denisgriffin replied to the topic 18 month diagnosis in the forum Newcomers 7 years, 8 months ago
Hi Steve,
Yes the psychological side can be as tough as the physical. Good advice from Tony as you will find talking with other patients and their families a real help. They have travelled the road you are on.
Denis
denisgriffin replied to the topic 18 month diagnosis in the forum Newcomers 7 years, 8 months ago
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denisgriffin changed their profile picture 7 years, 8 months ago
denisgriffin changed their profile picture 7 years, 8 months ago
denisgriffin replied to the topic Facebook pages for Support Groups in the forum Miscellaneous 8 years, 4 months ago
Hi Sara,
We have the same story of very low traffic on Facebook at the Bath Myeloma support group. Ours is a Facebook closed group rather than a page so only people signed up for the Facebook group can see what is posted. We thought this might help but it seems not, I confess that we have not tried hard to promote. As Graham’s comment the n…[Read more]
denisgriffin replied to the topic How many of us are out there? in the forum General 11 years, 1 month ago
Hi all,
I have found the answer to my question, its 160!
That is the number of letters that have been sent out from RUH hospital Bath to promote our first Bath Myeloma Support Group meeting.
This is the number of myeloma patients in their catchment area, which includes areas in Wiltshire and Somerset. Our first meeting is on Feb the 12th. I…[Read more]
denisgriffin replied to the topic How many of us are out there? in the forum General 11 years, 1 month ago
Hi Ann,
I have made some progress on a support group. It’s to be based in Bath, that where I receive my treatment.
We are having the first meeting in Feb, the nearest contact to Mere I’ve recieved is for Beckington, Somerset.
Denis