Im out and at home. Didnt expect the do’s and dont’s though. Big no no for lots of foods I like and no alcohol. Tablets for up to 9 months.

Still home and had a home cooked meal – absolutely brill.

How about you Louis any ideas on escape date?

not sure what happened but submitted blog today which did not take.

Sa and Sun bad days neutraphils in my boots. Monday they were 0.38 and a step change in my demeanour. Today 0.96 and I went off he ward without a mask. If they trend p on tomorrows results then I am going home tomorrow.

Scary about what not to eat for 3 months, no Brie or…[Read more]

lll, looks like I may be back in land of living. as neutrafils got low I crashed physically. that , being sick, having runs and not eating pretty ba. systolic hit 98 through lack of hydration. yesterdays count was 0.01 and today 0.05. foo diabolical when ou are down anyway and a sore thrat does nothing. Thought sickness had gone and Tina came in…[Read more]

Louis, Tina always says we pay for things in life – well, other than lack of sleep or vivid dreams this morning at 6am obs I threw up again followed by 3 bouts on the loo all before 8.30. But watching the cars on the road between bouts sort of helped.

Waiting for Tina to arrive and low/behold another accident on A14 which she is stuck…[Read more]

Had a room change yeserday moving 4 floors closer to my maker. Views are over fields facing Haverhill. Alos means I can get undressed without closin the blinds and turning light out. Had a Eureka moment where I have had 3 bowel movements after waiting 6 days, talk about luxury. May also stop the sickness.

have drunk a small/ lucozade an the very…[Read more]

Louis, been a bit of a sleepy 2 days along with bile and foam coming up. Food is not great made worse by not tasting anything correctly. I am still allowed out as NY cells have not reached neutropenic and allowed a window open. Everything is according to plan. Trying lucozade a tiny bits or marsbars tonight. Feeling tired and now getting light…[Read more]

I have to corroborate what Andrewr stated that reading support on here mean’s I am not the only one going through this.

Melanie asked the docs what the score is, we are each different in the disease, treatment and body make up, they are best placed.

Managed soup and roll yesterday and also today along with chicken and jacket spud. Trying get the…[Read more]

Don’t know what happened last couple of days but very little yesterday as I kept being sick. Docs saying to nearly for the Mephalan and are the anti sickness drugs working – does a falling trees make a noise if you are not there?

So the cells went back yesterday and they tasted of tin tomatoes. My wife Tina missed it because the ward signs barred…[Read more]

Thanks Mike I will keep posting but how vivid not sure.

Chemo in yesterday pm and Shepard’s pie tea time – bad move. Talking on big white phone through the night. If you suffer sickness make sure you tell the nurses as they have lots of various anti sickness drugs. In fact any issues let them know. Share Share Share it really helps.

Dry toast…[Read more]

Louis good luck for tomorrow.

I am having Mephalan this afternoon and the stem cells 24 hrs later. I guess this is the least positive I have been throughout the Myeloma journey. Not worried about the chemo as I just ha be to get on with it. The scary bit is hoping the cells take. Trying to climb over this obstacle in my head but it is…[Read more]

So now at addenbrookes having been assigned a bed.

This is it, I assume I wait for the doctor tomorrow and then start the chemo. Looking forward to the next 3weeks in a perverse way.

David, 2 years sounds a longtime. Would you mind explaining whetehr you were in remission at SCT and the PP count etc? I am at zero PP and feel great. The only reason to go SCT is to increase the avg 18 month remission.

Andrew

15 years hat is absolutely brilliant and now gives me a new goal.

Can you explain what you mean by memory fades? Do you mean memroy loss or you forget how bad the first one was?

Transpiresthebed allocated did not come to fruition so now 3 weeks behind schedule. May be spending Xmas in hospital the way its going. Maybe New Year as well…[Read more]

Toby, read my experience on the stem cell harvest. I was the one in a year that Addenbrookes get. I managed to pass out but also gave 760 Million cells in the 2 hours, which the equivalent of 4 stem cell therapys worth. I suggest some one goes with you as especially if you have a anula in each elbow as you cannot bend your arm. Makes reading and…[Read more]

Brilliant news just what anyone wants to hear. I have completed all tests and have given up stem cells. Get a central line fitted 3rd Nov and bed availability I go in on the 4th. Scared is an understatement but needs to be done to increase remission time.