Hi Tom – at last a close-up of the now infamous socks and crocs. They are stunning and I really can't imagine why your kids are so worried about you …….! The photo of grandad and grandson is lovely but what's with the Spanish football shirts? Has Wayne Rooney upset you!

Lee – your photo of the droplet is terrific. I can understand why…[Read more]

Dear Min – I also have PN after Velcade but as to preventing it, I am not sure if there is anything out there that could help. However, I have had Velcade twice and I have noticed a pattern as to when mine started.

On my clinical trial 6 years ago I had 4 cycles of Velcade at full strength and had no PN at all. On my second course this year I…[Read more]

Dear Bridget – Just thinking about your title and my hospital experience on Thursday with A & E at my local hospital. I was in and out in about 2 hours. Everybody was very helpful – no sooner in X-ray department when I was called and then I saw the doctor who was polite and caring. We all too often hear the moans and groans about the NHS but…[Read more]

Dear Bella – It looks like the ladybirds are gathering for their Annual General Meeting! Amazing to see so many together. Is it me again or does anyone else feel a bit itchy ……….. ?!

Thanks for posting a very unusual photo.
Gaye xx

Hi,
Unfortunately it's not currently possible to change your username. We are keeping a list of suggestions to present to the guys who developed the underlying technology behind this site. I will add a suggestion for an option to display either your username or full name under your picture and see if there is any way we can change a…[Read more]

Thanks Bridget for your kind words – whether you are on dex come-down days or not you are always there for us so blow eloquence! I decided to make yesterday a hospital day but not intentionally. After having my blood test in the morning I then twisted my left ankle getting up from the settee and yes, back again, this time in A & E. It came up…[Read more]

What a wonderful photo – just the right image to see first thing on a dreary and cloudy October morning. Thank you Lee. Bridget you did make me laugh about a photograph of your estate but beauty, so they say, is in the eyes of the beholder!

Love, Gaye xx

Thanks to both Donalb and Stuart for the advice. I did not understand the use off threaded and flat but do now. I shall know what to do in future.

Gaye

Hi Gaye,

No it's not you! It's us meddling again. We decided to default to the 'threaded' style as this allows you to reply to individuals or to the whole group. The reply button right at the bottom in the orange strip replies to the whole group. The reply underneath the individual message replies in the indented format.

As 'donalb' says you…[Read more]

Dear Tina – Patrick has certainly been through the mill but I am sure all your love and wonderful support gives him so much. Well done and I admire you both the way you are living with this. It's good to know that despite all his treatment he is actually feeling ok right now – great! May it long continue.

I have managed an increase in…[Read more]

Dear Tina – thanks so much for your very informative reply. I think I have just started the 7th cycle of Revlimid at 15mg. For the past three months we have added an extra week's break along with one I had earlier on so it may be my 6th. Normally during the break my counts start rising but after 2 weeks my platelets in particlar have dropped…[Read more]

Yes Tom I do. It seems a great way to see other parts of the country and anything that might interest us and cheer us on our way. Do we ask the web-team to put up another category or continue in General?
Gaye x

The pics are lovely Lee so thank you. Mine is of RHS Hyde Hall in Essex which is where I go regularly to enjoy and often when I am feeling low and need cheering up. It never fails to inspire me and is so close to where I live. No rampant geese but I occasionally see Monkjack (spelling?) deer there.
Love, Gaye x

Dear Debs – this is the second attempt at my reply to you – the previous one seems to be flying around in the ether somewhere.

Thanks for all the info you gathered from the day on Saturday. It sounds like it was a good day despite one of the speakers leaving you a bit unsure. I think clinicians can sometimes forget that they are addressing…[Read more]

Hello Everyone,

Thanks a million for your positive response to the new website. We are taking on board all your comments so we can improve the site over the coming weeks. Keep the comments and suggestions coming. Some things we can improve quickly, others may take more time.

Don't be suprised if the subject field starts working correctly…[Read more]

Thank you Lee – it is a lovely picture – the church, the river and the harvest in. Just got in from clinic day in London and it was just what I needed!
Gaye