Myeloma Forum | davefletcher | Friends Activity https://forum.myeloma.org.uk/members/davefletcher/activity/friends/ Activity feed for davefletcher's friends. Sat, 11 Apr 2026 23:27:57 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 40e447d0c9e830e7f91a8283ec981d59 andyg and tom are now friends https://forum.myeloma.org.uk/activity/p/54709/ Thu, 08 Nov 2018 13:05:03 +0000 0 5d90e2fa98dda11da04a28f8a48d50c5 AndyG replied to the topic I'm still here! in the forum General https://www.myeloma.org.uk/forums/topic/im-still-here/page/3/#post-136529 Mon, 25 Dec 2017 09:36:33 +0000 Hi Helen and Mavis.

I’m doing okay thanks.

Helen I’m on a Panobinostat regime at the moment. I was on MUK 8, Ixazomid, but as usual with me it didn’t work. I’m finding Panobinostat, Velcade and Dex a bit challenging but it is keeping me stable at the moment. You can only have 16 cycles of it and unusually the cycles are only 3 weeks long. I…[Read more]

]]> 93f6b1609abaaefb1dccf89c0b0d6ef0 Tony Farquharson replied to the topic Due to have stem cell transplant Jan 2018 any advice about getting through it in the forum Treatment https://www.myeloma.org.uk/forums/topic/due-to-have-stem-cell-transplant-jan-2018-any-advice-about-getting-through-it/#post-135808 Sun, 05 Nov 2017 20:24:28 +0000 Hi Rebecca, hope I can keep carrying on for a long time to come!

I find some of the posts both on here and on the Facebook Support page very sad. MM should not have entered EmmaJ’s life at 38 years age, thats not right. The same with many others who post on both sites, they are going through some tough old times.

I know its very scary but there…[Read more]

]]> efcfcf48a5581c25b7c0405396309b45 Tony Farquharson replied to the topic Due to have stem cell transplant Jan 2018 any advice about getting through it in the forum Treatment https://www.myeloma.org.uk/forums/topic/due-to-have-stem-cell-transplant-jan-2018-any-advice-about-getting-through-it/#post-135776 Thu, 02 Nov 2017 19:41:07 +0000 Emma, its not fair that someone so young should have to cope with MM. But age is on your side! You’ve read from Rebecca of her experiences.

I am a lot, lot older than you. In fact I had a second SCT at 72! 18 months down the line I am drug and treatment free, we travel, quite a bit, go to concerts, off to see Queen in London in December, and we…[Read more]

]]> ed3f4304f19523e6673ecba6ceb5f912 Tony Farquharson replied to the topic SCT - Relapse - Revlimid/Dex in the forum Treatment https://www.myeloma.org.uk/forums/topic/sct-relapse-revlimiddex/#post-135382 Mon, 09 Oct 2017 18:36:34 +0100 Peter, thats a very good question, where do the pp levels have to reach before treatment is triggered.

I had my second SCT in March 2016, pps were undetectable for ages, no drugs no treatment, currently they are at 2.6, consultant didn’t seem that bothered, she says that readings below 5 are unreliable! Come back in 3 months time, with a 6 week…[Read more]

]]> 18feab12309b7abae2a37477406d7408 Tony Farquharson replied to the topic Treatment consultation for my mum in the forum Newcomers https://www.myeloma.org.uk/forums/topic/treatment-consultation-for-my-mum/#post-134614 Sun, 13 Aug 2017 18:49:31 +0100 Sarah, maybe this will help.

Why not contact the myeloma nurses at Myeloma UK.

They are very knowledgeable and understanding.

Best of luck

Tony F

]]> bb17e0ec4b37541f261a62608ccca683 AndyG started the topic New drugs article - and me -*READ* in the forum General https://www.myeloma.org.uk/forums/topic/new-drugs-article-and-me-read/ Thu, 13 Jul 2017 15:03:55 +0100 My fame? Is spreading.

Well worth a read it’s our future.

 

http://www.pharmaceutical-journal.com/news-and-analysis/features/multiple-myeloma-an-expensive-revolution/20203042.article

Every day is a gift.

