[ds2021Participant]

I just wanted to pop on to update further. After waiting for a week for the results it turned out they had lost my sample so I had to do another Urine sample for the Bence Jones test. I waited for 3 days before contacting the Dr for the results. Another agonising 3 days of panic attacks!

I got the results this afternoon and no Bence Jones Protein was detected so no Myeloma!

I wanted to thank you all for listening to my worries and fears and especially thank @mulberry and @lilib for their kind responses.

I wish you all the very best xx
Thank you

[ds2021Participant]

I just wanted to do an update. I had an awful long weekend of hideous anxiety culminating in a panic attack this morning. I called my GP for my test results and thankfully my blood tests all came back normal (full blood count, ESR, CRP, LDH and Rheumatoid screen). Unfortunately I’m still waiting on the Bence Jones urine result to rule out Myeloma completely. I am feeling a little more relaxed (though not much – still heightend anxiety). I just can’t wait for this result to come in although I read it could take up to 2 weeks for that result. I really hope not, I just hope there was a little delay because of the bank holiday weekend. My back has been hurting and that has caused me to panic ALOT even though my back wasn’t hurting before all of this came up. I am adding 2 and 2 together and getting 5 I think. This testing period has without a doubt been the worst time in my life so far! I’m trying to keep positive and your kind words @mulberry and @lilib have been a comfort so thank you. I’ll be back to update with the results when I get them.

[ds2021Participant]

Thank you so much for getting back to me Mulberry. Yes all of those things have been keeping me from losing all hope and I do have to keep reminding myself of that. I had a normal blood screen only 3 months ago so I would have thought that if I was having pain that WAS related to Myeloma the blood tests would not have been normal 3 months ago. I know that being a young female doesn’t completely rule me out but it does make the chances much lower. I think what is messing with my head so much is that it was completely out of the blue the Dr didn’t say that is what they were testing for but only as a precaution it was a letter to the GP that I got a copy of that simply said of the findings in MRI and to send me for a full blood screen and myeloma screen. I obviously googled it because I’d never heard of it until that very moment on Christmas Eve when I opened the letter. Since then I’ve done nothing but worry. So much so I’ve had to refer to some anxiety workbooks in an attempt to control the anxiety. I know there is no point in worrying until the results come back but I think it’s human nature to fear the worst when you see the C word. Everyone on here has been so kind and helpful at putting my mind at ease (if only for a little while). I wish I could just get it over and done with. Friday is test day and then who knows how long the wait for the result will be. All I know is it will be an agonising wait.

[ds2021Participant]

Thank you for your response Lili. That is helpful as I am finding myself on a roller-coaster of thinking none of what is happening to me is common with Myeloma but then I’ll read something that goes against that and I keep circling back to the bone issue and the anxiety goes up again. I’m sorry for your Husbands diagnosis. I feel like it is being discovered in reverse (if ‘it’ is even being discovered). I am truly beginning to feel like Rheumatoid Arthritis is the likely culprit as I started using tape on my knee yesterday and it feels a little improved today. I have medical anxiety as I have suffered many years with debilitating pain with Endometriosis (finally being managed with medication). I wish you and your husband all the best. Thank you for taking the time to quell the fears of a worrywort!

[ds2021Participant]

Just to add (if relevant) I am a 37 year old female. Healthy apart from knee pain and Endometriosis. I have had my blood tested lots of times (normal screening) and NEVER had an abnormal result. My brother was recently (1 year ago) diagnosed with Rheumatoid Arthritis. I’m inclined to think that is my issue but I tested negative and also a few years ago too. Everyone on here seems to be talking about back pain but no one is talking about the knee. Perhaps this finding in the bone is just an anomoly (perhaps even a normal variation) but you can’t help but worry when you find out you are being tested for cancer. I guess I am just trying to quell my fears and looking for help in doing that. Why would they test for it if they didn’t think there is a chance that I might have it? I suffer quite badly from Anxiety and this blood test request has ruined my Christmas. I tell myself that the chances are quite low, I don’t have symptoms but I keep coming back to the ‘what if’ and it’s driving me mad. I can’t wait for the test and result to be over with so at least I can get on to the next stage of what to do about it no matter the result.

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