us want to be here, but it's a friendly, supportive and informative forum.
Sorry for the delay in welcoming you but I was in hospital last week and have only just recovered.
I was diagnosed with mm oct 2011 after approx. 18 months of back trouble.
If you have any questions ask away, either…[Read more]

hello carol, thanks for the welcome, is that a glass of white? if it is, cheers! I guess I've got a way to go, cant explain how I feel at the moment. Never had any serious illness so it takes a bit of getting used to. Takes a bit to get used to the kindness shown by all of those I come into contact with, there are some really dedicated people…[Read more]

Hi, thanks for the welcome, feeling very positive, guess I've got a long way to go yet, stay in touch Tony

Glad you are returning to fitness, long may it continue for you, thanks for the welcome Tony

thanks for the welcome Debs, sounds like you are responding well.

hi outdoors Paul, take it that you enjoy the great outdoors, do you still get out or are you a bit restricted? We used to live in Keswick, what a wonderful place for enjoying the countryside! Hope your treatment shapes up satisfactorily. thanks for the welcome, stay in touch.

oh dear!!!! I had one of those the other night, ended up watching Mad Max 2 on ITV2, dont recommend it, however the tea tasted pretty good! thanks for the welcome

Hi Eve
My blood tests came back good – hopefully when they check my paraproteins next week we'll see some downward movement – however I'd been feeling a bit under the weather since Monday and my temp has been rising. It was 38.2 today so after my zometa they did all sorts of tests to find the source of the infection. They think it could be my…[Read more]

Hi Teresa
I hope the hospital visit goes/went well. I was. At hospital today hmm yesterday now for blood tests. They came back ok. Though I did have a raised temperature – more pills to take.
I enjoyed reading your son in laws brewery website it's well set up and informative.
I'm happy to see he's brewing Belgian beers they are a particular…[Read more]

Hi Tony
Welcome to the group. You'll find out most things you need to know from your friends on this forum. Everyone's story is different and everyone's journey is also different. If you get stuck for advice then there's the helpline.
I myself was diagnosed in oct 2011 so I've not long started my journey. It's been a bit bumpy so far for me.…[Read more]

hello Tina, Yes I started the myeloma X1 trial last monday, had a bowl of porridge, then took the tablets with water, included a soluable aspirin and the anti sickness tablets, then took the dog out across the countryside for an hour and half, fell asleep in the afternoon, did the same again today, tuesday. So far no disasterous side effects.…[Read more]

Hello Badger, thanks for the welcome, cant say that I am pleased to be here, but bowled over by the support. started the myelomw X1 trials on monday morning, so far no disasterous side effects, long may it continue.
thanks again for the welcome, tony

Hello Dia, thanks for the welcome, no doubt we will swop stories over the coming months, good luck and thanks, Tony

Hi Eve
I take my DEX just after breakfast – not that it makes much difference because some nights I'm wide awake and others I crash out. Today I was like a zombie all day just wanted to lie on the sofa with my eyes closed! Now I'm in bed I'm wide awake 🙁 Hopefully as soon as I put my phone down I'll nod off.
Tomorrow is blood test day – with…[Read more]