[emfParticipant]

Thank you so much for the encouragement derbyshirelass – it helps to know others have gone through the same things. I’m starting to feel less alone having found this forum, the Facebook support group and with the health and social care system starting to mobilise around us. Some close friends have also started plotting so I can get some days away from it all whilst they take care of hubby. I’m also working through finances to see if I can afford to reduce my hours at work as working full-time as well as caring for hubby and doing everything around the house and garden is just too much. I’m ready for the bank holiday weekend now, just got to get through a heavy day at work tomorrow first!

[emfParticipant]

Thanks for your reply lablady – there is some comfort in knowing that other people are dealing with this too. Myeloma is such a horrendous disease and I agree that it’s so hard seeing someone you love suffering. Close friends, yoga, getting outside for a walk, trashy TV, good books are giving me some solace. My mum is also being a huge emotional support (but unfortunately she lives 125 miles away).

At the moment I can’t imagine life the other side of this and I’m scared about how my hubby will be as his spine is so deformed. Did the long journey to and from Stanmore yesterday for him to be scanned for his custom back brace – pretty scary to see as he has to one that goes up to his chin and the back of his head as they are really concerned about his sternum. Also waiting for the results of an MRI on his head as they are concerned about a lesion inside his skull that might be impacting his brain. Myeloma is the gift that keeps on giving.

I’m really sorry you’re going through this too – happy to chat and also sending you back a big hug x

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