Steph’s make fantastic wives and spotters. My wife is also called Stef and she always spots things before I do and knows what’s going on before most others. I’d probably be dead without her. So here’s to the Steph/f’s out there.

s

OK, So I went to the local Chemist here in Germany and asked for a face mask (Gesicht Maske). The first chemist said they didn’t have any and suggested I tried the German equivalent of Boots. They had none so I went to another Chemist and they had loads so I bought 10 pleased with myself. This was in October prior to a trip to Paris. Now I’m back…[Read more]

Having originally come from Leicester it does not surprise me that the hospital has invested heavily. The whole city over the last 20 years has invested heavily in infrastructure and culture. I remember as a teenager / 20 something, we always went to Nottingham for a night out but now, knowing the violence and trouble that regularly happens at the…[Read more]

Thanks for that Tony, will keep you posted.

Richard

Hi Ang, we know about stress for carers, before I went in my wife didn’t sleep properly, was verytired, worried sick and had a lot to do. Now I’m back, she slept well last night – can’t think why because she had to share the bed! Anyway I believe what is needed is as much help for the carers as for the sufferers because their stress levels are far…[Read more]

Hi Tom, looked at your bloods, now in my amateur status the HB is heamoglobin – red blood cell count. PLTS is platelets, they have to be in a certain range to ensure your blood is not too thin – doesn’t congeal or too thick – can’t be pumped round by the heart. The important one is the Neuts – white blood cells I believe average is about 4, below…[Read more]

Me being a cynic I see IT specialists as the modern Alchemists – They promise Gold and never deliver. Cost an arm and a leg as well. ha ha.

Dear San, I am so sorry to hear about your loss, during the last few weeks in Hospital, I had no internet access. I can’t add any more to what’s been said but I do hope you are coping OK. While her struggle is over there are plenty here who are fighting on and some may need a bit of your mother’s determination. I am sure she was ready to go in her…[Read more]

Hi everyone,

They let me out early on payroll yesterday. The Nurses (wardens) were really good whilst I was in solitary and for good behaviour plus my cell count improving enough they let me out. As everyone says, it is not easy. Carol. I had 5 days of vomiting, upto 5 times a day, 2 days with a bit of Diarrhea and then the temp spike upto 39.4.…[Read more]

111? that’s high, I was told that anything over 120 is dangerous because the blood thickens. The most I had was 104. Now time to calm down, weight loss is normal, I lost 15kg and am now back up to almost my original weight. PP of 50/60 is a big drop, while others talk of having pp’s of below 20 or ideally 1 or 2, it is only one type of indicator…[Read more]

Thanks Ang,

The support group we attend here in Germany is fantastic, they know how bad my German is but they are always positive and willing to help. The big thing is that someone there has gone through what we are going through and no matter how vague or weird a side effect may be, there is always someone that has had it and knows how to deal…[Read more]

Hi Izzie,

I can’t add much more about how usefull this site is and how to deal with the illness. My wife worries far more about it than I do, she watches my PP levels, checks my blood results, insists the medics look at every alternative before settling on a course of action. As for me, I do have a little bone pain sometimes but I try and lead a…[Read more]

Hi Carol, I only managed 10M /kg so you did very well, I am having tests this week, so far I’ve had heart – no problem, lungs – a bit of a shadow on the right lung but the medic doing the test wasn’t worried as I had cycled up a steep hill to get to him. ENT on Tuesday and hand in the urine, stool samples on Friday. It’s all go. Oh yes, get the…[Read more]

HiTtom, had the same problem logging on a couple of weeks ago, I made sure I had completely looged out, closed the window and then was able to log on again. Have a good break, there’s a lot coming up for you I’m sure.

Ditto, we live in hope but we must stay positive about our own situations. All the best for the future.

Richard

Hi Ang
Well, at least we will both be able to communicate with the outside world, all the best for the next few weeks, Thumbs up!

Richard

Well, at least we will both be able to communicate with the outside world, all the best for the next few weeks, Thumbs up!

Richard

Hi Ang, all moving along nicely with graham then. I’m sure the SCT won’t be longer after the consent. I’m dreading coming back home after because my wife has already got plans to put me in quarentine. Our daughter will also bring back various forms of mutant strains of bacteria and viruses from school that I will have to be wary of but I’m sure…[Read more]

Hi Carol,

Good news about the stemcellharvest, lets hope you have enough. Just the SCT to go now and then the long road to recovery for all of us. I have my date for going in, that’s 10 Jan. The week before it’s a trip to the dentist, an ENT specialist, lung and heart checks. Already received the container for urine test and a stool test as well…[Read more]