Hi Tina.

Sorry to read that your PP’s are rising. Hopefully this rise will be very slow and that the Revilimid can hopefully beat them back into submission. You won’t have to have full on treatment till the myeloma starts to effect your health. That could be a long way off.

I’m sure your medics will be working on a plan for you.

Good luck I’ll…[Read more]

Phew it made it at the tenth time of asking xx

Hi Everyone.

Well it’s Dex insomnia time again. I’m still making steady progress. I still tire easy and my back is reminding me constantly that it’s not happy! The good news is I can make it to the pub for a drink and occasionally for a meal too though a lift in my sister in laws car helps and Steph has to go to the bar for me though I do…[Read more]

Ha – I knew it a little post complaining would get through. One more try at the long one then it’s tv time. XX

Hi Jan.

I think it’s a site problem I can’t post anything either though if you’re reading this it must of worked lol. Anyway I’m giving up posting tonight time to watch some tv curtesy of Dex.

Every day is a gift.

Andy xx

Hi Jan.

The sepsis was probably caused by the pneumonia. It’s when the bodies immune system goes into overdrive fighting an infection, I think. It can cause damage to your organs and can be fatal when serious as your organs shutdown.

Fortunately I think I’m making good progress along the road to recovery as I’m able to manage to get out a little…[Read more]

Hi all.

Well I’ll try this again since my original post has disappeared – I blame Dex!

Anyway it was just a little update of how I’m progressing. I’m feeling a lot better now and I’m  almost back to where I was before my extended holiday on the NHS. Physically I’m improving steadily. I had a visit from my Intermediate Care manager today and she…[Read more]

Hi Maureen.

It’s a small world isn’t it. We’ve been to Harrogate and Rockcliffe hall in the past few weeks.

We went to Harrogate with my brother and his wife and met up with our sister and her husband, who live there, to go to a concert in Harrogate.  We saw Squeeze and John Cooper Clark after a lovely meal in a nearby hotel. We went to…[Read more]

Hi Helen

I have never heard of a treatment called ESHAP. Going to have a look around to see if I can find anything about it. Whatever it is I hope it works for you.

Every day is a gift.

Andy xx

Good morning. I assume your partner started on Velcade due to kidney problems because the usual first treatment is CDT. I wouldn’t worry too much about the next treatment options as there is several available. Either standard treatments or newer drugs available through trials. Revilimid hasn’t been completely removed from the CDF and is available…[Read more]

Hi All.

Just a little progress report.

I’ve started my next cycle of Pomalidomide cycle 24 I think and tonight is my Dex night 👀 so I may ramble on a bit or a lot. 😊

Ok progress – I’m feeling a lot better eating and drinking is almost back to normal well myeloma normal. I had a major breakthrough and big boost last weekend in that we went out…[Read more]

Hi All.

Just a little progress report.

I’ve started my next cycle of Pomalidomide cycle 24 I think and tonight is my Dex night 👀 so I may ramble on a bit or a lot. 😊

Ok progress – I’m feeling a lot better eating and drinking is almost back to normal well myeloma normal. I had a major breakthrough and big boost last weekend in that we went out…[Read more]

Hi David.

Sadly I think the chances of them altering their stance are slim and if they do it will be too late for some.

I know quite a few MMers on here, Facebook and Twitter who are running out of treatment options and the removal of Pomalidomide has come just when they were hoping to move on to it! I myself have been on Pomalidomide for nearly…[Read more]

Hi Potterman.

Looks like your post has been overlooked which is unusual.

I personally haven’t been on VCD though I’ve had several others ie. CDT, PAD, DTpace, Revilimid and Pomalidomide which is my latest treatment. Only Revilimid and Pomalidomide have had a meaningful response for me and have managed to keep my myeloma stable. So I’ve been on…[Read more]

Hi Angela.

It is pointless having vaccinations before a SCT as the high dose chemotherapy will wipe out the vaccine. After the SCT you will be given advice as to when it is appropriate to retake the vaccines including all the childhood ones as well.

I’m not sure if your mums age will have a bearing on the speed of revaccination. I think she will…[Read more]

Hi Eve.

Sorry I haven’t replied sooner but I’ve been a little preoccupied the past couple of months.

I’m really glad to read about your travels through England and now France you seem to do all the right things. Since we met on here you have always been a great contributor giving advice and relating your life with Slim including the bad times as…[Read more]

Glad to hear you have a date for admission.  Good luck with the SCT. I did the sucking of ice cubes etc whilst Melphalan was administered. The nurse told me that you have to keep mucus membranes cold to reduce blood flow not just during administration but for 6 hours afterwards.

Best wishes Karen

Jules, you seem to be going through a lot of emotions at the moment, no one in our situation should have to do that!
Why not contact Macmillan, they are very sympathetic and very capable of giving good sound advice, particularly how to access financial support and carer support.In the past we have found them to be very helpful.
Wish you all the…[Read more]

Evening Mojo, I was 68 when I had my SCT. I live in Leicestershire and attend the Royal Infirmary. I was in hospital for three weeks during the SCT, Returning home was very strange and unnerving, guess I was institutionalised! My wife is my carer, and although I am very active and do as much as I can for myself I did find that I was reliant upon…[Read more]