Hi Andy
I’m with you all the way mate. I’m on day 8 of cycle 3 of pomalidamide. Can’t say it’s an easy ride for me, but it’s difficult to distinguish if its the disease, treatment, or other infections that are making trips to the hospital my social life at the moment!
I’m undaunted by this and still plan for a 4 day trip to Florence in 3 weeks…[Read more]

Hi Helen. Had the same problem with the blond issue. My hairdresser (the local college) does a "shoeshine" for me. Bleach rubbed on the hair with foil, avoiding the scalp. Perfect. Good luck and enjoy your break.
😎

Hi Helen. Had the same problem with the blond issue. My hairdresser (the local college) does a "shoeshine" for me. Bleach rubbed on the hair with foil, avoiding the scalp. Perfect. Good luck and enjoy your break.
😎

Thanks for posting quite an upbeat account of your new treatment. Like you it appears that Revlimid has finished doing its magic for me after 15 untroubled months, and the spectre of " what next" has been keeping me awake most nights. It's good knowing that a new road in our journey isn't as dark as we sometimes imagine. Keep going Dai and…[Read more]

Thank you for letting us know about your very lovely mom, I have been carefully watching the site for news of her as although I have never met her, she touched me by her strength, kindness and her humour in her posts. I have been concerned for her and hoping she was not suffering. I hope that your memories of such a lovely woman help you and your…[Read more]

Hi Helen.
I too was a nurse and initially was going to go back to work after my first SCT ( I worked all the way through my CDT ) until I woke one morning and thought about all the things I had been planning to do when I retired 8 years from then and was thinking I'll never do them now. I then decided that I would go for early retirement so that…[Read more]

Hi Jean.
I had bone pain in my arm/shoulder prior to it fracturing for about 3 months. It started as a dull ache which I put down to muscle strain, but in the weeks before the pathological fracture it was very painful. An x ray taken the week before was inconclusive and therefore no action was taken to prevent the fracture. I would urge not to…[Read more]

Wonderful. Thanks.

I'm an old dog and this is a new trick, but got there.>:-) Well done team.