Well the Flagyl worked very quickly and very effectively. Back to normal by Saturday 11th August and feeling really good.:-D

Consult on Monday 13th and consultant looked at my records and noted that my three independent samples were all negative… that is it wasn't a parasite… but still the medicine worked. I had a consult on Wednesday am…[Read more]

John called Dai… Dai called John. All's well and first contact has been made… it's Star Trek all over again.:-D

Keep an eye out for John's all day event folks its sounds like a very diverse and exciting day and evening.:-)

John is pushing the boat out with this day and the support he is receiving is phenomenal.:-D 😎 :-)…[Read more]

[quote]Hi Dai

1. Where has your post gone?
2. Are you better?
3. Did you go on holiday?

Love Helen
[/quote]

Hi Helen,

1. No idea… It's happened before to other posts but a first for me. 😐

2. Hopefully… Yes. It's been a week since the 'Flagyl' kicked in (finished course last Sunday) and so far, so good but my…[Read more]

Hi Lyn,

I don't know how Janet will cope when I am gone… She is an extremely practical and pragmatic person, so I am sure that she will survive and thrive on her own… but as far as grief, grieving and moving on is concerned I can only guess and hope.:-|

We talk about life after Dai… we are extremely close, husband, wife and best…[Read more]

Good for you Keith… I doubt that your PP's will shoot up if your Dex dosage comes down… job done, so get that Dex down to the best level available.8-)

Regards:-)

Dai.

Hi Ali,

Superb advice already, especially from Eve and Helen.:-D 😎 🙂

All I would add is to make sure you take your breaks away from caring, away from the house. Janet does,nt like to leave me on my own but at the start I insisted and now she enjoys her mornings, afternoons, days breaks with Kirstin our daughter and the grandchildren.…[Read more]

I only had 4 Cycles of CDT and they were not at all pleasant… but with a starting point of 3,500 Kappa Light chains cut to 0 nil, nothing, zilch after 3 Cycles I was enamoured with my treatment and determined to stick with it whatever the short term cost to my body and took up my mantra 'Whatever It Takes' which still abides to this day. We…[Read more]

Hi Paul,

Welcome home (home is where the hospital isn't) and well done.

Evryone will tell you to avoid infections… and so will I. You say you live in a rural area where there is little public interaction if you chose, well choose… and extend it to all but the very closest of famiily and friends for the next few weeks. I am sure that…[Read more]

Dear Lynne,

I am so sorry to hear of such sad news. I know that John was receiving his dialysis and it made me so grateful that despite all my infections and other ills that I never had to endure three visits per week for such a draining procedure… he was a very brave man and endured so much.

I am gladdened that you had the last four…[Read more]

Thanks Helen and Tom and you are both right,

On day 3 of 5 with Flagyl (metronidazole) and 'Voila' it seems to have worked a miracle. I woke this morning and took my temperature (I didn't need to because I felt 'cool' for the first time in nearly 2 weeks) 36.60… perfick. Grumbles and gripes gone, just a smidgen of internal wind, motions…[Read more]

Hi Eva,

The picture of you in an Internet Cafe somewhere in London, on your ownsome while waiting for such important news paints a forlorn portrait. Please keep in touch when you can and let us know the outcome.:-)

Wouldn't it be nice to have a group of volunteer 'safe houses' in major towns and cities where MMers (and other cancer…[Read more]

Hi Keith,

Well with those readings it is certainly mission accomplished… which makes it hard to argue against the dosage, which is a pity… because you may well have gained the same results on a much lower dosage. The Revlimid has been doing the dirty work, shoulders down, grappling with the cancer cells, capping them and watching them…[Read more]

[quote][b]Fingers crossed the end is not as near as first thought. Stephen is hoping he will be able to drive again for at least a while.[/quote][/b]

I read and reread your post because something hit me but I wasn't sure what (if I was Janet I'd sneak up on me and have a go with a frozen Hailbut from time to time).

But I found it… not so…[Read more]

Hi John,

I attend the City Hospital in Nottingham and I too am currently on Rev & Dex (about to start Cycle 7 next week). I live in Aslockton, equidistant between Nottingham and Grantham, so not so very far from Mablethorpe. I used to play semi-pro in folk, folk-rock and MOR bands, duos and solo… although MM has slowed me down in many ways…[Read more]

Hi Keith,

I believe that the Dex does cause temporary diabetes… the signs are easier to spot for me because Janet has type 2 diabetes. I asked my lead nurse about it a few months ago and she confirmed the temporary effect… but…

I realise that I am nowhere near qualified to question your medics but the reaction I got from my consultant…[Read more]

🙂 😀 😎 😀 🙂

Carry On Regardless

I hope this extends 'the end' to 'the far end'… growing old disgracefully, huffing and puffing, heave and pull as you get in and out of the Jag… your relief is palpable, I can feel it from here.:-D

Much, much love.8-)

Dai.

Thanks Tom… and thanks indeed to Jo who put me on the right path. I have had H.Pylori myself in the past but didn't even consider that possibility.8-)

So… 3 separate samples off to the lab and we had our meeting with my GP on Wednesday am. He said that the tests take 48 hours from receipt to process a result… after looking closely at…[Read more]

My appointment with my GP resulted in a mutual agreement to test for a bug (Giardia Lamblia) an intestinal parasite that causes the exact symptoms I have noted). 😎

I had tried to be prescient by taking in a sample… but the test requires 3 stool samples from 3 different visits to the WC. So home we went with an appointment to see the…[Read more]

Hi Eve,

I hope that by the time you read this Slim will be line free. I remember feeling whole and physically released after my Hickman Line came out.:-)

Who knows perhaps this freedom will boost his system and bring his platelets up to scratch?

I have had an awfully uncomfortable weekend… I rang in with a temperature of 38.65 on…[Read more]

Hi Gill,

I am so, so sorry that Stephen is having such a rough time with these brain lesions. I have my fingers crossed that the 'Wizard' can pinpoint the main culprits, easing Stephen's pain and hopefully alleviating his double vision.

Are they offering any treatments or maintenance? Has your consultant actually said that Stephen has…[Read more]