Andy xx

]]> bd16f2b35b648bfd17473c4d056054e4 AndyG started the topic New drugs article - and me -*READ* in the forum General https://www.myeloma.org.uk/forums/topic/new-drugs-article-and-me-read/ Thu, 13 Jul 2017 15:03:55 +0100 My fame? Is spreading.

Well worth a read it’s our future.

 

http://www.pharmaceutical-journal.com/news-and-analysis/features/multiple-myeloma-an-expensive-revolution/20203042.article

]]> 071b88b83ad1661c00070ae994cbd0ed AndyG replied to the topic I'm still here! in the forum General https://www.myeloma.org.uk/forums/topic/im-still-here/page/3/#post-134193 Wed, 12 Jul 2017 06:46:28 +0100 Hi Helen.

Well I survived our trip to Belgium without having any major problems. Though I had to go straight to the day unit before going home for my regular appointment. Privigen, blood tests and drugs pick up. I’m now on cycle 4 of MUK 8 the best I can say it’s doing is keeping me stable.

Sorry to read that Daratumumab is not working for you.…[Read more]

]]> 3e99da9101834486769c3cd465b329ff Tony Farquharson replied to the topic 18 month diagnosis in the forum Newcomers https://www.myeloma.org.uk/forums/topic/18-month-diagnosis/#post-133955 Thu, 22 Jun 2017 15:29:12 +0100 Hiya Steve, just read your post, you call yourself leicslad, does that mean you live in Leicestershire. I run the Leicestershire & Rutland  Myeloma Support Group, my email address is:

tony.farquharson@btinternet.com

If I can be of help please email me.

Regards

Tony F

]]> 06d2a6e4538a80ed83a15b604c49d20b AndyG replied to the topic P P, s v treatment in the forum General https://www.myeloma.org.uk/forums/topic/p-p-s-v-treatment/#post-133662 Fri, 02 Jun 2017 23:44:06 +0100 Hi Susie,

as Jan says there is no hard and fast rules about the level of PPs when to restart or start treatment. PPs are only one factor out of several that are taken into account.

I have read posts were a tiny rise in PPs, as little as 0.2, from 1.5 has caused serious problems and I’ve also read posts of patients having well over a reading of…[Read more]

]]> ffe707e9479c18c174483138f58df506 AndyG replied to the topic I'm still here! in the forum General https://www.myeloma.org.uk/forums/topic/im-still-here/page/2/#post-133661 Fri, 02 Jun 2017 23:32:42 +0100 Hiya Helen

I’m doing ok at moment, just returned from a week in Kefalonia, I’ve just started cycle 3 of MUK 8. Not much movement on the PPs front yet. I’m feeling ok though just got the usual UTI that seems to be a constant companion of mine. Hopefully going to Belgium later in the month.

I’m glad that the Daratumuab is seemingly keeping you…[Read more]

]]> 1684e620a96c8ab4785c3e2d56aa1204 Tony Farquharson replied to the topic P P, s v treatment in the forum General https://www.myeloma.org.uk/forums/topic/p-p-s-v-treatment/#post-133508 Tue, 23 May 2017 19:52:58 +0100 Hi Susie, I had 26 months of no treatment, no drugs after my first SCT. My pp’s never really dropped below 2, when I relapsed they climbed very slowly, got to about 8 before treatment was restarted. Pp’s were reduced to around 2 when I had a second SCT.

Hope the above helps.

Tony F

 

]]> affcd69541b4ec55966d9da33e3d50b1 Tony Farquharson replied to the topic New to the Forum in the forum Newcomers https://www.myeloma.org.uk/forums/topic/new-to-the-forum-2/#post-133317 Mon, 08 May 2017 19:43:07 +0100 Evening Teresa, did I understand from your initial post that Daves brother died of myeloma? Interesting, I didnt think that this disease ran in families. Sounds to me that your GP was very alert and you were given an early diagnosis. Daves initial treatment seems to have worked well if you are being prepared for a stem cell harvest. Hope that all…[Read more]

