Tom, Mavis, Jo, Vicki & Colin

Thank you all for your support and best wishes… it does me the power of good to hear it and see it, knowing that friends, that I may never meet are out there plugging for me… thank you all so much. 😀

Dai.

Hi All,

Having Grandchildren is one of my greatest joys and also of of my saddest regrets for obvious reasons… but saying that I have a range of ages.

Starting with Becky with Matthew at 16 in March 6' 2'', an intelligent, good looking boy, who has a lovely, slightly dry sense of humour, is caring and sharing, loves his Mums and plays the…[Read more]

Hi Rob,

What's occurring, as Spock might have said if he holidayed in Barry. 😉

Regards

Dai.

Hi Maureen,

Many of us have had periods where our mobility has been restrained for one reason or another and it is a frustrating state to be in. For me it was an 6 to 10 weeks period following my DVT's… one (left leg) in the Summer of 2011 and the other (right leg) in the Autumn of 2012. 😛

I do hope that Ian regains full mobility…[Read more]

Excellent, informative, relevant and valuable post… thank you very, very much. 🙂

Regards

Dai.

Hi Ann & Pete,

4.6million is excellent, especially given the struggle first time around.8-)

Ar they going to put them all back or are they going to freeze a couple of million for a second SCT? I'd go for the split because you have them in the bag and there are no guarantees that they will get enough at a second harvest… but it's your…[Read more]

Hi All,

I know these spam posts are a nuisance.but all we need to do is to go into a subject heading and bump up the previous message… Just write 'bump' and post.

A couple of bumps each from the first few on board and we will have our board back and it will look more welcoming as well.

Just an idea.

Dai.

Hi Tom,

I have been a lifelong trade unionist… like my father before me. My Dad was 'Father Of The Chapel'… a leader of the print union the NGA. I was a Youth Delegate, Area Delegate, Branch Secretary and Area Executive Officer for the NUM… Chairperson then President of NATFHE (Further Education Union) and then Regional Officer for the…[Read more]

Hi Tebebe,

As CDT was my first/Frontline treatment I didn't know what to expect by way of side-effects. It wasn't pleasant with almost exactly the same effects as you describe… but neither was it overwhelming or crippling. I persevered because I knew I had no choice and there was a very good chance that it was doing me some good. It was.…[Read more]

Well done you Joe,

I remember your posts from last year and I remember how positive you were then. 🙂

I wish you the best of luck in your endeavours and you and I both know that your Dad will be whispering encouragement every step of every race. 😎

Regards

Dai.

Hi Pat and Jean,

Yes we are both overjoyed although Ross is the product of myself and my first wife, Shelley. Fortunately we have always had a good relationship since our divorce back in 1997 and more recently, since my diagnosis in 2008 we have become friends again… Shelley is very supportive and she and Janet and Shelley's 80 year old Mum…[Read more]

Hi Vanessa,

I completely understand that you are mad and sad by turn and that you want Stewart to have the very best chance of a successful SCT. His frontline treatment was CDT, a tried and trusted treatment and it has got him into the safety zone… PP's @ 14 is doable although I fully appreciate that 10, 7, 3 or 0 would make you happier. As…[Read more]

Hi Dan,

When I relapsed from my SCT I was also given Velcade. Although they don't say as much Velcade is a primer for a 2nd SCT… Unfortunately I and several others here didn't create enough Stem Cells to provide the opportunity for a 2nd SCT so the Velcade was given as a stand-alone treatment.

My relapse also showed a secondary tumour on…[Read more]

And then there were three…

Ethan James Crowther – born at 9:46am this morning to my son Ross and Daughter-in-Law Kelly. 😀

Ross kept me informed of progress throughout the night (I didn't mind being woken in the slightest… he was excited but nervous as well because Kelly had a hard time with Owen two years ago.:-0

So, good news…[Read more]

Hi Sal,

I remember your initial post and I wondered then if your Dad would be able to withstand the rigours of MM treatment given his history and the two heart attacks while on treatment,

I am sorry that your Dad had to suffer the bad luck of contracting this awful disease at his age and after fighting to stay ahead of his heart problems……[Read more]

Home is where the heart is… and the TV, sound system, bed, toilet… etc. etc. Familiar things that may seem trivial to some but are of vital importance when recovering from a major procedure like a SCT.:-|

Take it easy and take it slow,,, very slow. Rest up, don't try too much too soon and don;t feel guilty about chilling out and…[Read more]

My PN started with my frontline CDT… put down to the 'T' of Thalidomide. It was mainly in my feet with only the slightest sensation in my hands. The second wave came with Velcade, which exacerbated the PN in my feet and calves and started to show in my fingers and hands. I am now on Bendamustine… which includes weekly Dex and Daily…[Read more]