Hi. Bev

How are things going .i am just boosting this up,as people might have missed ir.Eve

Hi Trish

Tell him not to rub site of injection,otherwise he will be full of bruises.
Slim had to inject himself for 8 months to prevent clots. Good luck with the Velcade. Eve

Hi Rebecca

You could have a look at back answers on this site,if you put in kidney in top right hand corner it should come up with something ,I think a fw people will reply to you who have had the same problem

My husbands kidneys regenerated,but he was still given a smaller dose of chemo for SCT. Enough to do the job,he does have to drink…[Read more]

Hi Louise

I could tell you not to worry,but you will.its everything that everyone else has been through,make sure you take old clothes in,you just might want to through them away.Cold milk went down well with Slim,do not worry if dad does not eat,no use eating then being sick,things just do not have the same taste. They say a piece of pineapple…[Read more]

Hi Bev

Sorry to hear about you situation ,you do not say how old your father is or how old you are??.

It must be hard on you,but if your dad chooses not to tell you,there is no way you can find out!!!!

You could approach the situation by saying you have been on the Myeloma UK site,because some one you know has Myeloma and you found it…[Read more]

Hi Babs

Yep my husband has lovely locks plus from grey he went brown,I refuse to cut it
,in case they disappear ,he had straight hair before,I think it does go back to the way it was.:-S Eve

Hi Rebecca

Are you on dialysis ?..,

I can only tell you about my husband he was admitted with AKF,as he progressed his kidneys regenerated,never went on dialysis!!!!!when it came to his SCT they took on board the knowledge of his kidneys,and he had a lower dose of chemo,but enough to do the job.

There are people on here who have had SCT…[Read more]

Hi Daniel

You have been doing all this while sitting exams!!, Dan you are taking on to much do you intend to do uni???,you do have to gather you're family round and make desist ions ,I am surprised they let your dad out of hospital,without more surpport .

Although you dad is cheerful he must be worried, this problem is not going to go…[Read more]

Hi Jean

Do not worry about him not phoneing,he will feel all his energy has been zapped out of him,sounds if things are going as planned,Slim use to sleep,on waking he was so apologetic ,I arrived he slept then just as I was leaving he woke,get a good book,they still want you there when they wake up. Love Eve

Hi Daniel

Yes you are going to need a lot of surpport ,you are a bit young to be taking all this and even with the best will in the world, it is to much,have you a social worker??? Are you claiming the maximin allowances?… If not see a mac millan nurse,if you ring them up they will visit at home,she should be able to help with forms,it…[Read more]

Hi Everybody

It is interesting how people differ when given. Zometa Slim started on it 2 years ago the same time he started treatment ,but now because we see consultant every. 2 months the Zometa is now given every 2 months,we were told as time goes by it is less effective . He has never had any flu symptoms, to make things easier we have…[Read more]

Hi Trish
The program was Saints and Scrounges I tend to have the TV on rather than the radio as I am deaf so need subtitles,I was not paying a great deal of attention I do not know what the lady claimed but she was showing dogs and they filmed her,she had said she could not walk more than 50 yards without pain,and her answer was she had dosed…[Read more]

Hi Tom
I just say it as I see it,and people should not ask questions if they do not want answers. I think coming from Liverpool is the reason people seem to be more blunt and take bad news and turn it into a lighter thing,it helps people to talk to you about it.
I do find my sense of humour does get me in to trouble down south,as I have aged,I…[Read more]

Hi Babs

Slim had a letter ages ago just a general letter from pensions office,he gets attendance allowance ,right in the middle of the letter it actually says you must inform them if you have a SCT or any other change. I am glad I looked through mail,what I do is quickly look at things,keep them,then when I have a pile if I am going to keep…[Read more]

Hi Jane

Welcome to the club, it's my husband with Myeloma and he is 2years down the line,nice to hear you have a sense of humour,I think it will hold you in good stead as your treatment progresses.

I have a sense of humour,sometimes near the mark,but I think if you did not laugh about something you would end up crying,as you get to know…[Read more]

Hi Sue

I know a number of people who are at different stages of mourning,this also includes my daughter and myself,for my first grandchild Matty who was 16.

There is no right or wrong way,just take it a day at a time,you will go through every emotion,but in the end you have to do it your way .No one can really help you,Ruth and I find…[Read more]

Hi Tom

Well I think you should try again,and if you are refused appeal,you are supposed to fill the form in and put you worse day down!!!

Tom what can they only NO so you have nothing to loose,all this money you are paying for a pension you might not see.as for the small private pension,if you explain the circumstances and the fact you will…[Read more]

Hi Keith

Well they are working hard on you,so at this present hospital seems the place for you,how is your wife managing with all this,she must be very worried about you.??

Once they find the infection,they should be able to treat it,as for going commando style, what was the nurse doing ,I do not think that's the answer Keith,I no Slim…[Read more]

Hi Maureen

How are things going,Ian must be feeling low,if he is anything like my husband he will not be voicing his fears,because he will be worried about you,plus the Dex confuse s them,when Slim was like that for some reason he got it into his head,that I wanted to stop coming,I was just getting so worn out, I would ring him in the…[Read more]