Thank you both for your responses, quite different but both reassuring that there are other options. They did say she responded very well to the initial treatment but she also suffered with the side effects so doesn’t want to have to do it again. They said induction is quite aggressive so I’m hoping that if she does go onto some sort of maintenance that it will be easier for her. I still haven’t heard back from the team but apparently they did mention yesterday about mum’s emphysema which we weren’t aware she even had – the consultant did say a while ago there were some changes consistent with age and smoking (although she hasn’t smoked for over 20 years now)on the X-rays so I can only assume it’s because of that but he didn’t really seem concerned back then.
Part of me is also sad because we really felt cared for by the trial team, the nurses were so lovely and we really built a great relationship with them which was so reassuring as I live 120 miles away from mum and then she lives a further 50 miles from the hospital and although I do my best to take her every week for treatment there are some weeks she has to get transport so it felt good to know she was going to a lovely team and now I’m uncertain where she will be for treatment. I’m sure we will find out more on Monday, just feels good to share.
