Myeloma Forum | DerynAmbrose | Activity https://forum.myeloma.org.uk/members/dee4894/activity/ Activity feed for DerynAmbrose. Sun, 26 Apr 2026 02:46:32 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 85347c962a665c23ec4e424cc09e6ef6 DerynAmbrose replied to the topic MM/LPL and Kidney Failure. in the forum Related conditions http://www.myeloma.org.uk/forums/topic/mmlpl-and-kidney-failure#post-105670 Tue, 14 Aug 2012 08:22:21 +0100 Hi Rachael,
My dad is doing okay. By okay I mean he's alive and his kidneys are stable at around 15% again (I think, anyway). He said "a bit rough, I suppose the word would be. Tired, I'm just permanently tired, which more likely means I need a transfusion. It's not very nice"
But yeah, we're all doing okay I think. 🙂
How about you and your…[Read more]

]]> 43cb76cb5eb84eb5769098e19709a97b DerynAmbrose replied to the topic MM/LPL and Kidney Failure. in the forum Related conditions http://www.myeloma.org.uk/forums/topic/mmlpl-and-kidney-failure#post-105668 Thu, 26 Jul 2012 09:35:00 +0100 Hey 🙂
Thank you, that still helpful. He's not being sick at the moment, unsure as to why he was being sick anyway but hopefully he'll stop feeling queezy soon.
I don't know how to make him feel better because I obviously have no idea how he is feeling, or in fact anything about this cancer, really. He knows that we all care about him and stuff.…[Read more]

]]> 0bc2d2405091cabf550031ee7512c424 DerynAmbrose started the topic MM/LPL and Kidney Failure.. in the forum Related conditions http://www.myeloma.org.uk/forums/topic/mmlpl-and-kidney-failure Thu, 26 Jul 2012 07:33:18 +0100 Hi,
My dad; Richard; aged 57, was very recently diagnosed with multiple myeloma and lymphoplasmacytic lymphoma (they couldn't decide). He has had three sessions of chemo of Bortezomib and Dex-something-or-other and that was put to a halt because of sickness; chest infection and further kidney failure.
He was admitted for kidneys working at 20%,…[Read more]

]]> cdb956a3c60a196ac6a517338399b6d7 DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/10/#post-85994 Thu, 26 Jul 2012 06:15:24 +0100 That's a good idea.. I didn't even think of that.
Thank you.
– Dee.

]]> 2b53e93d25120c6c9cd96cef9ab834c0 DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/10/#post-85991 Wed, 25 Jul 2012 10:39:39 +0100 So uh. Yeah. Things aren't looking good.
My dad has only had three sessions of chemo; his kidneys went down to 13%, which was a drop of 7% since last checked and he was sent back home at 15% – which was two days ago. He's being sick etc, and so he now isn't drinking again, because who wants to drink when they're being sick?
This morning we cried…[Read more]

]]> f2c62f914811ce860027c90e7c20c75a DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/9/#post-85988 Sun, 08 Jul 2012 08:47:46 +0100 Hi Helen,
Really happy for you being much better. How come you're cross though?
Oh, and also, were you less mobile and things at first? Because my dad is, and that's what makes him the most angry. He has tonnes of orchids etc – a large, packed greenhouse full of them, as well as our entire kitchen window sill. I've had to take over looking after…[Read more]

]]> b3c8141a16124d30e6f155732a437b2b DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/9/#post-85986 Sat, 07 Jul 2012 12:03:32 +0100 Thank you!
He went in for a picc line flush and asked then, they confirmed what you said. He's pretty down about that because he expected it to be over quickly. Which I guess was daft. He is having 4 cycles. Is that because he's older or the illness is worse or.. I dunno.. It seems many have more, as if their body has more to give? *shrug*
We're…[Read more]

