Myeloma Forum | DeborahH. | Activity https://forum.myeloma.org.uk/members/deborah/activity/ Activity feed for DeborahH.. Sun, 12 Apr 2026 03:46:48 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 7cadaeeef183abe7c3aba54d0957e4a1 DeborahH. replied to the topic Myeloma X: Relapse (Intensive) Trial in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-x-relapse-intensive-trial#post-100123 Mon, 13 Aug 2012 15:57:09 +0100 I wasn't at the appointment with my mother, but apparently her consultant didn't offer any opinion on the trial either way. In fact, he stressed he needed to be "unbiased"?odd.

Thanks for the well wishes, Tom.

]]> 8eb0164a63b1e502571ba893aa03263b DeborahH. started the topic Myeloma X: Relapse (Intensive) Trial. in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-x-relapse-intensive-trial Mon, 13 Aug 2012 13:15:25 +0100 Hello again!

My mother was due to start treatment again ([url=http://www.myeloma.org.uk/patient-services/discussion-board/side-effects/velcade-experiences/]with Velcade[/url]) after her relapse, but she has now been offered to take part in the Myeloma X: Relapse (Intensive) Trial.

This trial will first involve some treatment with PAD…[Read more]

]]> c2d7ceaafe2d9988a671a0a0ceefff28 DeborahH. replied to the topic Hereditary link???? in the forum General http://www.myeloma.org.uk/forums/topic/hereditary-link#post-89950 Fri, 01 Jun 2012 10:03:36 +0100 [i]Familial[/i] means there has been some evidence of it "being in families", but we don't yet know why. So far, researchers have failed to find a specific gene that leads one to get MM, but that's not to say there couldn't be a genetic component.

From Cancer Research UK:

[i]A small number of case-control studies have consistently found…[Read more]

]]> 031a83627f5047312c8558eaedddb715 DeborahH. started the topic Myeloma Matters Subscription. in the forum General http://www.myeloma.org.uk/forums/topic/myeloma-matters-subscription Tue, 29 May 2012 11:33:20 +0100 This may seem like a strange question, but does [url=http://www.myeloma.org.uk/patient-services/myeloma-uk-publications/myeloma-matters/subscribe-to-myeloma-matters/]Myeloma Matters[/url] come in an envelope? I want to subscribe, but as I live with my mother, I'm a little worried that seeing the magazine will remind her of having cancer at times…[Read more]

]]> b235eda9b8a092f42905e66078ced4f8 DeborahH. replied to the topic Hereditary link???? in the forum General http://www.myeloma.org.uk/forums/topic/hereditary-link#post-89947 Tue, 29 May 2012 11:24:02 +0100 From the International Myeloma Foundation:

[i][b]My grandmother died of multiple myeloma and now my dad has been diagnosed with this disease. Is myeloma hereditary?[/b]

There is only a weak family tendency to develop myeloma. Approximately 3-5% of patients with myeloma give a history of myeloma or a related condition within the extended…[Read more]

]]> 398b340a5f806f100b53b6d10a4268f5 DeborahH. replied to the topic Velcade Experiences in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-experiences#post-104497 Tue, 29 May 2012 11:17:22 +0100 Hey Eve, thanks for your reply. My mother is in her sixties, so I'm guessing they'll give her two injections a week. Last time my mother had chemotherapy she was in hospital the whole time?seems Velcade will involve a lot of toing and froing, but at least she'll be able to sleep in her own bed at night.

]]> 3685d13ae443acb5d407418033febbcb DeborahH. replied to the topic Velcade Experiences in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-experiences#post-104496 Tue, 29 May 2012 11:12:16 +0100 Hey Debs, thanks for the heads up about the Peripheral Neuropathy.

(Cool name, by the way!)

]]> 9070ff8a8ca978735befe43b33ff941a DeborahH. replied to the topic Velcade Experiences in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-experiences#post-104498 Tue, 29 May 2012 10:57:41 +0100 Hi Dai,

Thanks for the in-depth response. Interesting!

Shamefully, I'm not sure which combination of chemotherapy she had initially (other than it being Thalidomide-based), but she did have a Stem Cell Transplant.

"Velcade is usually given at this stage as a preparation for the second SCT… that is, the remission is not usually…[Read more]

]]> b1430d8e4523540f9b63c2e4957757b0 DeborahH. replied to the topic Velcade Experiences in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-experiences#post-104491 Mon, 28 May 2012 16:34:47 +0100 Annette, I didn't know that; thanks for sharing. Can one get a shingles vaccination in the UK?

]]> a224eabc3de74ce52186aa1c1ddbd686 DeborahH. replied to the topic Velcade Experiences in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-experiences#post-104489 Mon, 28 May 2012 16:32:33 +0100 Thanks for the kind words, Tom!

]]> 7fd89751b0eb3d80491baf0bbef4b952 DeborahH. started the topic Velcade Experiences. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-experiences Mon, 28 May 2012 14:43:53 +0100 Hello! I'm a newbie with a question.

My mother had chemotherapy a couple of years ago for MM and was in recession until recently. It looks like she'll soon be starting chemotherapy again, but this time on a different drug: Velcade. Just wondering if anyone here is willing to share experiences with this drug, good or bad. For the record, her…[Read more]

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