Hi Eve,

One of my first reactions on hearing about Bridget's passing, when Janet finally got me to stop crying, was to thank God that at least she was no longer in pain.8-)

Bridget went into melt down from 12 months out… relapsing from her SCT she had 3 months on Velcade, followed by 4 months on Rev & Dex, then 3 months on Bendamustine…[Read more]

Hi Helen,

I think that part of her secret was in always to sound cheery and postive without sounding too cheery or over positive..

[quote]Hi Nigel welcome to our merry little band!

It is the best place on the net for answers regarding myeloma as it is based on individual experiences, however if I have learnt one thing about mm it's that…[Read more]

Hi Liz & Kevin,

I would like to think that Bridget will rest in peace but not if she has anything to to with it she won't.;-)

I can imagine her now, pain free and whole, wandering around the streets of heaven, making friends and keeping an eye out for anyone looking a little glum… where she will stop and sidle over, sit down and start on…[Read more]

Hi Helen,

Looking back at some of Bridget's posts over the last few years, sometimes several a day, with a word of advice here and a word of comfort there… and somewhere in the middle, often as a response from one of her 'friends' she would let slip about her own situation and it sounded, especially for Bridget, quite grim but never a clue…[Read more]

Hi All,

Below is Bridget's last ever post… sent on the 26th of May, only 3 weeks before she passed and at a time when she was plagued by infections and fatigued beyond measure… but of all that? Not a Dickybird. 🙂

I am using this post because it is typically Bridget… even at her very worst (health-wise), she is shown at her very…[Read more]

I don't envy you your position Andy… the obvious question for me is:

[b]'Are you going to allow me the chance of a SCT with my current status if my figures refuse to budge?'[/b]

If so:

[b]'At what point will this decision be made?'[/b]

If not:

[b]'Then what are the alternative treatments or maintenance regimes on…[Read more]

Hi Keith,

Further to Andy's reply I too take Rev at night but not quite so late. I recall being told to take Dex in the morning and Rev at night. As it happens I take my meds en bloc… circa 8am and 8pm. I too am on 25mg Rev and 40mg Dex but my Dex are taken once a week and my nominated day is today (Tuesdays).

Sweating for 12/16 hours…[Read more]

Hi Ali,

The 'Wash & Rinse' treatment was fine at first but I became nauseous after a couple of hours and was physically sick over a 2 to 3 hour period… after that I felt drained but the anti-sicknes medication (given after the event) worked from thereon in and when I was let out I just felt washed out.:-|

iI was told by the staff that…[Read more]

You are my heroes Tom & Tina.;-)

I have an en-suite shower/toilet to myself. It is approximately 5 feet from my bed to the door and another four feet to the toilet… passing the sink en-route. Even so, there have been times when I have barely made it… and a few times when I failed… so you having to put on your crampons and scale the…[Read more]

Hi Keith,

I am on week 3 of Cycle 5 Rev & Dex. I take my Dex on a Tuesday and like Andy I have the morning to myself and then pretend I'm a broccoli for the rest of the day, vegging out in front of the TV or computer.;-)

I sweat… profusely. On my second cycle I had to go in for some interim bloods… on a Tuesday. The phlebotomist…[Read more]

Hi Mavis,

I had withdrawal symptoms from my CDT treatment… I went around the house shouting WHOO HOO! And.. it being near Xmas… there was a lot of carol singing as I recall.8-)

My normal medication regime carried on so the only sudden change was the disappearance of the C the D and the T… none of which I missed in the slightest……[Read more]

Hi Ali,

You might be mixing up the Hickman Line procedure with the start of the harvesting procedure.

Your Mum will spend at least 24 hours in hospital when she goes in for her chemotherapy 'Wash and Rinse' before starting her GCSF injections which will be followed by her Stem Cell Harvest. I went in at about 2pm in the afternoon, received…[Read more]

Hi Ali,

I'm also a Nottingham patient… my line was fitted in the Radiology Department and it took about 45 minutes in total.

I went to the DayCase Unit where I was talked through the procedure and made ready. I was then transported up to the radiology dept., where I had a 15 minute wait. The actual procedure, including local…[Read more]

Hi Tina,

There are a few people on the forum that have made the transition back to work who will be able to offer more empathetic advice… But I would say that you should be guided by both your body and your mind.:-|

You might feel strong enough physically to undertake the major parts of your job… Or certain tasks identified and agreed…[Read more]

Hi Ian,

I developed PN after my frontline CDT and it was made worse by my Velcade treatment. At times is has proven to be quite painful and it is with me 24/7… at its worst when I am feeling tired. At its best I can only describe the sensation as being like chilblains… Or like that feeling you get as a child when you have been out in the…[Read more]

Hi Andy,

I'm glad you had a good time in the Lakes… I always enjoy my stays there, regardless of the weather .

The fluctuation in your PP's must be galling, to say the least… it's not so bad for me and Keith because we are on R & D as a maintenance regime… as long as our numbers stay relatively stable we are OK but you need yours to…[Read more]

Great news David,

I hope you get to repeat this news for eons to come… and the good health to go with it.8-)

Dai.

Tom,

You and Elaine have made my day!:-) 😀 😎 😀 🙂

It is so good to know and see that there is good news to be had from bad situations. Your ever positive outlook and Elaine's care and companionship must make your home life a joy at the worst of times… so enjoy it all the more now that the times are good.8-)

Regards and love to…[Read more]