]]> 7778c6a5eb6fa66035cf3f6de534bbcf Tony Farquharson replied to the topic fruit and veg after stem cell transplant in the forum General https://www.myeloma.org.uk/forums/topic/fruit-and-veg-after-stem-cell-transplant/#post-133198 Thu, 27 Apr 2017 19:35:13 +0100 I had 26 months remission from my first SCT so when I relapsed I was offered a second SCT. After treatment with my pp,s down to 2 I had the second SCT. Managed it quite well and returned home after 14 days, took a while to recover but am now a year down the line, my pp,s are undetectable, officially in remission, no drugs, no treatment, no…[Read more]

]]> e98e30531c8ce201b6b0822a4ed839cd AndyG replied to the topic The end of my Pomalidomide journey. in the forum Treatment https://www.myeloma.org.uk/forums/topic/the-end-of-my-pomalidomide-journey/#post-133114 Fri, 21 Apr 2017 04:10:35 +0100 Hi Stephen.

Are you on Pomalidomide or the MUK 8 trial? On Pomalidomide my PPs came down slowly, I think, over the first few cycles. To about 8. Then gradually rose to the mid teens where they hung about for about eighteen months then began to rise again.

When I as on Revlimid nothing had for the first few cycles then they added Cyclophosphamide…[Read more]

]]> 2fabfb7f5b39faeda27f5dbf9de4a2b5 Tony Farquharson replied to the topic New to this - Here's my Dad's story so far in the forum Newcomers https://www.myeloma.org.uk/forums/topic/new-to-this-heres-my-dads-story-so-far/#post-132797 Wed, 29 Mar 2017 18:40:23 +0100 Jimbow…….you must be very proud of your dad, he is certainly a fighter and he deserves a long remission.

wish him the best of luck, and please keep us up to date.

regards

Tony F

 

]]> 03448a7adb1dfcde315e1790e4ab9ca8 Tony Farquharson replied to the topic I'm still here! in the forum General https://www.myeloma.org.uk/forums/topic/im-still-here/page/2/#post-132683 Fri, 24 Mar 2017 16:10:17 +0000 Hope all three of you handle your next round of drugs and that they remain effective. I don’t often comment these days, there are times when I need to escape from Facebook Support and discussion forums and try to break away from the word myeloma. Easier said than done.

Pre myeloma days we lived in Keswick, wonderful times, wonderful area, my…[Read more]

]]> 037a46067e030a006988ab90de34d9e2 AndyG started the topic The end of my Pomalidomide journey. in the forum Treatment https://www.myeloma.org.uk/forums/topic/the-end-of-my-pomalidomide-journey/ Sat, 18 Mar 2017 08:09:24 +0000 Hi All,

well after 40 cycles of Pomalidomide I’ve had to say goodbye to Pomalidomide. It’s been a good journey with minimal side effects though there have been a couple of serious bumps along the way. I’m due to start a trial early next month after a little holiday in the lakes. Fingers crossed the trial works and I get a bit more time to have a…[Read more]

]]> 92dcb8417d0e3e858626f8e76849e3b9 AndyG replied to the topic I'm still here! in the forum General https://www.myeloma.org.uk/forums/topic/im-still-here/#post-132343 Sat, 18 Mar 2017 07:57:06 +0000 Hi Helen, Maureen,

Glad to hear  from you. I too are at the end of my Pomalidomide journey. I managed 40 cycles before it was stopped. Bendamustine or a trial was mentioned as my only options. Two trials were mentioned MUK5 and MUK8 unfortunately MUK5 had reached its target number of trialists, I think that was the one you’re on Helen, but I…[Read more]

]]> b66c507c5902b71e28dd6ace3acd01a8 Tony Farquharson replied to the topic Hi I have Multiple Myeloma and am so scared in the forum Newcomers https://www.myeloma.org.uk/forums/topic/hi-i-have-multiple-myeloma-and-am-so-scared/#post-131842 Fri, 10 Feb 2017 15:45:40 +0000 Hi Simon, thanks for your message, great job you have! If ever you get to Leicester look me up.

