Stan <Meagre

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  • #134719

    didtobuy
    Participant

    I started with frequent tests like every 3 months and slowly stretched them out to once a year and more and continued playing hockey for another 15 years.  I try to not think at all about an MGUS diagnosis. I was really concerned many years ago with the lack of advances and stopped going to support group meetings because I was always the youngest by far and the faces were always changing. I recently went back and I’m still one of the youngest at 55. Now with some huge advances and exciting news in research I have big hopes that I may be cured in my lifetime or at least live in some form of maintenance therapy if I should progress to full blown MM.

    #134718

    didtobuy
    Participant

    I was 37 18 yrs ago and diagnosed with MGUS one day after my younger daughters first birthday party. I thought the worst and was devastated.  Here I am so many years later, and still working hard and happy to see so many advances lately for MM.

    I  would recommend that you remain very positive and include fitness in your daily routine.

     

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