dean

  • dean replied to the topic Velcade – decision time in the forum General 7 years, 7 months ago

    Hi Rebecca

    Just had our meeting with the team regarding my transplant. So much to take in that I got to the point where I didn’t want to take anymore ino in.. Due to a shortage of beds I was warned that when I have my chemo I will be in a open ward.. Not happy about dealing with bad sickness etc, would rather my own room for that, but it is what…[Read more]

  • dean replied to the topic Velcade – decision time in the forum General 7 years, 7 months ago

    Hi Rebecca,

    A very good point. I got your impression when I asked my Doctor “can I have my stemcell transplant later”..? Probably because I’m on the young side, the doctor looked at me in shock horror that I can even think like this & ask.. Anyway I’m going ahead with it but don’t hurt to ask but that’s when I realised,   I’m restricted…[Read more]

  • Hi Sarah

    Yes all the info was a great help. Like you I don’t like all this waiting around. All the best Dean

  • dean replied to the topic Velcade – decision time in the forum General 7 years, 7 months ago

    Hi Rebecca

    I hope you don’t mind me joining in this conversation. Did you get your fish test done on your first bone marrow byopsie?  My hospital didn’t do it. When I asked, they have just recently done the test from my second byopsie as I finished my induction treatment last month. Now getting ready for my stemcell transplant around November…[Read more]

  • Hi

    Like you finding it tough.. more the worry etc as I have a young family.  Hopefully the stemcell transplant does the job for a while and get to family life with my girls.. fingers crossed.  I got to a bad start with chemo but got through it. Now not had any chemo for 3 weeks on a break until end of October then stemcel. Abit scared goung t…[Read more]

  • Hi Carmen.

    I know it’s hard, I’m still trying to get my head around it all still when I was diagnosed back in April. We can’t change it now, we have to deal with it unfortunately.. I’m 42 and half maltese. My mum who is also called Carmen lives in mgar… have they given you options to where you can have your Sct??? I did hear that Malta has a…[Read more]

  • Hi Sarah

    My harvest is about 2 weeks after you but not been given a date yet for transplant. Yes it’s all so much to take in and the worry of it all etc.. either way I think we will be days or weeks us two having it done. . If you want a chat about it all etc by all means inbox me your number and we can chat to help each other. But if you don’t…[Read more]

  • Hi Sarah

    I was just going to put a message out asking the same thing. Like you, we were on the same treatment & I’m having my stemcell at kings very close to your dates. I’m probably going in just after you by days.. It’s alot to take in leading up to the build up etc..

    Regards Dean

  • dean replied to the topic New to this site in the forum Under 50s 7 years, 10 months ago

    Thanks Rebecca

    A great message it’s really helped. I’ve defenitly had a delayed reaction from my diagnosis. From today I’m starting a fresh. Glad every thing has gone so well your end keep it up also.

  • dean started the topic New to this site in the forum Under 50s 7 years, 10 months ago

    I hope I don’t type on to much with my story.

    Im 41 & up to mid April I was working 6 days a week living life with my lovely wife & 2 daughters. Over the last 3 years I was going to my GP  regarding heat pulpertations which I felt were getting worse but was always told it was stress of working. After a another visit to my GP i had a blood test &…[Read more]

  • dean became a registered member 7 years, 10 months ago