After my first stem cell transplant I was at a really low point, the local cancer centre offered individual relaxation classes, the woman also practiced reiki, after those sessions I was so relaxed about things, amazing. We have just returned from…[Read more]

]]> 0dd3f558daa451042bf1d59c1c8e586b Tony Farquharson replied to the topic Hi I have Multiple Myeloma and am so scared in the forum Newcomers https://www.myeloma.org.uk/forums/topic/hi-i-have-multiple-myeloma-and-am-so-scared/#post-131837 Thu, 09 Feb 2017 20:55:57 +0000 Hi Simon, I guess that I am a lot older than you. I was scared s******s when I was told that I had myeloma, I had never heard of it before and immediately went home and googled it, that made it even worse, I thought that I would not last the year. But I did, I had stem cell transplant number 1, had 26 months with no drugs and no treatment except…[Read more]

]]> a0500cf8dcf48a801644774f253253c8 Tony Farquharson replied to the topic 2nd SCT in the forum Treatment https://www.myeloma.org.uk/forums/topic/2nd-sct-3/#post-131779 Sun, 05 Feb 2017 18:21:03 +0000 Evening, I managed 26 months from my first SCT. Like your husband I managed the first quite well, though was in for 21 days. I had the second in March 2016, was in solitary for 14 days then off home. I think I managed the second one better than the first, maybe I was aware of what was happening and able to deal with the treatment better, though it…[Read more]

]]> 16073611efc0c8d7e2449119b157b22e KP replied to the topic Osteonecrosis in the forum Related conditions https://www.myeloma.org.uk/forums/topic/osteonecrosis/#post-131575 Tue, 17 Jan 2017 19:14:26 +0000 Hi Michael,

I have heard of necrosis of the jaw as a complication of Zometa. I do hope this isn’t the case for you.

I have been in cr since August 2015 following a SCT and have Zometa every month. I wondered what symptoms you experienced.

I know that Myeloma doesn’t like Zometa but having been on it for two years I wonder about whether to carry…[Read more]

]]> fe13c05f3318147c6d2f9c6d4275a597 Tony Farquharson replied to the topic Holiday insurance in the forum General https://www.myeloma.org.uk/forums/topic/holiday-insurance-2/#post-131496 Thu, 12 Jan 2017 18:23:01 +0000 Evening, Myeloma UK produce a leaflet listing many insurance companies that offer travel insurance, I guess you can access through this site.

regards Tony F

 

]]> ab22b065b7d97eeb098b5953372abaed AndyG replied to the topic An improvement to posts stats? in the forum Off topic https://www.myeloma.org.uk/forums/topic/an-improvement-to-posts-stats/#post-131419 Sat, 31 Dec 2016 13:32:09 +0000 Hi all.

Unfortunately when the forum was changed a few years ago it was virtually unusable for quite a few members. Messages wouldn’t post the kept disappearing and there was logging in problems too. These problems took time to resolve and by the time they were resolved an awful lot of members had move on to the Facebook group.

I agree with…[Read more]

]]> 49fe88dbe6b1b2d73afb22a56dcaf95e AndyG replied to the topic RE: Newly Diagnosed in the forum Newcomers https://www.myeloma.org.uk/forums/topic/re-newly-diagnosed/#post-131418 Sat, 31 Dec 2016 13:16:20 +0000 Hi Paul

Welcome to the Myeloma club. I’m sorry you are joining us as myeloma is such a horrible disease. I hope the biopsy went ok and wasn’t too painful. I’m due one in the New Year.

The first thing you’ll notice is that no two patients have the same journey treatment and outcomes are very much an individual thing. There’s nothing much I can…[Read more]

]]> 28c0164c61c7d1051854e5cab31873d8 AndyG started the topic An improvement to posts stats? in the forum Off topic https://www.myeloma.org.uk/forums/topic/an-improvement-to-posts-stats/ Wed, 28 Dec 2016 01:59:11 +0000 Hi Web Team.

Firstly I must tell you it’s my Dex night so I may ramble on a bit.

In my chemo muddled brain I seem to remember talk of adding to posts how many times that particular post had been viewed. I may of imagined that but I personally would think it would be a good idea as it would help posters realise that what they write is not being…[Read more]

]]> 12b91c43f668418e63aff801bb808c4d AndyG replied to the topic Muscle spasm in the forum Newcomers https://www.myeloma.org.uk/forums/topic/muscle-spasm/#post-131395 Wed, 28 Dec 2016 01:40:27 +0000 Hi Scooby.

I was prescribed tramadol by my GP for my spasms.

