Hi David

Have been told war horse is a wonderful stage production,my granddaughters loved it,might get to see it myself one day.

The new combo of drugs should see you through the paracetamol gives an extra dimention to any morphine drug,plus if you have liquid back up as well.Slims on combination ,just about keeps pain under control,he is…[Read more]

Hi Clare

Welcome to the Myeloma club!!,patient,carer or family,I hope you get a good response to all questions.

My husband is 69 this year he had SCT after two courses of chemo,CDT plus Velcade., He only got 6 months remission. After the 100 days,he went to Kings I can assure you these top notch London hospitals,know there job,they do it all…[Read more]

Hi David
It's beautiful at the moment sunny without wind.Eve

I am pleased this little thread has opened to a large one . Thanks to you Dai were would we be without you,

When Slim came out of remission, it just seemed if I could not be open about it and slipped it into some ones post.as Andy says you start not posting,it seems all doom and gloom,but this is the time you need opinions around you ,this…[Read more]

Helen

Given Elizabeth a buzz on Facebook. eve

Hi Dai

It's not that long ago I was saying to you,that you were going along one branch of the tree and Slim along another, how wrong could I be, trying t be positive,I could have lost him that first year and here we are 2 1/2 years later ,we did a lot of reminiscing last night,things we use to do !!!! Only out for 1 1/2 hours,he could only…[Read more]

Hi Everyone

Tonight Slim and myself went out for a meal, to celebrate our 2nd wedding anniversary ,this one occasion when the elephant should be locked away in the cupboard , 2 years ago getting married in ITU, no honey moon,the first anniversary Matty my grandson died two days before,plus Slim was in hospital waiting SCT. So everything low…[Read more]

Hi Helen

My feelings is hit it hard,Velcade worked for Slim,I would like to see maintenance with Velcade,they know for some it stops working!!!!,Slims on your tail,another BMB on 7 then wait for consultant on 24 for decision !!!

Good luck Helen get the Palmers cocoa butter formula and tell hubby massage every night,just do not tell him…[Read more]

Hi Sarah

Nice to know you look in and trying to get on with life,how many lambs this year,I bet you are glad to be in the south,those poor animals up north have taken a battering .

Grief does have to be done your own way, its a year on 24 for Matty,seems like yesterday,Slim came out of hospital,as it was all to much,next month it will be…[Read more]

Hi Mandy

Welcome,,everyone on here will tell yo the Myelma journey is like a rollecoaster ride,mentally and physically ,everyone is different,plus add the equation of carers ,you get a real mixed bag!!!!,so every thing yu are feeling is normal.

It sounds if you are doing well,had a few blips,but on track,to help your back!!! Plus SCT,it…[Read more]

Hi Helen

I just remember when you were diagnosed,with a simple blood test,as a nurse you never saw it coming,you questioned yourself ,no matter who you are aches and pains are a part of life,it is looking back and thinking as a nurse,I should have seen that coming,or as Sue says hindsight .

I do think sometimes the patient can be to close ,I…[Read more]

Hi Jean

Pleased you are feeling better,you got to see the x rays,that's more than I did,it pays to ask questions or in my case be a pain in the a——–s.keep asking as Bridget use to say,knowledge is power.

Is you husband on trials???

Take your boots off its spring,if you cannot cope emotionally ,go to see doctor ,nothing worse than…[Read more]

Hi Sue and Helen

Slim has been much better with sleeping since we saw are own doctor,and if Slim sleeps I sleep.

I spoke to her,she recommended paracetamol on top of Oxycodone ,which has helped,he is always reluctant to increase drugs,this is a man who never had a prescription until he was sixty and that was a drug being pushed through…[Read more]

Hi Tom

Start eating ,you can eat for as much as you like,but keep it health, 😛 🙂 😎

Then it will not matter about weight loss,you must be feeling ,it's all bee worth while,lets hope you have a very long remission .Eve

Hi Dai and Tom

May I suggest a design problem with a onesie it concerns men and women,not so much kids as there bodies are flexible .you do need an a functional escape area,were you can quickly remove part of he garment,to attend to you normal body functions.

Love Eve

Hi Helen
I wish you well on your belated or should I say early birthday,I feel like that about Christmas Slim has nt been well enough to enjoy one for a few years,with that in mind why do I look forward to it !!!

We all need a little Mills and Boon,in are lives even the people who go uck!!,seriously does this heart problem worry you,or are…[Read more]

Hi Tanya

So glad you managed to be with your Dad,that is something no one can take away from you,be kind to yourself have no regrets,
You are a lucky lady,good husband kids and a kind mother in law,
Move on with your life and enjoy it.Eve

Hi Sue

I will keep trying,I do understand that even with the knowledge a PET scan brings,it will not change the outcome in Slims case,what they fail to understand,we need that knowledge !! I say this because we are busy planning are future, we are retired and intend to make the best of what ever time while Slim is reasonable fit.
I think they…[Read more]

Hi Ted

It is not strange,it sounds if they are checking your Kappa Light chains,they send a blood sample off takes a while for results to come back,then I'm a few months they will do the same again,this gives them extra knowledge to see how the Myeloma is advancing,it is just another marker to manage the stage of Myeloma.

Hope that…[Read more]

Hi Helen

Lets hope you find the key
Slims bloods are good,even kappa light chains showing rise,but on the 7 May it will be 3 months from the last BMB he will have another ,then the wait until 24 May for results. 10 percent three months ago.i wonder what it will be in 3months and 3 weeks.??? It is hard to just have BMB as marker,.

They…[Read more]