Hi Julia,

Sorry to hear that you are still waiting but you are in the “system” and at last things are starting to happen. Terry had his 4th and final chemo on Friday that completes cycle 1.

The hospital bed should be arriving with us on Monday, so Terry should be able to come home Tuesday, he is quite worried about coming home about how we will…[Read more]

Hello Julia,

glad you got out of the house for a bit of normality, it seems at times that our world revolves around the Myeloma (which is true at the minute ). I am sure your son will work through  the shock and when treatment starts to happen will feel more able to cope, we find it hard seeing our Hubby’s in this state it must be equally hell…[Read more]

Hello Julia,

Commode duties certainly count in my book as “mucking out “. It is all very scary at the pace with which things seem to move, but lets hope after Friday things will move at a good rate for you and Steve and the action will really start, that too is scary but in a sort of good way, because you feel that help is at hand every one is…[Read more]

Hello Julia,

Managed a bit earlier night last night, another very hectic day, had to get help in early evening to trim the goats feet, mornings taken up with feeding watering and mucking out, then off to hospital 40 mile round trip then the evenings with much of the same plus all off the extras that come along.

How our lives have changed just…[Read more]

Hi Julia,

You have mention  “gout”, Terry supposedly had gout (that what are gp said) in his ribs !!!!!!!!

the  myeloma consultant raised his eyebrows at this news,.Terry also has had pain in back and ribs for a number of years, GP said gout for his rib area and wear and tear for his back.

When our emergency A&E admission on the 21st may due t…[Read more]

Hi Julia. you to are burning the midnight oil !!!

Terry is still doing well with no side effects to the 2nd chemo treatment (so far so good ) and the pain remains manageable. Sorry about the “commode ” but as you say needs must, Tonight I have just ordered a “older persons high seat arm chair ” for when Terry comes home.

When I read about your…[Read more]

Hello Julia,

So very pleased that you have transport sorted out, it is a worry how to get our stiff/unmobile men into vehicles, its just another “thing” that we have to ask for help with.

All the very best to you both and roll on next week, I am very glad that you like to chat as I also find it a great help, that some one else understands just…[Read more]

Hello Julia,

Sorry for the delay, wild weather here in west wales and we lost the internet ( not that  rare ).

Hope Steve is feeling a little better now that the pain is under control.For the 1st time in months terry described his pain as MILD when nurses asked him today, he has at last got a really effective pain management plan in place and…[Read more]

Hello,

Born and bred in Derbyshire but moved to  Carmarthenshire Wales 13 years ago and run a smallholding.

Good news on your appointment, please keep in touch, I agree this Myeloma at first makes you feel very  isolated no one has heard of it and you think why me/us with this rare nasty little beasty, But when you comes to terms with it (…[Read more]

Hello,

The spinal brace  in  Terry’s case is only removed when he is in bed.

it was made for him at the hospital, it is like a turtle shell around his front and back ,from just under the armpit area to his hips.(hard plastic type ) a head rest at the back with 2 steel type rods that fit at the front that then go up to a chin rest that keeps hi…[Read more]

Hello,

my husband was diagnosed on the 22nd May, after his sternum fractured and he was admitted to A&E, he already had a “unexplained spinal fracture ” that our GP was treating with strong painkillers.

Once the ball got rolling ie ct scan bone marrow biopsy the team have acted very quickly.

Hubby is 62 normally very fit and active, he has…[Read more]

Thank you for your encouragement, and yes we woman are very strong when we get the “bit between our teeth “.

Hope you had a good day yesterday, your 1st email really bucked hubby up, the shoes and socks  made him laugh and he said that will be his target also, little steps that will get us through. It will be a tough journey and we will like you…[Read more]

Hello,

thank you so much for the post and the encouragement, I have printed your reply and will take into hospital to show him tomorrow  this will really give him a boost.

Thank you so much, for taking the time to care I will sleep a little better tonight.

Hope you have a successful  day tomorrow, and to you also the very best of w…[Read more]