Every day is a gift.

Andy

]]> b75f04d8bd1a50c51bdb4cebcf1a986a AndyG replied to the topic A little update - seems a lot can happen in a short while. in the forum Treatment https://www.myeloma.org.uk/forums/topic/a-little-update-seems-a-lot-can-happen-in-a-short-while/#post-131227 Tue, 13 Dec 2016 23:38:01 +0000 Hi Finn,

I don’t know what is available to me till I see my consultant on Thursday. The discussion with my specialist nurse was just a bit of speculation. I’ve only had a response from two drugs to date, Revlimid and Pomalidomide, nothing else has worked for me.

Hi Jan,

My scalp is healing nicely thanks. Though my thigh where they took the…[Read more]

]]> 9227ac0deda453d65bbca9f793b3efa4 AndyG started the topic My 15 minutes of fame. in the forum General https://www.myeloma.org.uk/forums/topic/my-15-minutes-of-fame/ Wed, 07 Dec 2016 10:10:52 +0000 As Andy Warhol said we’ll all be famous for 15 minutes 😉 I guess this was mine.

https://www.google.co.uk/amp/www.mirror.co.uk/news/uk-news/marathon-runner-who-discovered-incurable-9362608.amp?client=safari

Every day is a gift.

Andy xx

 

 

 

]]> d7575d9d8e684b322765547f4678c135 AndyG replied to the topic A little update - seems a lot can happen in a short while. in the forum Treatment https://www.myeloma.org.uk/forums/topic/a-little-update-seems-a-lot-can-happen-in-a-short-while/#post-131190 Tue, 06 Dec 2016 23:06:46 +0000 Thanks Rebecca.

What a lovely post it’s given me a real boost thank you xx.

Well to my latest news. My PPs have continued to rise and all discussions are now about what happens next. My specialist nurse and I had a discussion about where I maybe heading when I picked my latest round of drugs up. It seems like there may be a few options open to…[Read more]

]]> e80d0e15cf6970f7ecfee3614743fc85 AndyG replied to the topic A little update - seems a lot can happen in a short while. in the forum Treatment https://www.myeloma.org.uk/forums/topic/a-little-update-seems-a-lot-can-happen-in-a-short-while/#post-131190 Tue, 06 Dec 2016 23:06:46 +0000 Thanks Rebecca.

What a lovely post it’s given me a real boost thank you xx.

Well to my latest news. My PPs have continued to rise and all discussions are now about what happens next. My specialist nurse and I had a discussion about where I maybe heading when I picked my latest round of drugs up. It seems like there may be a few options open to…[Read more]

]]> 04b80c769078467e985fdadb22d1602b AndyG replied to the topic Hospital Parking in the forum General https://www.myeloma.org.uk/forums/topic/hospital-parking/#post-131189 Tue, 06 Dec 2016 22:43:12 +0000 Hi Susie.

The hospital were I get my myeloma treatment charge £3:00 for 12hours after a 20 min free period. The other hospital I’m frequenting lately is free for blue badge holders which I have.

I get my bloods done at my GPs practice now to save a trip to the hospital and £3:00 lol so now I’m only at the hospital once every 28days. Unless I h…[Read more]

]]> 5d634cd948bd8c5ba089b0c2b99bdbae AndyG replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects https://www.myeloma.org.uk/forums/topic/peripheral-neuropathy-and-the-dvla/#post-130548 Wed, 16 Nov 2016 15:03:54 +0000 Hi Jeff.

I didn’t know until recently that it was a notifiable condition. Fortunately when I was on Velcade, two cycles, I didn’t get it bad just a little loss of sensation in my fingers and toes.

Every day is a gift.

Andy xx

]]> b8898db4d5340c76ba43e44c3bbe9e11 AndyG replied to the topic A little update - seems a lot can happen in a short while. in the forum Treatment https://www.myeloma.org.uk/forums/topic/a-little-update-seems-a-lot-can-happen-in-a-short-while/#post-130546 Wed, 16 Nov 2016 14:58:04 +0000 Hi David.

Can’t think of myself as a hero! David. I’m just doing whatever it takes to get by. But I thank you for the sentiment it gave me boost.

Every day is a gift.

