Myeloma Forum | debbieg | Activity https://forum.myeloma.org.uk/members/debbieg/activity/ Activity feed for debbieg. Wed, 29 Apr 2026 12:25:59 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 260beb0408d3f58dbf40573d5359ac60 debbieg replied to the topic Viruses in the forum General https://www.myeloma.org.uk/forums/topic/viruses/#post-136228 Tue, 28 Nov 2017 16:47:30 +0000 Thank you for posting on the Discussion Forum.  I am sorry that you haven’t received any replies to your post to date.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

I hope that your husband is feeling better in the last few weeks.   With regard to the detection of light chains in your husband’s blood t…[Read more]

]]> 896d5dddedc24c46e444d92ea80d3b06 debbieg replied to the topic Myeloma XI Trial maintenance in the forum General https://www.myeloma.org.uk/forums/topic/myeloma-xi-trial-maintenance/#post-136170 Tue, 28 Nov 2017 09:20:46 +0000 Dear Angela

Thank you for posting on the Discussion Forum.  I am sorry that you haven’t received any replies to date.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

We understand from the Myeloma XI Trial Office that all patients who were receiving vorinostat (Zolinza®) within this trial have rece…[Read more]

]]> 380f96068f54cce7b97f039e721783c0 debbieg replied to the topic Life insurance and wills in the forum General https://www.myeloma.org.uk/forums/topic/life-insurance-and-wills/#post-136153 Mon, 27 Nov 2017 13:45:48 +0000 Hi Emma

Thank you for posting on the Discussion Forum.  I am sorry that you haven’t received any replies to your post.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

Unfortunately here at Myeloma UK we are not aware of any insurance companies that will provide life insurance cover to myeloma pat…[Read more]

]]> 2e4d9a5d9ecdd7d84361a8bc298f8dab debbieg replied to the topic Very swollen leg in the forum General https://www.myeloma.org.uk/forums/topic/very-swollen-leg/#post-136152 Mon, 27 Nov 2017 13:40:52 +0000 Dear Rosie

Thank you for posting on the Discussion Forum.  I am sorry that you haven’t had any replies to your post to date.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

I am sorry to hear of the difficulties your dad has been experiencing.  I hope that some of his symptoms have been alleviated by h…[Read more]

]]> 8cd4bb8f660f021dcd2dd23b6fb8ce83 debbieg replied to the topic Skin problems post SCT in the forum Side-effects https://www.myeloma.org.uk/forums/topic/skin-problems-post-sct/#post-136151 Mon, 27 Nov 2017 13:25:06 +0000 Dear Sue

Thank you for posting on the Discussion Forum.  I am sorry that you haven’t yet received a response.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

I am sorry to hear of the skin problems you have been experiencing – although some patients do frequently report dry skin following high-…[Read more]

]]> 0b42c565a35d67993017778c50c97ec4 debbieg replied to the topic Remission in the forum Treatment https://www.myeloma.org.uk/forums/topic/remission-3/#post-135644 Fri, 20 Oct 2017 16:06:25 +0100 Hi Jan – the paraprotein level can fluctuate slightly from test to test so please don’t be worried about this slight increase. Please ask your husband’s doctor (haematologist) to elaborate at the next clinic appointment. Generally speaking the doctor will be looking at the trend of the paraprotein level over several blood tests, rather than one c…[Read more]

]]> a1b066dea59cea6a9db01d634d84078b debbieg replied to the topic What is going on?? in the forum Side-effects https://www.myeloma.org.uk/forums/topic/what-is-going-on/#post-133850 Tue, 13 Jun 2017 15:19:06 +0100 Hello

My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.  I am sorry that no-one has yet replied to your post, and I am sorry to read of the difficulties your partner has experienced.

I wonder if you and your partner have had an opportunity to reflect on the experience with his doctor (haematologist) or…[Read more]

]]> d252acf5953ced214372249c00c06dac debbieg replied to the topic Hallucinations and confusion in the forum Side-effects https://www.myeloma.org.uk/forums/topic/hallucinations-and-confusion/#post-133505 Tue, 23 May 2017 16:07:38 +0100 Hi Ceri

Thank you for posting on the Discussion Forum. I am sorry that you have not had any replies yet. My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

The situation you describe with your husband is unusual. When patients present with confusion and hallucinations there can be multiple potential…[Read more]

]]> 72bd517f37279a31fcdbf890332b2582 debbieg replied to the topic pamidronate in the forum Newcomers https://www.myeloma.org.uk/forums/topic/pamidronate-2/#post-133248 Tue, 02 May 2017 11:55:02 +0100 Dear John

Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date – I am sure you will be hearing from others in the near future. My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

You haven’t mentioned in your post whether your wife is on active treat…[Read more]

]]> 6e8a8ce53ecc64b0a94da8890d465a4a debbieg replied to the topic Bloods in the forum Treatment https://www.myeloma.org.uk/forums/topic/bloods-2/#post-132821 Tue, 04 Apr 2017 14:25:11 +0100 Hi Susie

Thank you for posting on the Discussion Forum. I am sorry that no-one has commented on your post to date – I am sure they will in due course. My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

The haematology team at your hospital will be able to advise you on their practice. There is some v…[Read more]

]]> 46e520d47c0c05b6593c6c5d2546957c debbieg replied to the topic Complicated diagnosis in the forum Newcomers https://www.myeloma.org.uk/forums/topic/complicated-diagnosis/#post-131856 Mon, 13 Feb 2017 14:34:29 +0000 Thank you for posting on the Myeloma UK discussion forum. My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

I am sorry that no-one has yet replied to your post. I suspect this is because the situation you describe with the additional diagnoses of LGLL (large granular lymphocytic leukaemia) and morphea…[Read more]

