Hi Rosie,

I don’t come on the site too often at the moment and it was my wife that told me about your post. I’m really sorry about your loss and that you have a young family. I am sure there will be help and support for you and I think we all tend to find a way of managing / coping even though it is painful. Anyway, our thoughts are with you,…[Read more]

Hi there,

I did and still do suffer breathing difficulties but mainly when climbing stairs. I can ride my bike or carry out moderate exercise without too much trouble but the momenmt I need to physically use my legs, I am out of breath. With me initially it was because I had pneumonia and I still have some lung damage but if I remember rightly,…[Read more]

Or rather, being cynical, the big chemical companies will lobby hard to prevent anything that may question the safety of their products. For example, how many years after the Manchester Woolworths fire was legislation brought in to control the type of foam used in furniture. Or how many years was it after smoking and cancer was linked before…[Read more]

Hi there,

For most people I would say diagnosis happens pretty quickly after a bone breakage. I believe the X rays will show that the damage is caused by bone weakening such as osteoporosis rather than stress or shock such as falling or something heavy impacting against the bone. Another key form of diagnosis is through illness and the body’s…[Read more]

Hi there,

Can’t share experiences on the trial because I live in Germany and the medical system here is different although the treatment seems to be the same. What I will say is that your situation is similar to ours in that my daughter was 5 when I was diagnosed. We didn’t know what to say to her because of her age – just what do you tell a 5…[Read more]

Hi Tom,

Sorry to hear it’s been confirmed but with a bit of Positive Mental Attitude there’s no reason why can’t achieve a second remission and for a long time.

Hi Tom,

With my last post i forgot to mention that in April I had an increase in pain in my shoulders exactly where it was before. Like you I thought it was on the increase and informed the mediccs. They arranged an MRT and it showed no worsening at all since the last one November last year. Every blood test since then has come back with the same…[Read more]

Tom,

Our fears always play on our minds and we always think of the worse. Wait until confirmation one way or the other from your medics. There might be a small chance that it’s unrelated.

Done

Hi there, just read your post and I think you can still be optimistic about your future. Like you I had my SCT, prior to it my IgG had fallen from 52 to 36. I fortunately live in Germany and unlike the UK, they still did the SCT despite my proteins being way above acceptable levels in the UK. Post SCT my IgG had fallen to 24. Since February, they…[Read more]

Hi eve,

I hope Tuesday went as you planned, I am sure you gave Slim a good send off and now, as you say, you have a new journey to make alone. However, that doesn’t mean to say that you will be without us all on this site. Theoretically, you have no reason to be here but you have become a Myeloma Oracle and your knowledge can help so many. I…[Read more]

Hi there,

I think you need to check if the test was done at the same laborotory, different labs can give different results. You also need to check other indicators such as the light chains. I would have thought that your Consultant would look at a range of indicators before making a decision. Just as an indicator of how PP’s can alter is that the…[Read more]

Hi Carol,

Although selling a house / flat is inconvenient, it is not hard to do from overseas. I sold a house last year, my solicitor was fine, everything was done over the internet and any important documents were signed and scanned before posting. I believe for most things except the final contract, a scanned copy is acceptable. My solicitor…[Read more]

Er, Andy, can you switch the predictive text off? If it’s crap, why use it?

Dear Eve,

We are both very saddened to hear of Slim’s passing. We have read your ups and downs for the last 18 months since my diagnosis. We knew it was hard for the both of you, maybe more so for you – Marines tended to take things in their stride from what I remember of the brief contact I had with them (Scary people!). I doubt if anyone else…[Read more]

Hi Jeff,

if I remember rightly, in the early 90’s the company you worked for started reducing its workforce by investing in new technology, you’ll know more about it than me. But, if that is so then the incidence of MM within former employees is even higher and on that point I think it really needs serious investigation. I am happy to contact…[Read more]

So, you’ll be in the 70% success group. Good luck.

Richard

Hi,

Rally sorry to hear about your dad, no matter what people say it can’t take away the way you feel and the despair that such news bring. However, for your question, it is hard to give an answer, it really is about the individual person – how much fight they have in them. I’m sorry I can’t be more specific but there is no specific answer.

Hi there,

Yes they tell all of us under 65 that it is uncommon but there seems to be a lot of under 65’s with it. The feeling poorly is normal, I don’t know what your consultant has told you but immunity system is severely compromised hence feeling ill all the time. I am surprised that you haven’t started Chemo yet, did they give any reason? As…[Read more]

Unfortunately, we all know that horrible time will come, let’s just hope that your consultant is thinking ahead rather than respomding to some specific data. All the best and I hope your wife’s remission continues on.

Richard