Andy

 

]]> 66014f8d7d03e7b495f1e44e4bb226a6 AndyG replied to the topic Repreive in the forum General https://www.myeloma.org.uk/forums/topic/repreive/#post-130545 Wed, 16 Nov 2016 14:53:52 +0000 Hi Susie

Yes I’m still on Pomalidomide and Dex currently on cycle 37 ..

If you want to find out what I’ve been up to lately I’ve posted in the Treatment group .

Every day is a gift.

Andy xx

]]> 7d58264665e7886c384adbb8ed5f657b AndyG replied to the topic Dexamethasone and mood in the forum Side-effects https://www.myeloma.org.uk/forums/topic/dexamethasone-and-mood/#post-130477 Wed, 16 Nov 2016 01:58:43 +0000 Hi Mark.

Dex is an evil drug and affects us all a little differently the ups, downs and sleepless nights are well documented. I take 40 mg every Tuesday morning. I’ve been taking Dex for over five years now and still get caught out being a bit short fused, cold callers be aware, on my down days even though I tell myself it’s the Dex!

Every day…[Read more]

]]> 99616bc3568dd00598b4feed633d44c7 AndyG replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects https://www.myeloma.org.uk/forums/topic/peripheral-neuropathy-and-the-dvla/#post-130475 Wed, 16 Nov 2016 01:40:12 +0000 `Hi.

Just copied this from http://www.gov.uk

 

Peripheral neuropathy and driving

You must tell DVLA if you have peripheral neuropathy.

You can be fined up to £1,000 if you don’t tell DVLA about a medical condition that affects your driving. You may be prosecuted if you’re involved in an accident as a result.

Car or motorcycle licence

Fill in form…[Read more]

]]> 08c068958f686d3d818b926afedfea88 AndyG replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects https://www.myeloma.org.uk/forums/topic/peripheral-neuropathy-and-the-dvla/#post-130475 Wed, 16 Nov 2016 01:40:12 +0000 Hi.

Just copied this from http://www.gov.uk

 

<header class=”page-header” style=”margin: 0px; padding: 0px; vertical-align: baseline;”>
<div style=”margin: 30px 0px; padding: 0px; vertical-align: baseline;”>
<h1 style=”margin: 0px; padding: 7px 0px 13px; vertical-align: baseline; font-family: nta, Arial, sans-serif; font-size: 48px; line-height:…[Read more]

]]> 827fb1f86f044cf3e4c63f1976db7852 AndyG replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects https://www.myeloma.org.uk/forums/topic/peripheral-neuropathy-and-the-dvla/#post-130474 Wed, 16 Nov 2016 01:30:50 +0000 Hi.

As far as I know if you have peripheral neuropathy you have to inform the DVLA it doesn’t automatically bar you from driving though I think not informing them could have consequences regarding insurance etc. It’s my Dex night so I’m going to do a bit of research and will hopefully get back with what I can find out.

Every day is a gift.

Andy

]]> 5bc59c9cbd58fd354919d8b80d4be025 AndyG started the topic A little update - seems a lot can happen in a short while. in the forum Treatment https://www.myeloma.org.uk/forums/topic/a-little-update-seems-a-lot-can-happen-in-a-short-while/ Wed, 16 Nov 2016 01:20:29 +0000 Hi all.

It’s my Dex night and it crossed my mind I’ve been neglecting the forums. So I thought I’d fill you all in on what’s been happening since we returned from Greece.

First of all I had to have my head checked out, scalp not brain, and it was decided I needed a biopsy. They were pretty certain what it was and preempted the results by…[Read more]

]]> 3d2556de79a0792b67d13ff3ce6888db AndyG started the topic A little update - seems a lot can happen in a short while. in the forum Treatment https://www.myeloma.org.uk/forums/topic/a-little-update-seems-a-lot-can-happen-in-a-short-while/ Wed, 16 Nov 2016 01:20:29 +0000 Hi all.

It’s my Dex night and it crossed my mind I’ve been neglecting the forums. So I thought I’d fill you all in on what’s been happening since we returned from Greece.