]]> 152ddddbf557d96c19240684b2da0d59 debbieg replied to the topic Presentation in the forum Newcomers https://www.myeloma.org.uk/forums/topic/presentation/#post-131812 Tue, 07 Feb 2017 16:56:00 +0000 Hello Gustavo

Thank you for posting on the discussion forum. I’m sorry no one has yet replied to your post – I’m sure they will in due course; meanwhile I thought it would be useful for me to reply – my name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

As you found this discussion forum I am hoping that…[Read more]

]]> ba03c1d5745c4499e5d56d6dc0a6b423 debbieg replied to the topic Just been informed my dad has Myeloma in the forum Newcomers https://www.myeloma.org.uk/forums/topic/just-been-informed-my-dad-has-myeloma/#post-131745 Wed, 01 Feb 2017 17:47:56 +0000 Thank you for posting on the discussion forum. I’m sorry no one has yet replied to your post – I’m sure they will in due course; meanwhile I thought it would be useful for me to reply – my name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

As you found this discussion forum I am hoping that you have also…[Read more]

]]> 34b31d88e4349c5f296645e5859cd598 debbieg replied to the topic Myeloma & ARMD (Age Related Macular Degenertation) in the forum Carers https://www.myeloma.org.uk/forums/topic/myeloma-armd-age-related-macular-degenertation/#post-131371 Wed, 21 Dec 2016 11:36:28 +0000 Thank you for posting on the Myeloma UK discussion forum.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

As far as we are aware there is no connection between myeloma and age related macular degeneration (ARMD).  This is not to say that other patients might not have experience of both, as both are m…[Read more]

]]> 9c08b3c78560635a8194984988753f9e debbieg replied to the topic MGUS - Diagnosis versus Prognosis in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/mgus-diagnosis-versus-prognosis/#post-129347 Fri, 02 Sep 2016 16:00:02 +0100 Dear Graham

Thank you for posting on the Myeloma UK forum.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.  I am sorry that no-one has responded to your post to date.

As you correctly note LDH, B2M and CRP are not diagnostic tests in their own right (for myeloma or any other conditions).  Instead th…[Read more]

]]> e004e8bd25f7b31fa35155987324bb5f debbieg replied to the topic Feeling very worried in the forum Carers https://www.myeloma.org.uk/forums/topic/feeling-very-worried/#post-129180 Mon, 15 Aug 2016 15:36:27 +0100 Hi Kay

Thank you for posting on the Myeloma UK forum. My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.  I am sorry that no-one has responded to your post until now.  I can understand that this is a worrying time for you with your mother in hospital and you being abroad.  From your description it sounds as…[Read more]

]]> c9d8f22e91a910328d602703b163dc86 debbieg replied to the topic Mum diagnosed with MM - few questions in the forum Newcomers https://www.myeloma.org.uk/forums/topic/mum-diagnosed-with-mm-few-questions/#post-128481 Tue, 21 Jun 2016 11:44:33 +0100 Thank you for posting on the Myeloma Discussion Forum. My name is Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK.  I am sorry that no-one has responded to your post to date. This is a question that it is unlikely forum users will be able to answer.

I can understand your concern about myeloma running in the family. We…[Read more]

]]> c2c4d6dae1c4b78921a4c47c0d6e1833 debbieg replied to the topic Mum diagnosed with MM - few questions in the forum Newcomers https://www.myeloma.org.uk/forums/topic/mum-diagnosed-with-mm-few-questions/#post-128481 Tue, 21 Jun 2016 11:44:33 +0100 Thank you for posting on the Myeloma Discussion Forum. My name is Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK.  I am sorry that no-one has responded to your post to date. This is a question that it is unlikely forum users will be able to answer.

I can understand your concern about myeloma running in the family. We…[Read more]

]]> 481e7dcf4afe07a4de34529760d655b5 debbieg replied to the topic Diagnosed 1 year in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-1-year/#post-128475 Mon, 20 Jun 2016 15:34:58 +0100 Thank you for posting on the Myeloma Discussion Forum.  My name is  Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK.  I am sorry that no-one has responded to your post to date.  I suspect this is because the situation you describe with your mum is a complex one, and there are many potential reasons for the drop in her hae…[Read more]

]]> e8578207336e3151f612ef658ce0ad19 debbieg replied to the topic Diagnosed 1 year in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-1-year/#post-128475 Mon, 20 Jun 2016 15:34:58 +0100 Thank you for posting on the Myeloma Discussion Forum.  My name is  Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK.  I am sorry that no-one has responded to your post to date.  I suspect this is because the situation you describe with your mum is a complex one, and there are many potential reasons for the drop in her hae…[Read more]

]]> 1c6579555736c43ff275a75714565dea debbieg replied to the topic Diagnosed 1 year in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-1-year/#post-128475 Mon, 20 Jun 2016 15:34:58 +0100 <p class=”MsoNormal”><span style=”font-family: ‘Arial’,sans-serif; color: black;”>Thank you for posting on the Myeloma Discussion Forum.  My name is  Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK.  I am sorry that no-one has responded to your post to date.  I suspect this is because the situation you describe with you…[Read more]

]]> 115c5b57b9a95a67b674f8a6de56e4f0 debbieg replied to the topic Diagnosed 1 year in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-1-year/#post-128475 Mon, 20 Jun 2016 15:34:58 +0100 <p class=”MsoNormal”><span style=”font-family: ‘Arial’,sans-serif;”>Thank you for posting on the Myeloma Discussion Forum.  My name is  Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK.  I am sorry that no-one has responded to your post to date.  I suspect this is because the situation you describe with your mum is a com…[Read more]

]]> 24e6c78627953407f90f6c9604234d9b debbieg became a registered member https://forum.myeloma.org.uk/activity/p/45920/ Mon, 20 Jun 2016 15:30:54 +0100 0