Myeloma Forum | DawnSarsons | Activity https://forum.myeloma.org.uk/members/dawn/activity/ Activity feed for DawnSarsons. Tue, 21 Apr 2026 15:13:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 118415bc902bccf3e64c435beeb4ade6 DawnSarsons replied to the topic Just Diagnosed in the forum Newcomers https://www.myeloma.org.uk/forums/topic/just-diagnosed-5/#post-136553 Tue, 02 Jan 2018 17:17:57 +0000 Hi there,
So sorry to hear about your son. On the positive side UCLH are one of the top hospitals specialising in Myeloma/ M.M in the uk and have 1st class specialists in this field so please take this on board and know that your son is in good hands.

I am up at UCH tomorrow for an update on my own treatment plan prior to a hopeful SCT.
Try to…[Read more]

]]> aae3dd77695bfcf5b04922417ceaee67 dawn and janw are now friends https://forum.myeloma.org.uk/activity/p/50703/ Tue, 08 Aug 2017 12:54:48 +0100 0 17a5a36ce282feef71cb3a7778f252df DawnSarsons replied to the topic Fast relapse in the forum Newcomers https://www.myeloma.org.uk/forums/topic/fast-relapse/#post-134141 Wed, 05 Jul 2017 07:51:55 +0100 HI Kath
I am so sorry to hear this news. Can I ask what your farther in laws paraprotein had been reduced down to prior to the SCT and his age group?

What treatment plan was he on prior to his SCT was this thalidomide?

I send you my very warmest wishes and of course a speedy recovery for your father in law.

Kindest regards

]]> fd14bd0bad3050d49b6d9ee033aab4cd DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/page/2/#post-133475 Mon, 22 May 2017 07:45:25 +0100 Hi Teresa
Yes it is Cyclophosphamide. I start the new regime tomorrow so fingers x that I can tolerate this more than I couls the thalidomide which I feel so disappointed by as I really wanted to try the best possible option to try and bring my paraprotein levels down.

Hope all is well with you both
DX

]]> 75b45be2107482830693a33f91afd79a DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/page/2/#post-133472 Sun, 21 May 2017 19:52:21 +0100 Ohh Andy that does sound a bit high!!
I thought mine was bad at 49 …. All the very best for Thursday and please keep me posted.

Dawn

]]> ad8c964018aadf15c023c638b37bc6f7 DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/page/2/#post-133457 Fri, 19 May 2017 08:08:41 +0100 Hi Andy
Having a positive attitude will help you so much and you will experience up’s and downs with treatment.
I have decided to change my treatment plan to VCD purely because I have suffered with the neuropathy quite badly, however the vtd has got a better response rate some I am told and I’m sure you will be fine.
Do you mind if I ask what your…[Read more]

]]> 187933c9793acc7a04beca8888c9bd79 DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/page/2/#post-133402 Tue, 16 May 2017 06:55:11 +0100 Thanks Teresa that is really helpful and I will speak with my consultant in the morning.
Sending my very best wishes to you both
Dx

]]> 8fbdb2a683a68d92bebee61aea19bda7 DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/page/2/#post-133401 Tue, 16 May 2017 06:49:16 +0100 Thanks Jan, I will speak with them on wed. All the best to you and lovely to speak with you
Dx

]]> e69d781b7979cc4d6108128bca7062ed DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/page/2/#post-133396 Mon, 15 May 2017 18:58:17 +0100 Hi Gary
Thankyou so much for your reply and I am so pleased that sue is doing so well.
I do seem to be having quite a few problems at the moment with my treatment and I just hope I start to see an improvement in my next cycle.
I seem to have this Mist like a brain fog over my eyes and I have a very red rash like a sun burn aswell as neuropathy.…[Read more]

]]> 034917d554213efec907a32758b99fb4 DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133302 Sun, 07 May 2017 04:11:24 +0100 Morning Jan

Thank you so much for your response and I will do as you have suggested and try and put things in place prior to treatment. I think we all have good days and bad but at the moment it all feels a bit rubbish.
Have a nice Sunday and please keep in touch.
Love Dx

]]> d9413adcb35d82e15db8454fe628489f DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133300 Sat, 06 May 2017 16:15:54 +0100 Hi Jan
Would you mind if ask you about your hair ..did you lose any on your VCD treatment?.
When you had your stem cell transplant we’re you offered a cold cap or is not something that would work with the high doses of chemo.
I am so upset to lose my hair and I know it’s only hair and will eventually grow back but it just makes me feel so frighten…[Read more]

]]> 2b808a26a0fc95bb052bfdfd331eb753 DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133297 Sat, 06 May 2017 10:46:46 +0100 Hi there
I started my vtd last Tuesday with my 2nd injection administered yesterday and I have had extreme pain all through my back both times lasting the whole night and the following day. I can’t sleep at all awake all night probably because of the Dex even though that is taken 1st thing in the morning.
Anyone else having the same problems? I…[Read more]

]]> 2f575b176fabad37e1614623a1440079 DawnSarsons replied to the topic Seven Weeks Later in the forum Newcomers https://www.myeloma.org.uk/forums/topic/seven-weeks-later/#post-133263 Wed, 03 May 2017 09:42:17 +0100 Hi I am so sorry to hear your news..can I ask what chemo regime he is on and I would be interested as to what clinical trial he is on please.
I started my own chemo yesterday with VTD and I was told that I could not go onto clinical trials at this stage.
In answer to your question about age, I asked this same question at the hospital yesterday…[Read more]

]]> 1ca5fd5030f1d43069a41881aff90b9c DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133242 Tue, 02 May 2017 06:38:12 +0100 Hi Vanessa
Could I just ask what your husbands paraprotein levels started at prior to treatment and what they are now.
Did he have any weight gain and any mood disturbances, and how were his hands. Did he experience any neuropathy.
Sorry to ask so many questions, I have been awake most of the night worrying about it all.

Thankyou so much
DX

]]> 36b654d47da6ebeda6bf0e66195d75c5 DawnSarsons replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133237 Mon, 01 May 2017 19:06:06 +0100 Hi Vanessa
Thank you so much for your reply..I have read so much about the treatment and it’s side affects. Can you tell me how your husband has been and what he has experienced ?

Best wishes
Dx

]]> 80cbb71e512ef8c73a13d6ff95a2bd06 dawn changed their profile picture https://forum.myeloma.org.uk/activity/p/49511/ Mon, 01 May 2017 18:30:31 +0100 0 003f31de41112b9a381462ce5c87db97 DawnSarsons started the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/ Mon, 01 May 2017 18:26:29 +0100 Hi everyone,
The time has now come for me to start treatment tomorrow!!!
I am petrified to be totally honest and I have spent today trying to take my mind of things.
I just hope that this will be a journey that I will look back on in time and thank god I did it…..

]]> 316bdbe26182543802e5862b321fc5d6 DawnSarsons started the topic Vtd treatment. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/vtd-treatment/ Mon, 24 Apr 2017 09:27:07 +0100 Hi,
My name is Dawn and I am 55 years old and I was diagnosed with Myeloma a week ago.
The treatment I am starting next week is called VTD and I am petrified of what is going to happen as I am not a very strong person and I keep crying all the time wondering what is going to happen to me.
Is there anyone that has had this treatment and how have…[Read more]

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