First of all I had to have my head checked out, scalp not brain, and it was decided I needed a biopsy. They were pretty certain what it was and preempted the results by…[Read more]

]]> 6d402ebc3d09a14e9e67f7a7ad09d02a AndyG replied to the topic Starting pomalidomide in the forum Treatment https://www.myeloma.org.uk/forums/topic/starting-pomalidomide/#post-130471 Wed, 16 Nov 2016 00:08:01 +0000 Hi Maureen.

I’ve not had any serious side effects with Pomalidomide and Dex and I’m currently in the middle of cycle 37.

Hopefully it gets to work really well for Ian and he achieves remission.

Every day is a gift

Andy xx

]]> 97913ae3de8a532d2f21bc75ddda6549 AndyG replied to the topic Repreive in the forum General https://www.myeloma.org.uk/forums/topic/repreive/#post-130470 Tue, 15 Nov 2016 23:56:06 +0000 Hi Susie

Generally treatment isn’t restarted until other indicators show that your myeloma is affecting you. If all other indicators don’t show any problems i.e. Your bloods don’t go off or you don’t experience bone pain/fractures etc they will hold off on treatment.

Some people can live quite happily with high PPs whereas others get into…[Read more]

]]> 5951d1ef0685759f21dd57e1bb9255eb AndyG replied to the topic I'm still here! in the forum General https://www.myeloma.org.uk/forums/topic/im-still-here/#post-130469 Tue, 15 Nov 2016 23:45:43 +0000 Hi Helen

It’s good to hear from you again. Glad you managed your trips to Italy. Sorry to hear about your troubles with sepsis I also had a recent week long stay in hospital due to sepsis and had all sorts of antibiotics pumped into me which obviously did the job.

Can’t remember if I told you about my scalp problems at the InfoDay, bloody chemo…[Read more]

]]> d68591dcccddb1bbddf9119066bf4497 Tony Farquharson replied to the topic IMMUNISATIONS post SCT - necessary? in the forum General https://www.myeloma.org.uk/forums/topic/immunisations-post-sct-necessary/#post-130459 Mon, 14 Nov 2016 21:00:07 +0000 Evening Sonia, no I don’t understand why two consultants should have differing opinions, it does annoy me, particularly when myeloma uk print literature on the subject.

What part of the country do you live in and which hospital does your husband attend? I live in Leicestershire and attend the Leic Royal Infirmary, I find them superb, under…[Read more]

]]> 4e78859787b785c920938130a7ca5550 Tony Farquharson replied to the topic IMMUNISATIONS post SCT - necessary? in the forum General https://www.myeloma.org.uk/forums/topic/immunisations-post-sct-necessary/#post-130453 Mon, 14 Nov 2016 19:47:19 +0000 Hiya Sonia, I had my second SCT in March this year. I am 72 years age. I had my first SCT 4 years ago, having had 6 months of treatment on the myeloma XI trial. After each SCT  my consultant gave me a pre printed form listing all of the inoculations that I was to have. I have just had the second round, that is 8 months next round due at 12…[Read more]

]]> 2a92cd78c569b3f34679647eec2102f5 Tony Farquharson replied to the topic Just Diagnosed in the forum Newcomers https://www.myeloma.org.uk/forums/topic/just-diagnosed-3/#post-129836 Mon, 03 Oct 2016 22:00:56 +0100 Hiya Taff, sorry to have to welcome you to this “happy band” I think that the bone marrow biopsy is the last test needed to confirm yes or no to myeloma. I attend the Leicester Royal Infirmary, when having a biopsy the patient is given gas and air, so you are as high as a kite and not aware of anything going on, you can but ask!

I like your…[Read more]

]]> eff8d78da5a1985b4b60dc7418feb458 AndyG replied to the topic Started cycle 34 of Pom & Dex in the forum Treatment https://www.myeloma.org.uk/forums/topic/started-cycle-34-of-pom-dex/#post-129645 Tue, 20 Sep 2016 23:45:25 +0100 Hi Stanley.

Hope your trip to Gran Canaria goes well. We’re back home now, got home Sunday night, getting back into the old routine of hospital appointments etc.

Got to say I do find getting away really is therapeutic and gives you chance to bury thoughts of MM for a while.

Hi Annlynn.

A weather update. A couple of days before we got to…[Read more]

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