Eve & Slim,

I don't know what to say… other than my thoughts and love and friendship are yours at such a terrible time. Please let us know what you can when you feel able.

Much, much love:-)

Dai.

Hi Sarah,

It's lovely to hear from you and life on the farm. I imagine Gordon is everywhere because he always was and even if he is only there in spirit his voice and his ways will be echoes on the wind and in the fields and yard… that I imagine, is inescapable.

I'm glad that Charlie has claimed his Dad's tractor and I am sure he thinks…[Read more]

Hi Stuart…

I just went into my profile picture and noticed it was not centred… i.e. I needed to scale it down. It has worked for me, so this is what might be the problem with the others profile picture… to use the scale down until the picture is smaller but centred.

Its worth looking at.

Dai.

I had several side-effects with CDT but nothing major… at that time nothing to compare to it either.:-)

Thing is, while it was a bit rough at the beginning I have to take into consideration the fact that I started treatment with a Kappa Light Chain reading of 3,500… so obviously the CDT was having to work hard… and work hard it most…[Read more]

Same here with Safari Stuart… sorry.:-)

Dai.

Hi Ann,

Welcome to somewhere you never imagined you would want or need… but for what it is, who we are and what you do now need this forum is the exact place to be.

You will find people at various stages of their journey and experience who will offer you advice and the sum of their experience of processes, procedures and the effects of MM…[Read more]

I joined facebook because my children made me… I don't post that often but it is great for farming photo's of family and friends and for certain events etc… I suppose I am a semi-social networker but overall I find it useful.:-)

Dai.

Hi Ali,

I'm Dai… I have been treated at the City Hospital since June 2009… the staff and medics at the City are excellent and the set-up for stem cell harvest and the SCT (in their own Haematology suites are second to none. There are quite a few of us here now who have been down the SCT route, so there is plenty of experience and advice at…[Read more]

Mine changed on the profile but not on the forum… it took a while to appear for some reason.

Dai.

Me and Tom are fb mates but I only read the text… open a photo and invariably he has got a pint in his mitt… lucky b***er.

Dai.

Well, come on then… where's the picture proof?:-D

Dai.

Hi Jean,

I ended up in hospital 3 times last year with infections and they like to give their anti-biotics intravenously because they can use a really strong general dose to attack the infection while taking cultures to try and find the specific problem. They have never found my specific yet through cultures but the intravenous anti-biotic has…[Read more]

Hi Phil,

I assume that you have had a full skeletal survey, MRI and CTScan?

My lower back spasms turned out to be a tumour which was crushing two vertebrae… if you know it is not skeletal or bone related then acupuncture seems a straightforward therapy which I have found useful in the past.

If you haven't had the 'works' then I'd…[Read more]

Hi Helen,

I am on ESA… this is one of those random checks where they call in 50% of a selected group and get the other 50% to fill out the forms as a precursor to being called in if they think you are fit for work. The penalty for not complying is an instant suspension of benefits. 😛

My brother is a senior in the JobCentre world and…[Read more]

Hi Jean,

I know that the magic number for Neutrofils is 0.5 after a SCT… on the up and allowed home to recover, with care. I was neutropenic 0.1 when my Hickman line got infected and spent a hairy week waiting for it to rise. I am told that if my Neutrofils drop under 1.0 I have to be admitted… it seems to be the policy at my hospital.…[Read more]

I must admit to being a tad over protective, even a little paranoid about picking up an infection while I am on this 3 Cycle 'probation' period with Rev & Dex. I will stay on anti-biotics for this period as a 'just in case' scenario but I want my bloods to be a true reflection of where I am with the treatment and don't want them clouded by…[Read more]

Hi Helen,

A phased return sounds like a good bet… that way you can assess your fitness and your desire to work full-time. 😎

I sent off my form to the ESA today and I hated doing it. I want to work but I have been self-employed since 1994 apart from a year as a part-time project leader with the Probation Service and a local FE College…[Read more]

My brother kindly passed on to me a Sony reader which works exactly the same as a Kindle but I do like the feel of a book in my hand when I am either in a waiting room or a car. But for home I use the downloadable Kindle on my laptop. I read a lot (but not as much as I used to) and I buy most of my books hard copy and Kindle from Amazon. I have…[Read more]