Hi Ellen

I don’t feel guilt to be honest. I do feel cheated that our entire lives are unrecognisable since diagnosis.

I feel invisible – I have been really unwell myself for many years with several chronic illnesses and since my hubby was diagnosed 27 months ago none of that seems to matter any more – I have to take full caring responsibility f…[Read more]

In a word…yes. Think it is the steroids that they take that causes it. Not always easy to be thick skinned though is it.

Hi Rebecca

Thanks for your response. Very helpful to get a feel for the experiences of others that are further along in the process.

I know it is not helpful to think of ‘what ifs’ but can’t help but see some of these things as just more barriers to being able to obtain a lengthy remission – perhaps because we are still relatively early on and I…[Read more]