Myeloma Forum | deniseb451 | Activity https://forum.myeloma.org.uk/members/deniseb451/activity/ Activity feed for deniseb451. Tue, 07 Apr 2026 03:18:18 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 1f9d6a819c0b1b95410c6436be9c53fc deniseb451 replied to the topic Due to have stem cell transplant Jan 2018 any advice about getting through it in the forum Treatment https://www.myeloma.org.uk/forums/topic/due-to-have-stem-cell-transplant-jan-2018-any-advice-about-getting-through-it/#post-135829 Tue, 07 Nov 2017 10:28:22 +0000 Hi Emma, I’m 55 and was diagnosed in May. I had my chemo on 16 Oct, stem cell on 17 Oct and I came home 15 days later (last Friday).

My harvest went well and I got it all done in 4 hours, it doesn’t hurt, I just felt a bit sick during it but the nurses sorted me out as soon as I told them. I have to admit That when I started to feel off I dec…[Read more]

]]> 9d0378be467cc42808cbebab1370333e deniseb451 replied to the topic Due to have stem cell transplant Jan 2018 any advice about getting through it in the forum Treatment https://www.myeloma.org.uk/forums/topic/due-to-have-stem-cell-transplant-jan-2018-any-advice-about-getting-through-it/#post-135829 Tue, 07 Nov 2017 10:28:22 +0000 Hi Emma, I’m 55 and was diagnosed in May. I had my chemo on 16 Oct, stem cell on 17 Oct and I came home 15 days later (last Friday).

My harvest went well and I got it all done in 4 hours, it doesn’t hurt, I just felt a bit sick during it but the nurses sorted me out as soon as I told them. I have to admit That when I started to feel off I dec…[Read more]

]]> 6c189b7538d07ee02284e930382c844f deniseb451 replied to the topic Timescales in the forum Treatment https://www.myeloma.org.uk/forums/topic/timescales/#post-135123 Fri, 22 Sep 2017 11:01:18 +0100 Oh gosh, that is why I asked for the groin line. We live an hour away from the hospital so I didn’t want to be tracking there every week to get it cleaned and checked. I just hope they get enough cells! The problem with most of this is the unknown – once you are in the middle of the next phase, you just get on with it, because you have to don’t…[Read more]

]]> 0a18a25d0a8516de59b50df1dc709c54 deniseb451 replied to the topic Timescales in the forum Treatment https://www.myeloma.org.uk/forums/topic/timescales/#post-135112 Fri, 22 Sep 2017 10:22:51 +0100 Hi Helen, I’m having my harvest on Monday (doing jabs now). I have been told 3 weeks to transplant. When I asked why 3 weeks (I’m new to this and had assumed it would be straight away), I was told its all a matter of scheduling. I’m at Sheffield Hallam hospital so it could be different elsewhere. Because of this ‘delay’ I’m having the line in my…[Read more]

]]> 236e6ffdf370556fa50f32a2febad373 deniseb451 replied to the topic Hair Loss in the forum Side-effects https://www.myeloma.org.uk/forums/topic/hair-loss-2/#post-135110 Fri, 22 Sep 2017 10:09:52 +0100 Thanks annlynn. I was planning to not have wigs – not sure why I’ve just taken against them. I’ll see how I go.

I am though, really heartened by the fact that you went to tenerife so soon. I had just started to feel like me again after finishing the VDT cycles a couple of weeks ago then I started my jabs for the harvest and am feeling off colour…[Read more]

]]> 861a508ef9723eed572fe64c532f4b16 deniseb451 replied to the topic Hair Loss in the forum Side-effects https://www.myeloma.org.uk/forums/topic/hair-loss-2/#post-135110 Fri, 22 Sep 2017 10:09:52 +0100 Thanks Ann. I was planning to not have wigs – not sure why I’ve just taken against them. I’ll see how I go.

I am though, really heartened by the fact that you went to tenerife so soon. I had just started to feel like me again after finishing the VDT cycles a couple of weeks ago then I started my jabs for the harvest and am feeling off colour…[Read more]

]]> 9fc495ddfd7c9b3947f08c69a7dfc225 deniseb451 started the topic Hair Loss in the forum Side-effects https://www.myeloma.org.uk/forums/topic/hair-loss-2/ Wed, 20 Sep 2017 13:34:31 +0100 I was diagnosed with MM in May and I started treatment 3 days after I was told. I had no symptoms apart from a slightly off blood result when I had a well woman check. Very shortly afterwards I had a biopsy and the result was very unexpectedly high. It was all incredibly quick.
My paraprotein was only at 9.8 and after 2 cycles of VDT it was down…[Read more]

]]> 989e992d5686e06f894d2ab0fe96f31f deniseb451 became a registered member https://forum.myeloma.org.uk/activity/p/50371/ Thu, 06 Jul 2017 18:58:49 +0100 0