[daveoParticipant]

Thanks Carol
It helps to hear from others and to know that they are going through or have gone through the same sort of situations
Dave

[daveoParticipant]

Alan
I had to have 2 tries and after the 2nd I had enough to store away for a second SCT if needed.
Hope you get enough next time
Dave

[daveoParticipant]

Eve
I am hoping it is a blip but I will know in 6 weeks. I did have a sore throat at the time of the blood test. You never know.
Thanks for your reply
Dave

[daveoParticipant]

Mavis
Thanks for your reply.
As I have been well for 5 years following a SCT this is now new to me and I am really going to do what the specialist tells me. It is only now that I have been reading fellow sufferers logs and finding out what they have done and how they have coped. A lot of these have been very helpful and are helping me deal with the situation.
I am having a second blood test at the end of March to see what my pp level is. Before being diagnosed with MM I had MGUS for 12 years when my PP level stayed very low. I am hoping that it will stay low now for quite a while. The specialist told me he would not do anything if it stayed under 30.
I am just considering all my options incase the worst happens. I want to continue to try and live as normal a life as possible and whatever treatment does this for me is the way I will go. A SCT took 6 months for me to get over but it worked well and I would do it again if I had to.

I do not know how the other treatments work. Do they reduce the pp level?
Does it go back to zero so that you are in total remission? Or does it just control it at the level you are?
I know these are all questions I must ask the specialist when I see him next.
If you have any comments it will be great to hear from you or anybody else.
Thanks
Dave

[daveoParticipant]

Gill
Hope you do not mind me emailing you but I saw that your husband had 2 SCT's. I had one 5 years ago and I have now been told my pp level has come back (6) and wondered if I could have another one. I was in hospital for 3 weeks and it was about 3-4 months before I was back riding my bike and golfing.
How did your husband cope and how old was he at the time of the 2nd SCT? I am just 65 and my specialist seemed to imply that I was on the limit. I am still very active (golfing twice a week etc) and feel well.
I am worried that it will not go as well the 2nd time and I could be along time recovering. My specialist seems to say that the new treatments are as good without the risk and the 6 months out of action.
Hope you can find time to reply as any opinion will help greatly.
Dave

[daveoParticipant]

Thankyou Tom and David for your replies.
Nice to speak to people in the same situation.
Will bring you up to date when I have more info on my blood results.

Tom I notice you try to speak to most newcomers. Very nice of you to do so.
I will try to read more emails and comment if I can help
Dave

[daveoParticipant]

Valerie
I am a newcomer to this site. I have had MM for 5yrs now and after having VAD and a SCT in 2007 I have been in remission until now. On my last visit to the specialist I was told that my paraprotien level had re-appeared and was at 6. This was a big shock and I am now wondering what will happen next.
I was told that I would have follow up blood tests to see if the pp level was increasing and nothing would be done until it became above 30. It was reassuring to see that you were treated in 2001 and are still going strong.
I have been very positive during the past 5 years and returned to work (now retired) and carried on playing golf. I am in no pain and as far as I know I have not had any bone damage.
If any body else is in a similar situation it would be nice to hear from them.
I hope you continue to keep as well as posible and it would be nice to get your thoughts.
Dave

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