Hi Jan

In my humble opinion you should not be worried. My Paraproteins have gone from 15-45 in the last 3 years but my consultant at my last 3 reviews is saying “you are cured and all Myeloma is gone”.

As I understand it, it is a ratio between your Paraproteins and kappa-light-chains which matter. If I have that wrong hopefully someone will…[Read more]

Hi Jan

In my humble opinion you should not be worried. My Paraproteins have gone from 15-45 in the last 3 years but my consultant at my last 3 reviews is saying “you are cured and all Myeloma is gone”.

As I understand it, it is a ratio between your Paraproteins and kappa-light-chains which matter. “<span style=”color: #222222; font-family:…[Read more]

Hi Mervyn

I am 3.5 years post SCT and am doing well with Paraproteins at 45 (was over 4000 pre SCT). While I was there have my stem cells harvested I spoke to a man who said it was 8 years since his 1st SCT.

Not sure it answers your question but my limited experience.

I am very positive about my cancel. Gave me the chance to retire early which…[Read more]

My thoughs are with you at this troubled time. Wish I could help in some small way but can only wish you well.

Regards David

Wish You well Andy

Regards Davidbr

Hi Brian

I had my SCT in Dec 2013 after being diagnosed in May 2013 and I have never looked back. It took 9 months to a year to recover but recover I have. On my last vist to my consultant in June this year he atually said I was cured. He was quotting an America medical paper which was saying they had cases of Myloma patients who had been in…[Read more]

Hi Jan

This is what happened to me but it may not be medically correct but hope it helps. Do not be afraid it is all doable and at most it is unpleasant. You will be given all the help you need as all the SCT staff are the best in the world.

0. They install a Hickman line which is a tube in to a main artery by your neck.
1. You are given a high…[Read more]

Hi Jan

This is what happened to me but it may not be medically correct but hope it helps. Do not be afraid it is all doable and at most it is unpleasant. You will be given all the help you need as all the SCT staff are the best in the world.

0. They install a Hick-man line which is a tube in to a main artery by your neck.
1. You are given a…[Read more]

Hi Andy
Just got back from Kefalonia on Sunday went to the 9Muses Hotel Skala (Recommend it a lovely hotel). Had a lovely holiday with perfect temperatures and lots of sun. The Spring flowers on Kefalonia were amazing and so pretty. We have been 6 times now and I keep saying can we move there but my wife won’t leave our 2 boys and family’s.

Hope…[Read more]

Hi Andy
Just got back from Kefalonia on Sunday when to the 9Muses Hotel Skala (Recommend it a lovely hotel). Had a lovely holiday with perfect temperatures and lots of sun. The Spring flowers on Kefalonia were amazing and so pretty. We have been 6 times now and I keep saying can we move there but my wife won’t leave our 2 boys and family’s.

Hope…[Read more]

Hi Compass007

I just wanted to wish you well and I am sure all the thoughts of the Myeloma UK subscribers are with you.

Some days I actually forget that I have Myeloma especially when I am with my Grandchildren. My wife does not understand why I don’t feel sorry for myself. But being able to do what I want and not what someone else wants is the…[Read more]

Hi compass007

Hope all goes well for you and wish you well for the future. I am 2 years post SCT and doing well. Only have a 6 monthly check-up at hospital now. Just have some aches and pains, don’t know if that is my age (61) or Myeloma. Still not working and enjoying my early retirement, but have to have some good come out of this cancer.…[Read more]

Dino

Hope all is going well have you got a sore throat yet?

You surprise me saying you have been outside. I spent 18 days on the ward. They did move me around to 3 different rooms as midway I was infectious. But I was not allowed out of my room apart from that and couldn’t even see the sky.

I was only allowed well adult visitors and they had…[Read more]

Hi Dino and Andrew

Let us know how you are doing. I am sure I am not the only one interested in your progress. Also my thoughts are very much with you as this discussion has reminded me what you are going through.

Best Wishes David

Hi Dino

When I was in having my stem cell harvest I spoke to a nice man who was up for his 2nd SCT after 7 years. So I am hoping for a few more years without treatment. I was 58 (2013) when diagnosed and nearly 59 when I had my SCT. My consultant has always said I am in partial remission as my counts have never been zero.

My counts must have…[Read more]

Hi Graeme

Hope all goes well for you. It is not pleasant but very doable. I am 2 years post SCT and getting stronger everyday.

Best Regards David

Hi Susie

I found your post very interesting. I am on my 18th Zometa and have not noticed many problems before. But now thinking about it the last 2 have been terrible.

After my previous infusion I had a very sharp pain in my Right hip if turning quickly or sneezing. It made traveling in a car very painful when the car went over speed bumps or…[Read more]

Karen

That is brilliant thanks for letting me know and the more detail the bettr. I find it helps to discuss things with other MM suffers and you have help me thanks.

Just wondering why surgeon said you did’nt need the 2nd Op.

David

Karen

Sorry to be a pain but just breifly how did your Vertbroplasty go. What did they do was it just one day in hospital? If you are busy no problem and thanks anyway.

David