Hello Mervyn

Good luck with your stem cell transplant.

I am now 15 months on from mine which I had in Liverpool and am doing well. I took in a radio with headphones,books and crosswords which kept me busy. You will find that the nursing and support staff are in every couple of hours day and night to keep an eye on things so you won’t get…[Read more]

Hello Emma
It is difficult enough having to deal with myeloma without having to worry about work as well. My experience ( again from a civil service background and as both a manager and employee) has been quite different.Part time working, working from home, flexible hours – nothing has been too much trouble for my employer who has been extremely…[Read more]

Hello Jan and All

My Myeloma journey and experiences which started two ears ago have been very similar to those reports in the posts above. Perhaps it helps us to know that we are not alone in facing these challenges.

When ones mobility has been severely reduced for several months, unable to get out bed, get dressed etc then any gains are…[Read more]

Hi

Sorry to hear that your dad had joined the Myeloma club.

His problems sound similar to my experience,but they do say everyone is different. My Myeloma when initially diagnosed was at a pp of 54, this caused spinal lesions and compression at the T7 vertebra causing a loss of about 4 inches in my height. I was in alot of pain ( agony ) for…[Read more]

Hi Leanne

Sorry to hear that your mum is having a rough time at the moment with the treatment. They do say that everyone is different and if in any doubt to consult the experts.

I had a lot of fluid retention whilst on the CTD regime, swollen ankles,legs, tummy and a puffy face. Coincidentally I had my eyesight tested for new reading glasses…[Read more]

Hi Val

This is my first post on the Discussion Forum since my diagnosis of Myeloma in March 2013.

I was pretty much wheelchair-bound and immobile for much of 2013 due to a cytoplasma in the T7/T8 spinal vertebra. Like your husband, I had radiotheraphy (at Clatterbridge) which helped reduced the pain and then on to CTD. As you may know there…[Read more]