Dear Sandra, My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet no one has replied to your post, I hope this doesn’t put you off posting on the forum in the future, it is generally very supportive.

I am sorry to hear that your husband was diagnosed so late and that his kidneys had failed. A…[Read more]

Dear Sandra, My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet no one has replied to your post, I hope this doesn’t put you off posting on the forum in the future, it is generally very supportive.

I am sorry to hear that your husband was diagnosed so late and that his kidneys had failed. A…[Read more]

Dear Sandra, My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet no one has replied to your post, I hope this doesn’t put you off posting on the forum in the future, it is generally very supportive.

I am sorry to hear that your husband was diagnosed so late and that his kidneys had failed. A…[Read more]

Dear Sandra, My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet no one has replied to your post, I hope this doesn’t put you off posting on the forum in the future, it is generally a very supportive forum.

I am sorry to hear that your husband was diagnosed so late and that his kidneys had f…[Read more]

Dear Sandra, My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet no one has replied to your post, I hope this doesn’t put you off posting on the forum in the future, it is generally a very supportive

I am sorry to hear that your husband was diagnosed so late and that his kidneys had f…[Read more]

I am sorry that no one has yet replied to your post, it may be that no one has had a similar experience to the one you describe.
I hope you don’t mind if I try to answer your question, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK
I am sorry to hear that you are experiencing achy forearms after your t…[Read more]

Dear Karl I am sorry that no one, as yet, has replied to your post. I hope this won’t put you off posting on the Forum in the future. My name is Ellen and I am one of the Myeloma Information Specialist here at Myeloma UK, I hope you don’t mind if I try to answer your question.
It is good to hear that you have been in remission for a few yea…[Read more]

Dear Peter

I am sorry that, as yet, no one has responded to your post, I hope you don’t mind that I have tried to clarify things for you.

As you know, Acute Myeloid Leukaemia and Myeloma are different and as such are treated differently following many years of research in developing best current treatment and best current practice.

When Acute M…[Read more]

 
Good afternoon everyone. I hope you don’t mind me stepping in to clarify this a little if I can.

You are correct that myeloma is not considered to be a hereditary condition. We know that myeloma is not like some other cancers, for example some types of breast cancer, where a single inherited gene greatly increases the risk of developing it.…[Read more]

Dear Kim

I’m sorry that, as yet, no one has replied to your post. I hope you don’t mind if I try to answer your questions. My name is Ellen and I am one of the Myeloma Information Specialist at Myeloma UK.

I’m sure there are quite a few forum users who are under the care of Prof Cavenagh, he is a well-respected world renowned haema…[Read more]

Dear Kay

I am sorry that, as yet, no one has responded to your post. I hope this won’t put you off posting on the Forum in the future.

Sometimes patients who have had quite a few treatments for their myeloma –  and especially quite toxic treatments such as the high dose chemotherapy used during stem cell transplant – can experience problems with…[Read more]

Dear Val

I am sorry that, as yet, no one has responded to your post. This may be because no one on the Forum has experience of extramedullary plasmacytoma; I hope this won’t put you off posting on the Forum in the future.

As you know, plasmacytomas are areas of localised build-up of abnormal plasma cells which form lumps or tumours. These can o…[Read more]

I am sorry that no one, as yet, has replied to your post; I hope this won’t put you off posting on the Forum in the future.

Unfortunately bone damage, fractures and pain are common problems in myeloma. Patients who are receiving treatment for their myeloma should also be on a drug to protect their bones, to reduce calcium levels and to help w…[Read more]

I am sorry that you have not yet received  any replies to your post. I suspect that as your situation is quite a complicated one, that no one on the forum has similar experiences to share.
My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK; perhaps I can clarify some things for you. Liver function is monitored very…[Read more]

I am sorry that you have not yet received any replies to your post. I hope you don’t mind me responding, my name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.

I am sorry to hear that you dad collapsed and was hospitalised. This is quite an unusual and severe reaction and it may be that no one on the forum has h…[Read more]

 
Thank you for your post, my name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.
I am sorry that no one, as yet, has replied, this may be because hyperparathyroidism is rare and no one on the forum has experience of it.
Both myeloma and hyperparathyroidism can cause raised levels of calcium in the blood, but…[Read more]

 
Dear Laura
Thank you for your post, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.

 
I’m sorry that , as yet, you have not received any replies, please don’t let this put you off posting on the forum, it may be that no one has experienced the issues that you describe or that you post has been missed by for…[Read more]

 
Dear Suzi
 
I am sorry that no one, as yet, has replied to your post. It may be that no one has the experience of non – secretory myeloma. I hope you don’t mind me replying. My name is Ellen and I am one of the Myeloma Information Specialist here at Myeloma UK.
As you know, the majority of myeloma patients secrete a measurable paraprotein. Pat…[Read more]