Myeloma Forum | emsie | Activity https://forum.myeloma.org.uk/members/emsie/activity/ Activity feed for emsie. Sun, 26 Apr 2026 13:10:55 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 306705529ef12ac6794e91018070b74b emsie replied to the topic Guilt in the forum Carers https://www.myeloma.org.uk/forums/topic/guilt/#post-137448 Thu, 22 Mar 2018 22:54:33 +0000 Hi Ellen

I don’t feel guilt to be honest. I do feel cheated that our entire lives are unrecognisable since diagnosis.

I feel invisible – I have been really unwell myself for many years with several chronic illnesses and since my hubby was diagnosed 27 months ago none of that seems to matter any more – I have to take full caring responsibility f…[Read more]

]]> 1cf8a40ae5cdefd5b088243859a1a7af emsie replied to the topic Problems with husband's behaviour..... in the forum Carers https://www.myeloma.org.uk/forums/topic/problems-with-husbands-behaviour/#post-137446 Thu, 22 Mar 2018 22:46:27 +0000 In a word…yes. Think it is the steroids that they take that causes it. Not always easy to be thick skinned though is it.

 

]]> bd7c504e296576b7671f3a0a6e2e3385 emsie started the topic Ultra High Risk?? in the forum General https://www.myeloma.org.uk/forums/topic/ultra-high-risk/ Thu, 22 Mar 2018 22:35:32 +0000 Hi

My hubby is currently receiving a second Auto SCT after achieving a poor response from his first SCT 16 months ago. He is very young (45 years old) and whilst the consultants couldn’t offer any assurances that a second attempt would yield a better response they were willing to try for him so we decided we have little to lose by giving it a…[Read more]

]]> 99603c1d2fb5c5a342a4423dde8705e1 emsie replied to the topic SCT question in the forum Treatment https://www.myeloma.org.uk/forums/topic/sct-question-2/#post-128922 Sat, 23 Jul 2016 04:40:47 +0100 Hi Rebecca

Thanks for your response. Very helpful to get a feel for the experiences of others that are further along in the process.

I know it is not helpful to think of ‘what ifs’ but can’t help but see some of these things as just more barriers to being able to obtain a lengthy remission – perhaps because we are still relatively early on and I…[Read more]

]]> 180d322a546ec4acb8e45ac5b754c764 emsie started the topic SCT question in the forum Treatment https://www.myeloma.org.uk/forums/topic/sct-question-2/ Thu, 21 Jul 2016 22:20:38 +0100 my husband (aged 43) was diagnosed over Christmas last year. He has been through induction with 6 cycles of Velcade/Thalidomide/Dexamethasone. When he was diagnosed he was stage three with a poor cytogenetic risk factor (1q21 translocation). We have been told that this would mean any remission achieved is likely to be shorter because of that. He…[Read more]

]]> f2281b43360e1c1ef8b9ef6e365ebca9 emsie became a registered member https://forum.myeloma.org.uk/activity/p/43644/ Fri, 26 Feb 2016 22:23:11 +0000 0