ellen changed their profile picture 1 year, 7 months ago
courtneymyelomauk and ellen are now friends 3 years, 2 months ago
ellen replied to the topic Blood Sugar while taking Steroids. in the forum Side-effects 6 years, 7 months ago
I am sorry that, as yet, no one has replied to your post. It may be that no one who has seen your post has had the same issues as you.
My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.
You are quite right that steroids can increase levels of sugar in the blood and in some (rare) cases can bring on steroid…[Read more]
ellen replied to the topic Blood Sugar while taking Steroids. in the forum Side-effects 6 years, 7 months ago
I am sorry that, as yet, no one has replied to your post. It may be that no one who has seen your post has had the same issues as you.
My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.
You are quite right that steroids can increase levels of sugar in the blood and in some (rare) cases can bring on steroid…[Read more]
ellen replied to the topic Myeloma XI Trial maintenance in the forum General 6 years, 9 months ago
Good morning Lorraine
Its Ellen here – I work with Debbie at Myeloma UK.
As far as we know, the trials office were going to issue letters to the consultants for them to pass on to patients so it may be an idea for your husband to get back to his consultant to query this.
I hope that is helpful but please do contact us if you have any…[Read more]
ellen replied to the topic Myeloma Info Days – East Anglia???? in the forum General 6 years, 10 months ago
Good morning Mr Allum.
It may be best if you could email the Infodays team at infodays@myeloma.org.uk
With best wishes
Ellen
ellen replied to the topic Costa Coffee Northwood in the forum General 6 years, 11 months ago
Dear Ms Richards
Thank you for posting on our Discussion Forum, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that no one has replied to this post as yet. I hope you don’t mind if I make you aware of some potential sources of support which you may find helpful:
• Talk to someone. The Myeloma Inf…[Read more]
ellen replied to the topic Costa Coffee Northwood in the forum General 6 years, 11 months ago
Dear Ms Richards
Thank you for posting on our Discussion Forum, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that no one has replied to this post as yet. I hope you don’t mind if I make you aware of some potential sources of support which you may find helpful:
• Talk to someone. The Myeloma Inf…[Read more]
ellen started the topic Myeloma Infoline in the forum Off topic 6 years, 11 months ago
The Myeloma Infoline is currently available Monday – Friday, 9am – 5pm (closed weekends and some public holidays). We aim to have at least 80% of calls answered first time by a Myeloma Information Specialist and are committed to providing the best quality service to anyone who calls. We are trying to gauge if there is a need to extend the hou…[Read more]
ellen replied to the topic Not Diagnosed – Seeking Information in the forum Newcomers 6 years, 11 months ago
Thank you for posting on the Myeloma UK Discussion Forum. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK. I am sorry that you haven’t had any replies to date – it may be that no one on the forum has had a similar experience.
Thank you for taking the time to outline the background information – your situa…[Read more]
ellen started the topic Get involved (London area) in the forum General 7 years ago
Hello everyone
I have been asked by Becky, the Macmillan Patient Experience and User Involvement Project Manager at UCLH to make you aware of some opportunities for patients and carers to help shape NHS services and make a difference in north and east London and west Essex.
Becky says:
To be eligible, you (or the person you care for) must have…[Read more]
ellen started the topic Guilt in the forum Carers 7 years, 1 month ago
One of the issues which emerged from the first Myeloma UK Carers Infoday held in Newcastle earlier this year, was that carers have a very strong sense of guilt.
I wonder if anyone can relate to that or share your experiences for the benefit of others.
Ellen
ellen replied to the topic Raised blood sugar, cardamom trial in the forum Newcomers 7 years, 2 months ago
Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.
I am sorry to hear that your blood sugars have gone up to 17 from a normal (for you) of below 6. The steroid drug dexamethasone is one of the d…[Read more]
ellen replied to the topic Kidney failure in the forum Newcomers 7 years, 2 months ago
Dear Myrna
Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.
Some anti-myeloma treatments, alongside some supportive drugs such as zoledronic acid (Zometa®) and indeed the myeloma itself may ha…[Read more]
ellen replied to the topic Kidney failure in the forum Newcomers 7 years, 2 months ago
Dear Myrna
Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.
Some anti-myeloma treatments, alongside some supportive drugs such as zoledronic acid (Zometa®) and indeed the myeloma itself may ha…[Read more]
ellen started the topic Survey in the forum Off topic 7 years, 3 months ago
We have been asked to make you aware of a survey developed by Susan who is a final year student at the University of Buckingham. She is doing research on stress management by use of mindfulness, religious coping and social support. It takes about 8 minutes to complete.
ellen started the topic Survey in the forum Off topic 7 years, 3 months ago
We have been asked to make you aware of a survey developed by Susan who is a final year student at the University of Buckingham. She is doing research on stress management by use of mindfulness, religious coping and social support. It takes about 8 minutes to complete.
ellen replied to the topic 3,2,1-go! in the forum Newcomers 7 years, 6 months ago
Dear Lisa
Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.
Thank you for taking the time to outline the background information in your case – that is helpful.
Unfortunately as you may know at…[Read more]
ellen replied to the topic 3,2,1-go! in the forum Newcomers 7 years, 6 months ago
Dear Lisa
Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.
Thank you for taking the time to outline the background information in your case – that is helpful.
Unfortunately as you may know at…[Read more]
ellen replied to the topic Tremors in the forum Side-effects 7 years, 7 months ago
I am sorry that, as yet, no one has replied to your post. It may be that no one has read your post yet who has experienced quite the symptoms you describe. I hope you don’t mind me replying – my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.
The symptoms you describe may or may not be due to side-effects of the…[Read more]
