Thank you Helen

You make a very appropriate point. I contacted Brett and asked him the question and this was his reply. I hope this helps clarify things.

The department is the Faculty of Development and Society at Sheffield Hallam University. The research is part of a masters in Health Psychology, therefore its purpose is to gain an…[Read more]

Good morning, I hope you don?t mind me responding to this topic, it is a question that is asked very commonly and I hope I can clarify some things.

Unlike some other cancers and diseases, like cystic fibrosis or some forms of breast cancer for instance, myeloma is not caused by a single inherited gene. However, people do inherit certain sets…[Read more]

Dear San

I am sorry that you haven?t had any responses to your question as yet. This is probably because Jaundice is a fairly rare side-effect/complication and the other board users may not have any experience of it.

Jaundice (or yellowing of the skin and whites of the eyes) can happen for a number of reasons. Perhaps the most common cause…[Read more]

Dear Domg6

Please drop me a line to askthenurse@myeloma.org.uk or call the Freephone Myeloma Infoline on 0800 980 3332 and I, or my colleagues, will do our best to answer your questions.

With best wishes

Ellen

Good morning everyone.

I have just spoken to Sue and she has asked me to pass on her and Keith?s appreciation for all your kind wishes at this difficult time.

Ellen

I am sorry that, as yet, you haven?t had any responses to your query. I hope you don?t mind me replying. My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.

Nose bleeds can occur for several reasons in the general population. For some people, frequent nose bleeds can occur as a result of low platelet levels.…[Read more]

Dear Kim

I am sorry that, as yet, you have had no responses to your query. I hope you don?t mind me replying. My name is Ellen Watters and I am one of the Myeloma Information Specialists at Myeloma UK.

The issue of MGUS and pregnancy is one that has come up before on the Myeloma Infoline, so I have previously asked a number of…[Read more]

Dear Vanessa,
Thank you for posting on the Discussion Forum, I am sorry that you haven?t had many replies. My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I hope that the following clarifies things for you.
An allogeneic transplant involves the use of stem cells from a donor instead of using the patient?s…[Read more]

I'm not a patient but I speak to many patients and their families every day, either on the Myeloma Infoline or via email.

It must be so hard for you being so far from your son, please don't worry about picking up the phone and calling me or Maggie or emailing us. That is absolutely why we are here.

However, we are off after 3pm today until…[Read more]

I wonder if by ?Blood Reap? you mean stem cell harvest? This is a procedure where a patient?s stem cells are collected prior to a stem cell transplant. A stem cell transplant is standard treatment for myeloma patients who are able to tolerate it and is carried out very routinely in the UK.

To read more about the procedure, including harvest,…[Read more]

Thank you,

Stu will remove these ASAP.

All the best

Ellen

I am sorry that you haven?t had any replies from anyone who has experienced a second stem cell transplant. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.

I wonder if you have heard of our PEER programme. It is made up by ?PEER Members? ? patients, family members and carers ? who are willing to share…[Read more]

Mr Bradley, thank you for bringing this to our attention, we have now made the necessary changes. Please accept our apologies for any confusion caused.

I would also like to clarify that our free quarterly newsletter, Myeloma Matters, which you receive in an envelope by post is available on subscription. To subscribe, please contact Nicola 0131…[Read more]

Welcome to the discussion forum. I hope you don?t mind me replying to your post. My name is Ellen and I am one of the Myeloma Information Specialist at Myeloma UK. I hope I can help clarify a few things for you.

Pain is a big problem for many myeloma patients. There is much that can be done to treat and manage pain but sometimes it can take a…[Read more]