Wonderful news Mari! Go, go, go!
Love, Gaye xx

Dear Amelie – well we are certainly learning a lot about you and what a great way of raising awareness of myeloma as well as giving pleasure with your music. I wish you good luck!

I was very interested with the comment that Denmark is far behind other European countries in diagnosing cancers other than, say, breast cancer. We are often told…[Read more]

Happy Christmas Shirley – you are on your way and that is great. It won't be long before you are back home and looking forward to the future. Keep going girl!
Love, Gaye xx

Dear David – Happy Christmas to you. I can't remember having any tooth problems after transplant so I can't help you but there is bound to be someone on here who has. It may just be waiting for nature to take its course as your taste comes back. I hope you can find an answer.

Love, Gaye x

I am so sorry to hear your very sad news Roz. I hope that Michael is now at peace and that you will have the strength and love of people around you to help you through this very sad time.

Best wishes, Gaye x

Amelie – I don't know about a simple blood test to detect MM but my own GP first became suspicious of mine through an unrelated routine blood test for possible thyroid problems. He obviously was not happy with the result and suspected myeloma. A second blood test was taken and shortly after MM was confirmed by the hospital. I had no symptoms of…[Read more]

Dear Sharon – this is why myeloma and where it breaks out never ceases to amaze me. Yes, it truly is a bummer in every sense of the word. I know what you mean about the children and it being their time. So, I have hope are not getting too much discomfort from your plasmacytoma and enjoy your Christmas.
Love, Gaye x

Sharon – I do agree with Bridget about your news being a complete bummer but whatever your consultant feels about future treatment, I know he will have your very best interest at heart. We will be here supporting you.

My plasmacytomas grow on my head so I always know when activity is increasing before the docs do!

Do have an enjoyable and…[Read more]

Dear Sarah – I have had two SCTs and the second one was harder to recover from. In my case it was Hb levels but they never came back to 'normal' levels and I have been on blood transfusions ever since. So he is not alone and let's hope that all the counts will start to rise sooner or later. Remember the treatment is not so powerful as the first…[Read more]

Dear Bridget – I tried to write about 2 hours ago and my posting was refused due to unacceptable language or something or other. I tried like mad to see what the offending piece was and could not, no swearing, nuffink! The only thing that must have offended the machinery could be to keep the old pec**r up. We'll see if it takes this…[Read more]

Thanks guys and gals for what seems like a faster system after all our moans about how slow it was. Unless I am imagining it I am certainly not dozing off waiting for it to load so something must have changed! If it has WELL DONE AND THANKS!

Best wishes, Gaye

Thanks Min – a very different take on the nativity but I really like it!

Love, Gaye xx

Like Min I cannot access this file – bum!

Gaye x

David – I am so glad you are back home and enjoying all the things that we so take for granted until they are taken away from us. First mission now accomplished.

As for your flu/swine flu injections I really do not know the answer and your consultant is the best person to guide you. I hope he is able to help you.

Good to have you back -…[Read more]

Dear Bridget – thank you for letting us know your news as I was getting concerned that Brocho was strangely silent for the last few days. I am so sorry about the infection but shattered for you regarding the Velcade. As you say you need some time to take it all in and by not having any treatment right now will hopefully give you some space to…[Read more]

Hi Debs,
Good idea. The topics will be getting another review in the new year. I'll add your suggestion to the list.

Cheers,
Stuart.

Hi Min,
I've raised the issue of creating an archive with our developers and they are looking at the options. This will hopefully be something we can get sorted out in the new year.

Cheers,
Stuart.

Hi David,
Glad you like it but I'm afraid there isn't a spell checker on this version of the site. I've put in a request to improve the message editing features and a spell checker is top of that list. It's a real shame Internet Explorer doesn't have a built in spell checker like all the alternative web…[Read more]

Gill – RT is certainly no walk in the park but I can't remember experiencing the side effects you mention. I imagine much depends on where they are targeting with the RT but it all sounds very unpleasant and Stephen shouldn't have to experience this. I know you have a tough one in Stephen but I think this is where your nagging powers must come…[Read more]