dengilbert

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  • #119428

    dengilbert
    Participant

    Thanks for your replies Lyn and Jeff appreciate them , when we went back to pick up his drugs for cycle 5 I happened to ask the Research Nurse if my Husband could go a day earlier for his blood test next month, she said he needs to go on the Thursday as we see the Consultant on the Friday, something to do with taking the Cyclophosphamide on a Wednesday and if he had bloods taken before Wed they would give a false reading!!!
    Now no one ever mentioned this to us before and thinking of it last time we went on the Tuesday and his readings of PPs hardly dropped so maybe that’s why ?? Has anyone else experienced this ??
    Thanks folks it helps to talk about these things to people in the same boat !!!
    Take care best wishes Denise xx

    #119007

    dengilbert
    Participant

    Hi Michelle,
    Really good news for you !! It gives hope to the rest of us on CDT ?!!
    My Husband is on cycle 4 of CDT and is progressing well so your news will give him a boost !!
    Continue to live your life and all good wishes for your future … There is Hope !!!
    Best wishes Denise x

    #118927

    dengilbert
    Participant

    Hi Alan sorry to hear about your Chest Infection! Unfortunately that May have masked some of your symptoms ?
    Hopefully the Antibiotics will do their job and you can get back on the Chemo?
    We are more sceptic now about the No pain no gain addadge !! as last Cycle my Husband had a real bad month of feeling really low as his rib pain was quite painful and we assumed that he would get a good drop in his PP,s however it didn’t !! He has plateaued at 9.6
    However so far on cycle 4 no rib pain!! So we really can’t predict anything on this journey!!!
    As for your taste buds I can remember my Husband having problems eating as everything tasted awful he lost about a stone and a half and he really looked ill !!
    However his Research Nurse said just eat anything ….. Crap basically and he did Jellies with fruit in are his favourite !! once the Steroids kick in your appetite will improve dramatically !!! kind regards Denise

    #118734

    dengilbert
    Participant

    Many thanks for your replies Stanley and Mavis, we saw Malcs Consultant yesterday and mentioned the Rib pains he seemed to think the same no pain no gain !!he advised taking Paracetamol , but for someone adverse to taking tablets it’s not easy convincing him to take them.
    His PP,s haven’t dropped much this month possibly 1.5 but his Consultant is pleased and he has had 2 massive drops previously!! he did say however next month might show more of a drop?
    Anything a step closer to remission is a bonus !! And as you say Mavis keep going !! We will and I’m thrilled that you both did so well on CDT it gives us both encouragement that it will work !! Keep well both of you and I will let you know how he does, the Doctor has changed his start day of cycle 4 to Wednesdays as he gets his Zolendronic Acid Infusions monthly on a Tuedsay plus Dex plus Cyclo and last month he was really quite poorly so hopefully that will make a difference for him ?? Kind regards Denise xx

    #117719

    dengilbert
    Participant

    Thanks for the replies folks he doesn’t seem too bad but has to get up several times in the night for the toilet !! Is that normal ? Good job he’s not on Frusemide !! Lol

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