]]> 85907f9dc416c04614ea19a7e4cd73c7 DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/9/#post-85983 Thu, 05 Jul 2012 19:33:07 +0100 Hiiiiii…
We're a little confused about chemo cycles. Is 1 cycle 3-4 weeks? Like.. My dad is having chemo once a week, and he thinks that after 4 weeks, that's 4 cycles? Or is one cycle 4 months? So. 16 sessions? I don't know.
Thanks in advance.
Also thanks for the messages. 😀
– Dee

]]> d0ffb4496c697ade6656929b058cfca1 DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/9/#post-85979 Sat, 30 Jun 2012 13:26:37 +0100 Yay 🙂
Dad is home – hopefully for a while now.
They have his pain and sickness under control and he is now able to move a little, as well as eat.
This makes me stupidly happy.
🙂
– Dee

]]> 028f7b7445119bbbfea1ebc31ebf778b DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/9/#post-85974 Sat, 23 Jun 2012 04:20:04 +0100 Hi Alison 🙂
Thank you and good luck to your mum, I hope she continues to be well.
Yeah, I knew I should join a forum type thing because then it's real people rather than statistics and stuff.

—–

Everyone,
Thank you to all of you, everything you say is so sweet and I am so grateful. Please don't be disheartened if it takes me a while…[Read more]

]]> 8da1196ebe32bf35b38d7bef32ca69dc DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/9/#post-85975 Sat, 23 Jun 2012 04:04:14 +0100 Hi Vicki 🙂
Thank you. Of course I'd still love my dad even if he did lose his hair but it would just make this all more real, since it's all happened so soon and it hasn't sunk in, and I don't know if it ever truely will.
Though, we found out yesterday the treatment he is having with side effects etc and prognosis. Though I think it was just…[Read more]

]]> 1d4fab5e1ddbdb776da88ed121fea958 DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/8/#post-85971 Thu, 21 Jun 2012 18:15:01 +0100 Hi Tom 🙂
That made me smile! I'm really happy for you. I hope you can continue as well as you are now.
Thank you for the kind words. They're all really appreciated. It's so good having people being supportive to help soften the blow of all this.
– Dee

]]> 9711c69742739c1a48c496be321469f2 DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/8/#post-85967 Thu, 21 Jun 2012 12:39:24 +0100 Oh wow, I had no idea there were different types of it.. Though the doctors didn't really tell us anything so it's obvious that we won't know anything.
My dad would have to go to a hospital in Canterbury if his kidneys dropped below 20%, or something. I don't know if there are more than one but, yeah. Heard about Kings. That's where they sent his…[Read more]

]]> 149db3c1e14ae1798e5cbfe0df7438fa DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/8/#post-85969 Thu, 21 Jun 2012 12:33:56 +0100 Hey :). Thank you so much, I'll be sure to ask questions and things. I'm sorry to hear about your mum. I try hard not to cry at all because it just gets me down, it helps to just do bits around the house and not think about awful things.
Lots of love to you too.
– Dee

]]> 1f5fe653ce857a241d4fa046c3c1a8ec DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/8/#post-85965 Thu, 21 Jun 2012 10:04:00 +0100 Thank you for the kind words, they mean a lot. It's helpful to know that there are other people who are in the same or similar situation. I'm being as strong as I can; we are a close family, but not the hugging and "love you so much" type. Just kind of sensible and quietly supportive type I guess.
My dad is in the Medway Hospital (which seems to…[Read more]

]]> 26aabd896e1cb4aa5ccd7bb8ee9a28a5 DerynAmbrose replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/8/#post-85963 Thu, 21 Jun 2012 09:34:44 +0100 My dad, aged 56 (57 in July) was diagnosed with Myeloma stage 3, recently.
He was told many things before cancer.
Trapped nerve > chest infection > shingles > enlarged organs > myeloma > lymphoplasmacytic lymphoma > now myeloma again.
He's really sick, and I'm terrified. He has long hair and a beard and I've never seen him without it and when…[Read more]

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