[davemParticipant]

Good morning Annette
Sorry about delay in replying – don’t have computer on every day. Yes, I reacted to the initial dosage of Revlimid (balance problems) but the dose was reduced to 15mg and this seems ok. The spots were certainly nothing as bad as described by Beverly, and I have suggested to my consultant that the spots are a very minor problem compared to stopping the treatment. I have also been very fortunate in that my paraprotein level seems to have levelled out at about 4 from a high of 60 2 1/2 years ago.
Continued good luck and best wishes
Dave

[davemParticipant]

Hi
Saw consultant today but again no conclusion. Couple of new spots on arm just so she could see!!!
Restarting Revlimid on 27th so that could prove conclusive.
Best regards
Dave

[davemParticipant]

‘Morning Finn
Thanks for your reply. I also thought of bed bugs! No more spots so Revlimid is top suspect! I’ll see what my consultant says and will post the response.
Best regards
Dave

[davemParticipant]

Hello everybody
My first posting on the site, so please forgive any mistakes.
I was diagnosed just over 2 years ago, and treatment (initially CDT now Revlimid and dexamethasone) has worked quite well, apart from having dosage halved as I suffered balance problems.
However, in the summer I had what I thought were a few insect bites, usually overnight. My GP was unsure and my Consultant also drew no conclusions. On Christmas Eve I noticed a large number of the spots on my chest and stomach. Managed to see a doctor at my surgery who recommended stopping the Revlimid. No more spots since but not happy about interrupting the treatment. (I have previously had colorectal cancer and complications from this led to an earlier myeloma treatment interruption).
I see my Consultant next week but am interested in whether this is a common problem and what palliatives have been prescribed.
Best wishes
Dave

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