Excellent news Dai. We made some changes to the website layout on Friday, renaming some of the sections. I suspect this may have been the culprit.

Regards
Stuart

Hi Folks
Can you let me know where you are trying to open the forum from? Is this from a bookmark you have made in your web browser or from another page on the site? I'm having trouble re-creating the error.

Regards
Stuart.

All sorted now.

Thanks
Andy

Hi folks

After a little bit of digging, we have discovered the reason for not being able to reply to certain posts and we will get it fixed asap.

It's actually double quotes in the subject line that causes the problem. I have removed them from this post so replying shouldn't be a problem any more.

Regards
Andy

Hi All
First of all apologies for interrupting the discussion, secondly apologies for the gremlin that stopped you all from replying to Paul's post. It was caused by the double quotes in the title. I have merged these two threads together and reported the error to our development team.

Regards
Stuart
Myeloma UK WebTeam.

I have been so touched by all your wonderful messages. What can I say? My control freakery has now gone out of the window along with the bra which is now too painful to wear – not a pretty sight. Showering is now hilarious each morning with what seems like half the nursing staff watching for the latest river to be created! It is certainly not…[Read more]

Hi Eve
Stuart here. If you click on your name in the top right of the page where is says "Welcome eve" you should be taken to your profile page. On the right hand side of this page there are a number of text links, one of which says "Edit". Click on this and you you will be able to change your personal details.

Hope this…[Read more]

Dear Dai – such beautiful words on a beautiful but windy day. What has struck me is that 3 deaths have come after such a long time but sadly it is inevitable with such a vicious disease.To all of us battling with myeloma well done for the courage and fortitude you have all shown in however you have faced it. To all carers and families supporting…[Read more]

Hello all you lovely people. I wish I could spend more time on here but my energy levels just won't let me. I have been reading some of your postings with various good ones and not so good.

My latest is that the Pomalidomide is keeping the myeloma steady but no world breaking figures. It sounds like lots of you are in pain with various ways…[Read more]

Dear Tina – Thank so much for your reply. Yes you are right. The last few weeks have been awful regarding back pain and I am still awaiting whether or not a kyphoplasty is still on the cards. However, it is the pomalidomide that will decide my outcome and with the polidomide and pain it is all out of my control.

You have been such a good…[Read more]

Dear Tina – I read with such sorrow your posting on the loss of Patrick. I hadn't heard from you for a while and had a feeling that maybe all was not well. And so it wasn't. The other patient at Barts is struggling with it as am I. You have been a wonderful carer and wife to Patrick and you must be feeling wretched. I can't imagine how you…[Read more]

Dear Bridget

Sorry that I haven't replied for a while and you sound in complete agony. You try to do a bit too much and and it repays you with massive pain. I feel for you very much.I think you have got the point that you need to contact the hospital tomorrow and get some idea where the pain is coming from.

I still have no answer to my back…[Read more]

What a wonderful array of kisses to go with the beautiful sunshine today. Thank you all – fantastic.

Much love, Gaye xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Good morning Broncho and Dai. It is so kind of you both to write.I'm afraid that the news is not good regarding the pain. We are trying another pain killer to see if this will help.

The pomalidomide seems to be working so that is reasonably good news. I haven't been able to write and keep up with your news but I hope all is well.

Much…[Read more]

Thanks David.. well spotted!

Cheers
Andy

Bridget – the surgeon at the Royal London who did both my operations was Mr John Yeh and I think it is likely that he will come to the same decision as yours as it is now two years on and more damage has happened since then. Not a great outlook but must keep hopes alive.

Is it me but even though I cannot understand Swedish or Danish, let alone…[Read more]

Thanks Bridget – My consultant has sent a copy of my MRI to the Royal London to see if a kyphoplasty is feasible. The consultant there is the specialist in spinal surgery and kyphoplasty in particular so if he says no then that's it.

Some of the french detectives are just vile and 'Monsieur don't I look lovely with my grey but suave…[Read more]