Hi Scott,
I’ve just joined up here and been having a look around. Thought I’d just say hi as we were both diagnosed at the same time and at the same age! And I thought I was unique…
I didn’t however have bone pain, and luckily still don’t. I do have some bone lesions but they’re teeny. Thank goodness. Your bone pain story seems to be a common one. I hope you’re managing ok. I have light chain myeloma. I too have troublesome lamda’s . 17000 of the little buggers at diagnosis. I’ve now had 5 cycles of CTD and just about to start my third on velcade. I was having swollen ankles at work ( kind of expected as I’m an A&E nurse and work 12 hour shifts). And I was getting tired during my daily training/exercise. This was most certainly not the diagnosis I expected. It’s tougher than anyone could ever imagine eh?
I’ve just been briefed on having stem cell transplants. Firstly an auto but Dr’s are also keen for me to consider an Allogenic transplant from an unknown donor. It’s set me back to be honest. The statistics are petrifying but there is a carrot of ‘cure’ being dangled which can’t be ignored. Have you been spoken to about a transplant?
I feel like I’ve rambled on a bit About myself…..it’s kind of habit after 5 months of this as you may well appreciate.
anyway……I thought it might be nice to know someone in a similar situation for support as most of my chemo clinic friends have got a few years on me. I hope you don’t mind me contacting you….
