Hi Nadine,

It was my fault… I moved my answer to another thread. 🙂

We were considering the London INFOday for no other reason than the fact that several people from this forum will be in attendance and it seemed like a great opportunity to meet up… but both Janet and I have ended up with chills/colds that have turned into upper…[Read more]

Hi Bridget,

Please don't apologise, I am sure that Nettie and Jo speak for us all in regard to your selflessness and our concern that your well being should come first. 😎

I appreciate that when you do feel up to it that the materials to hand will dictate what you make but please put those in genuine need first… mine is purely for the…[Read more]

Hi Christin,

A few days to get my bearings quickly followed by a chill which has turned into an upper repiratory tract infection… out with the Velcade in with the Amoxicillin.

Ah well…:-)

Dai.

At the moment I am only getting Gabapentin… I have reported all the new pain and the worsening of my PN throughout my Velcade treatment (on the monitoring/report sheets for that purpose) but I have never been offered anything. I know that I should/could be on some treatment so i will ask at my next consult. These patches sound good. 🙂

Dai.

Hi Nettie,

That is obviously a photo of you about to launch yourself into thin air… 😎 Are there any photos up yet… have I missed something?

Dai.

Hi Stuart,

I open mine from a web archive on my desktop… but that has always worked perfectly for me on the old site and the new,

But its working fine now.:-)

Dai.

Happy Anniversary to you both Mal and Bruce… and our very best wishes for the rest of Bruce's SCT.

I found that the worst part was approximately day 6 to day 11, when I had 'bottomed out' (I counted Day 1 from the day after my Stem Cells were returned). I thought that I was drinking enough fluids… but not enough to satisfy the medics, so…[Read more]

I hope they fix the glitch soon… us old-timers can break in and out at will but I hate the idea of someone newly diagnosed and in desperate need of a friendly face and a welcoming place…

Monday morning will soon sort things out I am sure.

Dai.

Hi Min,

I'm glad you are not affected… its 1.22am and I'm still having to sneak in over the garden wall.:-D

Dai.

Hi Min,

My heart is lifted and cheered by your news. I am so glad that you have found something to look forward to… I am sure that the days will be filled with exciting things to do and the time spent with Tony will do you the power of good. 🙂

I loved your photo of Peter and Tony and I thought at the time that if Tony's hair turned…[Read more]

Hi Eve and Helen,

I find it hard but still, I offer a weak and conditional congratulations to you both.

The conditions are due to the fact that I sincerely wish that MM had never crossed your paths… that when your illness was finally diagnosed that it was almost anything but MM… in hindsight that is what I wished for myself at your…[Read more]

Now that is funny David. I've already pinched it, changed the currency to dollars and posted it onto my songwriting site (based in Nashville). Their type of humour… or should I say humor. 🙂

Dai.

Hi Eve,

I recall my consultant's observation when she spoke at the Nottingham INFODay in March – she said that some GP's go through their entire careers without coming across a MM patient. Most will only see one case… even those who see more will not retain much knowledge because they will be so far and few between cases. As you know from…[Read more]

Hi Debs,

I am reading this thread with a towel wrapped around my neck because I have been sweating so much. Once I have cooled down I will change my shirt. I am no longer on treatment and my meds are my normal quadruple of MST, Gabapentin, B6 and Bonefos (Plus a chewable Calcium tablet and a Lansaprole anti-acid tablet in the mornings…[Read more]

Thanks for letting us know Donna, please pass on my best wishes to your Mum and Dad and tell them I look forward to their return online and the next steps towards rattling the teeth of the HSBC. 😀

Dai.

Hi Gill,

The i, its big sister The Independent, The Guardian, the Telegraph… are the papers for this sort of story. They all have online versions and every one of them has contact details listed online. Either ring the news-desk or perhaps better still (it is easier to collect and collate your thoughts in writing) send an email with your…[Read more]